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So confused . . .

Mar 17, 2012 - 0 comments

3/16/12 UPDATE:  MGH and our Vermont Hepatologist referred us to Dr. Hugo Vargus, at the Mayo Clinic in Phoenix, AZ in December, 2011.  We decided to buy an RV and travel (bucket list style).  We ended up here for our Apt at the Mayo Clinic, only to be told, they have never treated anyone post transplant that have not transplanted at the Mayo Clinic . . .  Go figure!!!  So the dbl tx ribo/peg was stopped in December, and Gary's labs blood wise have started to rise a bit, but his liver enzymes, BUN, alk phos, and viral load have gone up . . .  VL is now 18 mil compared to 1 mil in December!  We are trying to figure out if searching for another clinic to tx him with the triple therapy is a good idea or not.  MGH is not using the triple therapy on their post transplant patients, don't know why, but they just are not....Any advise will be appreciated . . .

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