Oct 25, 2007
Hi my name is Roxann and this is my story. I hope I can find a lawer or someone else with the same symptoms so that I know im not crazy. It all started about four years ago when I had my second child, after I had him my friend told me about this new birth control called the mirena IUD, now I have had an IUD before, it was the paraguard but it was horrible I bleed for 4 months straight, and was in alot of pain, so when I heard that this birth control was the complete opposite I was very happy, I mean what woman wouldnt be? A birth control that was active for five years, and you didnt have to go take a needle to the butt every month was to me a gods gift, but soon after I realized that it was the complete opposite! After I got it put in about two months later I developed a very large cyst on my right overy it was the size of an extra large egg so of cours I was in alot of pain. Well my doctor said that it would pass or shrink on its own well after three months went bye no change, so my doctor decided to give me a laparoscopy to remove the cyst, after my surgery my doctor said everything went well and I should recover fine from this surgery, well surprise surprise after one month later I was still in alot of pain at that time I went back in to see him, and what I heard was like a diffrent language to me he told me when I had my surgery he found some endometriosis on my overies as well as my uteris, I didnt know what he was talking about because I didnt know what this was I never heard of it and I was thinking why did he wait a month to tell me what I had, he didnt explain his self so when I left I called my nurse and she explained it to me. I was so devistated how could I get this and what was the cure she explained that there was no cure the only solution to my problem was to have a hysterectomy to remove all of the endometriosis from my body and even that wasnt all she said that it could spread to some other organs I was speechless and thought I was going to have a nervious break down I broke down in tears because this ment no more babies no more woman hood this is what I felt, but thru all of this I asked my doctor what could have caused this, he said nobody knows exclactly what causes endometriosis, all I could think was is it mabe from my IUD because after I got this thing put in me my life has been nothing but pain first the cysts, and now this. So my doctor said that I was too young to get a hysterectomy, and that he wouldnt do it anyway even if thats what I wanted, so he put me on this medication called lupron, it caused me to go into an artificial menapause state, and I was so missurable on it I hated anyone who crossed my path, and now I know that it is far worse than the actual menapause it self. So after three months that I was on this medication I told him that I was too much in pain and it wasnt helping me so he said that there was nothing else he could do for me, so basicley I was S.O.L , it was either live with the pain or get back on lupron, I chose to live with the pain, I lived with it for three years till I decided enough was enough I went to see another doctor, I explained me situation to him and he was eager to help, I told him that I cant take this pain anymore and I thought that the pain was from the mirena, he laughed and said no way was my pain coming from the mirena and that there was no way it caused me to get endometriosis, so he gave me an exam to make sure my mirena was still in place and mabe if it was out of place thats what would be causing my pain, during the exam he said that he couldnt find my strings and I explained to him that it has been a while since my strings were gone he thought mabe the mirena was in my uterious, so he orderd me an emergency ultra sound, but nothing , it was in place but embeded in my cervix, I explained that I couldnt possibly take this pain anymore, so he said im going to give you a hysterectomy , I have to admit I was shocked to hear him say that because my previous doctor said that I was too young to get the surgery but I payed no attention to my thoughts and went along with what he told me besides I thought hes a doctor why would he want to put me thru anymore pain that I was already in I came to him for a secound opinion and he gave it to me, so it stuck and we scheduled my surgery to have my uterious removed and keep my ovarys what I didnt understand is why keep my left ovary it has been giving me trouble since I had that cyst, all it did was hurt all the time since then and I told him that several times, but then again I thought he is a doctor so I again trusted him, I had the surgery the following month, and was in the hospital for 4 days because my pain was imbareable after the surgery. I went home finally after the fourth day, my doctor told me to stay off my feet and rest for three weeks and then after im all heald I shouldnt have anymore pain, I thought to myself yes finally after three years im going to feel normal again no more laying in bed because I was in so much pain, I could finally get my life back, but little did I know after the three weeks I was still in pain so I gave it another two weeks thinking mabe I wasnt all the way healed, everyone is diffrent mabe just mabe it was going to take me longer to heal but after two months went bye I was still in alot of pain, so again here I go back to the doctor complaining about my pain, he said well Roxann we are going to have to take your ovarys I said well that means no more babies right, and I will go into early menapause right, he said yes thats right so my husband and I talked it over and decided that I had no other choice I wanted to be pain free, so I called the dr. and made another appointment to take my ovarys out, he agreed that this was the only way to get rid of the pain, so here I go once again two months later on my third surgery, but this time he took my ovarys I was sad but happy at the same time because I thought finally after four years Im going to be pain free and nomore pills nomore laying down in bed all day and I can finally be myself. Well you probley gussed it after I heald up I was still in pain so at this point my dr. said I dont know what else I can do for you Roxann, all I could do is cry and ask god why me what have I done to deserve this, I can no longer have children of my own, oh and did I mention because my body is going thru early menapause its not going to take one year for it to go away like normal women because im going thru it so young im going to have thru live thru this for 4 to 5 years. My dr. decided to send me to a pain clinic and to a psychiatrist because since I had a hysterectomy it thru me into a depression that is imaginable at one point I was considering suicide, I felt like I was no longer a woman, I had no femal organs, and I felt empty inside. I am still going thru all of this all because of a little T shaped plastic thing that was inserted into my cervex. wow I never thought this would happen to me I dont think anyone does untill it happens. Im sorry that this is so long there is actually more but im starting to get upset and I just cant go on. I hope a lawer sees this or a doctor sees this and is not afraid to tell the truth I am living proof that this mirena is defected not only me but thousands of women including my sister and she is only 21 she cant go thru what I went thru or any other women for that fact. Thank you for taking the time to read this.
p.s. If you want to know the whole story please dont hesitate to write.
p.p.s The doctors dont know why im still in pain.