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Lexi and labor day weekend

Sep 06, 2011 - 5 comments
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labor day



It's been a while since I journaled and there is so much to tell!  Some good and some not so good.

Rory starts pre-school on the 19th and I'm very excited and anxious/nervous at the same time.  I look forward to her going for so many reasons but mostly because she is so bright and imaginative and full of energy that I think she will have a fantastic time!

Lexi has been doing fairly well.  She's adjusting to Shawna but let's face it, Shawna is no Kelly!  Lexi has been saying, mom, dad, bubbles, baby, ball and cookie all unprompted!  Lexi tends to say mom a lot but most recently, she actually means me!!!  She also is now saying:  calm down (from watching Ni Hao Kai Lan), thank you and you're welcome.  Lexi can now stack between 5 and 6 blocks...just 4 months ago she couldn't even stack more than 2!  Lexi is also learning to clean up during therapy and this has rolled over into her daily routine.  Lexi now brings you her bowl or plate when she is done eating...it's the cutest thing to watch!

I am, however, worried about her increasing fear of the second floor of our home.  I've posted a question in the autism forum and would love some feedback.  I love feedback from you all but would especially love to hear from other asd moms and/or moms who have heard or dealt with this.

Lexi's hair pulling comes in ebbs and flows and most recently it sure is flowing!  She had one patch of hair left on her left side (the hand she uses to suck her thumb) but now that is nearly gone (overnight!).  It breaks my heart to see this.  I know it will most likely pass but I worry that she'll do permanent damage.

Sorry to be a debbie downer today.  There are some days I am just thrilled to pieces and others I feel overwhelmed.  Today, I'm feeling sad and slightly overwhelmed.  DH's family haven't been very supportive, rolling their eyes because I needed to leave an event early because of Lexi.  They really have no idea what it's like!  She clings to me mostly.  I don't even get an option to sit down and hold her, that's not good enough. I must stand and hold her.  have you ever tried to hold 30+ lbs for hours on end and take care of a 4 year old?  It's nearly impossible to prepare a meal or do anything else alone?  There are 3 adults in the house and it's like a tag team event every day just to get simple chores done.  His family really has no clue!

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535822 tn?1443976780
by margypops, Sep 06, 2011
Good to hear from you on your journal sounds like a busy time with the gals , hha I love the comment'calm down' I bet folks laugh when they hear that,i can imagine holding her for a while is tiring but hopefully is temporary. Did you tell the members on the Autism Forum you have a journal up sometimes the side bar goes sailing by.Does the hair pulling happen when she is anxious I wonder if distraction would work .What happens if you sit down and lexi sits on your knee, maybe if you just did it giving no options ?

703031 tn?1398963307
by jb41799, Sep 06, 2011
Thanks marg, you are always so supportive!  I did put a question up in the autism forum and I'll probably re-post my status a few times to keep it fresh.

Yes, the hair pulling happens when she is anxious but also when she is tired.  She's calmed down in front of us so it mostly happens when she is in her crib at night.  I'm wondering if she's doing it while she sleeps?  I cleaned her crib and her room Sunday.  There was so much hair it looked like the cats had let loose in there!  We do try distraction as well as physically pulling her hand away when she is downstairs though.  I can't wait for her checkup with the pediatrician in October so we can maybe open up some new options.

Oh, I do hope the being held is temporary.  I do sit down leaving her on my knee.  She simply pushes away to stand then grabs my hand to lead me then wants up again.  If I don't give in, it turns into a melt down which then turns into the hair pulling.  Logically I know I shouldn't give in, this would be my response with any other child.  I let MY emotions get in the way I think.

535822 tn?1443976780
by margypops, Sep 06, 2011
Just like a Mom wouldn't you say I think we have all done that and of course you know that why she does it, because she can ...I know that we all have avoided meltdowns especially any public ones so don't feel bad.I think she has to know you are the boss not her .....LOl I say all this but I know exactly how you feel...I wonder if she does pull her hair when asleep would a cap on her head help at all maybe like a hair net or have you tried that and maybe she pulls it off .    

703031 tn?1398963307
by jb41799, Sep 06, 2011
I haven't tried any kind of cap on her head yet.  She would pull it off but I wonder if I can find one where she can't pull it off?  Does one exist?  Food for thought.

535822 tn?1443976780
by margypops, Sep 07, 2011
Maybe make a game out of it, get one for yourself then she and can wear them to bed ., elasticated edges like a shower cap .maybe able to make one from material out of a material she could choose .

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