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A shot in the dark - why lesions don't necessarily make me feel bad

Dec 05, 2008 - 3 comments

When I saw my neuro for my MS diagnosis, he gave me an excellent analogy of what was happening in my brain with my lesions and my symptoms and why it was so important to start on a disease modifying drug now rather than wait.  Here is the lesson he shared with me -

Look around the room and find a wall that has a light switch on it. Now imagine what is inside that wall leading to the switch - there are wires but there is also a lot of other space that controls nothing.

Imagine you have a gun and start firing into that wall.  How many shots can you take before you actually hit some of that wiring in the wall and turn the power to the switch off?

Our brains and those pesky MS lesions are the same.  Not all of those lesions are wired to parts of our brain that control switches to our body functions.  But the more lesions we have the greater the chance of one hitting the critical wiring and flipping a switch.  

Taking the DMD's doesn't take away the symptoms we already have, but it is our current best hope of stopping future lesions from developing and turning our lights out.  

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338416 tn?1420045702
by jensequitur, Dec 05, 2008
And the brain can be taught to grow a new wire around the lesion!  Good thing, huh?

611606 tn?1315517767
by ShadowsSister, Dec 06, 2008
Lulu, your Neuro is sounding very smart to me.  It was so good to visit with you earlier today. Lady you are good medicine for my spirits, so thank you for your gifts of friendship and much needed support.
How blessed we all are that you are a part of our group...
Love & Hugs, daily...{{{{~!~}}}} DJ

3242961 tn?1352116876
by AmyKate73, Sep 04, 2012
Thank you for your exampled explanation, Lulu.   I go tomorrow for my 2nd MRI with and without contrast.  I initially had one in March of this year (2012) but things have not improved, and at that time, they were looking at my brain for Guillain-Barre Syndrome.  Now they seem to be more concerned about possible MS.

I was wondering about speaking to my Neuro about starting on the meds they have that help to "delay" the progression of MS, but as no one has yet been able to give me a diagnosis (they've only been able to tell me what I DON'T have, I don't know if he'd be willing.  But, unless the side effects are incredibly awful, I think I'd rather be "safe than sorry" as my 'mystery illness' has gone on and on and on..... with no diagnosis.

Any thoughts about that?    Thank You.   Amy Kate  Sept. 4, 2012

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