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Thyroid Results

Nov 16, 2011 - 12 comments

Got the results back today. I didn't ask any question because i was blown away....

She said, "We got your results back. They are off the charts. I've never seen numbers this bad before. The doctor wants to get you on meds immediately."

So...That's all I have to go by. I asked if my mom could pick up the results for me and she said yes. So hopefully I'll see what theresults are in the next few days. I am just holding to the fact that this is a gynocology doctor and she hasn't seen very many thyroid lab results......I hope anyway. But that doesn't explain the "off the charts" bad.....

Okay. Well. I start Levethorxine (sp?) today....I *think* she said 50mg. My mom is taking 150mg so I wonder if that means it's not that bad.....Or maybe I misunderstood what the dosage is. I'll find out soon enough. I pick the meds up at 5, in 2 and a half hours.......

My heart is just sunk right now. Just sunk.

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790669 tn?1465192699
by Des_a_rae, Nov 16, 2011
AWw connie I'm So sorry.  I'm just GLAD they finally found something and now you can take the steps to "fixing" this.  Getting this under control sooner than later is the best thing to do.   Please let us know as soon as you figure out what the " off the charts" means exactly.  I'm not real familiar with thyroid but it doesn't mean I can't send you prayers and hugs!!  

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by heather727, Nov 16, 2011
DON'T WORRY!!  It's a good thing they caught this when they did. My SIL didn't catch hers in time and it progressed to Graves disease and she had to have her thyroid removed.  Even at that extreme, she went on to have two children.  So, no worries!!  Everything will be FINE!

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by Risa615, Nov 16, 2011
Well, when my thyroid was at TSH 3.76 I started 25 mg and lasted on that for a year and stayed around TSH 1.  Then I went up to TSH 4.94 and went to 50 mg a day and now I am around one again.  Starting you on 50 mg tells me you are hypo like your mama for sure! You will first feel tired and then better after new meds.  It takes a while, but you will feel great soon!

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by Moma_Cher, Nov 17, 2011
I think they may start you off low and then gradually up your dosage. It sounds like your numbers are going to be very high... Sorry. The good news is it's highly treatable, response to meds is pretty quick and you should feel so much better soon!! I'm on 50's but sometimes I just know I need more and double up. Last week alone I had to double my dose 3 days in a row!

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by retta483, Nov 17, 2011
im sorry you have to take meds  but at least they caught it and when you stableize sp? you are going to feel so much better .

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by ConnieG, Nov 17, 2011
Thanks for all your lovely support. I'm just in tears at how wonderful you guys are!  Who knew you could find such beautiful women online!!  (the beauty I speak of is inside not outside, please don't be offended by that!!)
Thanks again! I'll let you know my numbers as soon as i find out. I think I'm going to call them when they open and just ask! LOL That would be the prudent thing to do. :)

1152782 tn?1451105026
by ConnieG, Nov 17, 2011
Got my numbers in.........

TSH = 9.2 (normal range 0.3-3)
TPA = 677 (normal around 35)
T4 = normal
T3 = normal.

So I am thankful to be alive and well. And I understand why I have been requiring 13+ hours of sleep and gaining 10 lbs in a couple of weeks. I also understand why I have to eat around 800 calories a day to be able to lose any weight and 1200 cal/day makes me gain quickly.

I am soooooo thankful for the health fair at work! Without that sonogram I would have never gotten my results and who knows where I would have been healthwise in the next few years with these kinds of numbers!

790669 tn?1465192699
by Des_a_rae, Nov 17, 2011
Exactly Connie!!  Thank god for the health fair!!  Wow, those are pretty high numbers, but luckily you've caught it, you can get medicated and feel better soon!!  I'm sure finding this and taking meds is going to make a huge difference in how you've felt and how you'll be feeling.  So glad they found this.  I really hope you feel a big difference soon!!  Big hugs!!!

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by Risa615, Nov 17, 2011
Wow that is high, but you are on the road to getting it down! I would suggest you do not go on bcp like you mentioned a few weeks ago. My tsh doubled after bcp for ivf. Estrogen does it. Make sure not take anything with iron near when you take meds. Remember since you are ttc tsh needs to get down to 1. Your bloating will stop as well on the meds. I still take off my rings before bed and put them back on in the morning.

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by Sherri90049, Nov 17, 2011
Not sure if they told you this, but what you have is the same as Risa and I. (Hashimoto's Thyroiditis) That's diagnosed by having an elevated Thyroid Peroxidase Antibodies test. Our immune systems are attacking our thyroids for some reason. One thing that helped alot for me was changing my diet. I cut out gluten, dairy, refined sugar, caffeine and alcohol. That combined with drinking alkaline water, I have actually stopped all my thyroid meds.

Now as high as your numbers are, it will take some time to get them down to normal. Synthroid (levothyroxine) can help alot. I started on 50mcg as well. I felt alot better within 4 days! Eventually I plateaued and had to switch to the natural desiccated thyroid. But like you, I am thankful it was found and that I was able to get some relief. They will likely recheck you in 4-6 weeks of being on 50mcg, and then adjust your dose if necessary.

I am very glad you were able to get to the bottom of this. With a TSH that high, I imagine you had been feeling pretty crappy! When your TSH is normal, it is very possible that your TTC'ing will be alot easier! I will be crossing my fingers for that, sweetie! My cousin was hypothyroid for years and no one caught it. After he was on Synthroid for a few months, he lost 40 lbs! It's just terrible how often this problem is missed by drs. TSH should be checked on a regular basis, especially in someone who has symptoms like you.

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by FairyGirl15, Nov 17, 2011
I'm sorry to hear of these results. I'm expecting problems with my Thyroid later in my future as my mom's doesn't work anymore. But so far I've been good.

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by ConnieG, Nov 17, 2011
Thanks Desarae!

Wow. Thanks Risa! I will stay away from BC pills!! Not like I *need* them anyway. Plus one pill a day is enough to remember. I have NEVER been able to remember to take pills more than 3 days in a row! LOL

Thanks Sherri! That's soo good to know.  I have felt better since I started a vegan diet. I should add gluten free to it as well.  I also cut my caffeine, thanks to ya'll support! So I am just praying i can be medicine free like you!!  I've gotta look up alkaline water, never heard of it!

I guess i should have my regular doctor in charge of it instead of my gyn. My doctor is right at my back door and my gyn is 45 minutes away....Plus I would assume he would stay on top of the rechecking better than she would....Not sure though.

FairyGirl, I would def. make a habit of getting your blood tested every other year or so. I was checked 3 years ago and was perfect. Now I am through the roof! Staying ahead of the game is much better than falling behind. I wish I would have gotten it checked every year. The last several months have just been intolerable. I even visited my doctor because Iwas so tired and he said it was stress.

Thank you ladies sooo much again for the support! It really means the world to me!

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