Apr 28, 2012 - comments
Today I had my first appointment with the specialist and I was a little excited and a little scared, but those feelings gave way to disappointment. The good: my EF is still about 30%. The bad: my SOB is getting worst and so is my swelling. The ugly: I do not qualify for a heart transplant. I was told today that because I have multi-organ diseases that I would not be a good recipient for transplant. See, I am Diabetic (with serious complications due to very late diagnosis including - shrunken kidneys???, bladder paresis, gastroparesis, peripheral neuropathy) I also have a form of Sickle cell disease. I think I had my hopes that if things were getting worst that maybe I had some options...NOPE. I don't qualify for assistive devices such as LVAD, but I do qualify to get an upgrade to my Medtronics Secura ICD to a bi-ventricular ICD to help with pumping efficiency. The doctor was very sensitive and told me after I was trying to pick my face up off the floor "we will just have to fight back really hard with medications". So we changed from Toprol XL 125mg 2x day to Coreg 12.5 2x day, from Lasix 120mg per day to torsemide 100mg 2x day. I have no idea what I am suppose to say, I cried with my husband because a man killed his wife and committed suicide (she had late stage Alzheimer's and they had been married for over 50years) It made me realize that I wanted to grow old with my husband, we have been together for 22 years and I though I would get at least another 20 :)
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