Nov 01, 2008
Okay, here goes. It was April 5th, 2008 on a daaaaaaark and storrrrrrrmy night. No. Just kidding. It was actually morning and I had just woken up with my hair sticking up all over the place. I remember the date because it was also my sister's birthday. She understands why I didn't call her that day. Anyway, I went to get out bed that morning and my right leg felt as though it were asleep but without the pins and needles feeling that usually accompanies a sleeping limb. I thought it was weird but also thought it would go away. Maybe once I was up and walking around it would feel better. Well, it did NOT. The more time passed the less I was able to use my right leg. I get this bright idea sometime around 1 in the afternoon that I needed to go for a long walk to get my blood circulating and some fresh air in my lungs. Surely this would make me feel better and wake my darn leg up. Well, it also did NOT. By the time my boyfriend and I made it the, just under two miles, down the trail to turn back I could barely use my right leg. On the walk back I kept kicking my inside left ankle because I could only swing my right leg kind of out to the right and ahead of my left one in order to walk. When we finally made it home I had to walk up the stairs left foot first on every step to the second floor. Sunday came and went and I still had no mobility in my right leg.
Monday I went to work and climbed the stairs left foot first to the third floor and I told my boss I had no idea what was going on but something was not right. I said I was going to call my Dr. and try to make an appointment for that day. I called and they told me flat out they would not see me for this and to get my rear end to the ER immediately. I think they thought I was having a stroke because of the questions they were asking me. After blood work, MRI's, Xray's, CT scans, neurology exams and a urine sample they sent me home saying everything looked fine and they made me an appt. with my PC on the 11th that was changed to the 8th by my PC. She told me they found a spot on my brain and it looked like it might be MS. From there I had another MRI, this time with contrast that night at 8 at another ER. On the 10th an appt. w/my neurologist who set me up for, 2 hrs. a day for 3 days of steroid infusions. By the end of those I was swollen and red and it hurt if my skin touched anything. Yuck.
On the 17th I had a spinal tap which scared the living daylights out of me and on the 23rd the results of my spinal tap concluded that I have MS. I'm sure the couple dozen lesions in my brain and spinal cord might have helped in that determination.
The years before the diagnosis were filled with odd instances that my neurologist agrees should have been caught. A trip to the ER about 10 years ago because my right eye would shake and was extremely out of focus. It would make me very dizzy and have me feeling nauseous. It was scary to drive because I couldn't see all that well and what I could see was moving back and forth very rapidly. After a multitude of tests they couldn't find anything wrong and I was sent home. It lasted about 3 weeks or so and makes an appearance every now and then.
Mystery pains that have progressively gotten worse over the years that no Dr. could ever blame on anything......except on stress and the need for a vacation. Stabbing, buring, tingling, aching and sometimes shocking pains for no apparent reason and with no rhyme or reason.
Dozens of doctors appts. and always the same basic answers. I still think that had I not lost the use of my leg I would still be ignoring all of my body's warning signs because I thought it was all in my head......no pun intended.
Now I can pretty much walk normal as long as I am heading in a straight line and taking my time. I can only lift my leg about 6 inched off the ground but it's a whole lot better than it was in April. Stairs are and issue as are any corners I take or obstacles I have to maneuver around. I tip now and then and fall a couple times a week. Usually there is something around to catch myself on.
I twitch a lot. I think they must be muscle spasms but I'm not sure what's causing them. It can be embarrassing at times. The good thing is it happens most of the time when I'm trying to relax and unwind so I would be at home. It's a real bummer if I have a coffee in my hand.
Anyway, here is my story to the best of my recollection. I'm sure I missed a whole bunch but I don't want to be typing forever.
Take care everyone and be well!