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finally reached the end of week 12

Oct 05, 2011 - 1 comments

It has been quite the journey so far and I have at least 12 wks to go.  My triple tx began on July 8 with Peg/Riba plus a protease inhibitor called BI201335.  I have deduced from the severe side effects that I landed in arm 3 with 240 mg QD x 12 weeks combined with SOC for up to 48 wks.  I was unable to continue working after 4 wks of TX.  I am still taking one capsule daily but I believe its placebo as I have not suffered any severe nausea or vomiting in 6 days.  So now I am done with the PI but still suffering with rash, headache, shortness of breath, loss of appetite, nausea and fatigue.  I wonder if something in the capsules (drug vehicle) is making me feel so sick?  None of these things are going to stop me now.

When my 12 week blood work is complete I should receive the news on whether or not I have cleared the virus.  Hoping for good news soon and a 24 wk EOT date will be Dec.23/11.  What a great Christmas present that would be!  It was 12 weeks of hell and I took alot of it out on my two kids, for which I am truly devastated.  It is not over yet but I hope to return to my almost old self soon and good health in the New Year.  Not sure how I will handle bad news but I won't go there for now.  Of note it seemed that when I stopped the PI the riba and peg stepped in to do their worst and I did have a good cry that day but it all seems manageable again.  

Had enough of west coast rain - just waiting for the next sunny day to get out and enjoy some fall air.  Happy Thanksgiving to all!

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by ann61, Oct 05, 2011
Congrats on reaching the end of phase 1.  I will pray you get the great news you want and deserve.  Do the best you can each day and don't beat yourself up when you are not quite the person you strive to be.  It sounds like you will have wonderful holidays and a happy and healthy new year.  Ann

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