Dec 15, 2008
Ok, don't get too excited. I was accepted to a trial but as far as I know at 54 I am still too old to do any of the MS trials.
I heard from the lead investigator for the Prinzmetal Angina study being done in Cincinnati, and I've been accepted to that group. The study is really very simple - the thought is that PA occurs because of a lack of nitric oxide. The NO deficiency appears to come from a deficiency that is seen through DNA testing. Because I can easily travel to Cinci, since it is only 50 miles from here, I will get an additional work up done by the doctor in six months.
They are testing an OTC supplement L-Arginine being added in twice daily doses to stop the angina attacks. It will be lovely if it works. Such a possible simple solution to a complex problem. Women and men all over the country are doing this trial - if they are too far to travel to Cincinnati, they mail a tube of blood to the hospital that is overseeing the test. the remote participants are having just basic DNA testing performed, while patients who can travel to the hospital are having much more extensive blood work performed.
I could have taken the easy way out and just started taking the L-arginie without doing the study, on the hopes that it works. But I feel that this is a small contribution I can make and perhaps PA patients in the future will have a simpler course of treatment. Taking nitroglycerin and nitrate based drugs is not necessarily the most pleasant drugs because they cause a dull headache each time you take it. Most PA patients I know have never gotten over the headache caused by these drugs - it's something you don't get used to.
Tomorrow I'll call and get my assessment appointment set - I'll keep you posted.