Nov 26, 2008
This is a follow-up for those of you interested in how my doctor appts. went today -I didn't post this length detail as a discussion on the board because I really don't have questions. First, I really don't like early morning appts. and seeing the GI doctor at 7:30 AM was painful enough. At the end of the appt. I gave him a copy of my esophageal spasm/heart attack quote I found last night - he read it twice - the second time outloud and said the operative word was "may" . He did give it to his PA to put in my chart.
We had already spent time reviewing my lump/knot in the throat issue. He wants to do a pH monitoring test to check my acid levels. Fascinating procedure from what I read - during an upper GI a monitoring capsule is attached via suction to the esophagus. It will transmit data to a recorder unit for 48 hours. I will wear the recorder on my belt like a pager. The capsule itself will detach from my esophagus in 5-7 days and exit my body via my digestive system. The unit is made by Medtronics, the same group that makes a popular brand of pacemakers and other medical devices.
This procedure is scheduled for next Thursday afternoon. In the meantime he has restarted me on Prevacid and wants me to continue the acid reflux diet I have been following since March (no coffee, no caffeine, no chocolate, no juices, etc.).
I then stopped through my cardiologists office near the GI doc to pick up my brand new magazine on holiday baking that I left there last week. I had called them and told them to read it and I would be in today to get it back. When I stopped I also dropped off to the cardio doc a copy of the esophageal spasm/cardiac spasm information along with a quick note from me. That will make his day to see me trying to play doctor still - I just can't seem to let this connection thing rest until I can get a reasonable scenario worked out in my head about what happened to my body.
Stop #3 this morning was the urogynecologist. I was surprised that I have another UTI - I again had not a clue that germs were breeding in my bladder. She doesn't want to put me on antibiotics again because of the concern of developing resistence to antibiotics if I use them too much and she thinks the infection may be an ongoing problem now for me because of the self-catherization. The self-cath is a clean but not sterile procedure and each time I am introducing new bacteria into my bladder. I am to call her immediately if I have pain or start running a fever.
Unfortunately I am still retaining urine, despite being on FloMax, about 375ml this morning right after I had voided. So I am stopping the FloMax since it obviously did not work for me. She wants me to increase the self-cath routine to multiple times a day to see if that helps keep me out of the bathroom more than 45 minutes at a stretch.
And this part I will post on the forum as well - she gave me literature on Interstim Therapy. Another fascinating procedure to read about - and this is also made by Medtronic, the pacemaker and pH monitor manufacturer. I think I should buy stock in their company! It is an electronic neurostimulator device much like a pacemaker that is implanted near the tailbone under the skin. the unit then is fine tuned to provide the appropriate electrical stimulation to the sacral nerves that control the bladder. She recommended that I consider it seriously and do the two week trial with it to see if that helps. She also suggested we talk about it after the holidays - she could see that I was at the exhaustion point this morning and not processing all this stuff particularly well. But, and here comes the giant problem with this procedure, she did point out that if I go ahead with the permanent Interstim implant, I would not longer be able to have MRI's done. She did say she had a patient that overlooked that conflict and had an MRI and it did no serious harm but the unit had to be reset by the factory, which could be done remotely.
She will be sending another note to my MS neuro with her findings and recommendation. I asked her if she was sure my problem was neurological and she said she has no doubt it is associated with my MS and not a physical cause. According to the doctor, there is no need to pursue other testing, such as urodynamics, to prove that my bladder is not working correctly.
I will see her again in early January.
Doesn't this all just sound like more fun for me?