Jun 15, 2012
I know that surgery was never meant to treat my Chiari Malformation.. And I do not regret ever having surgery. I feel grateful and blessed that I had the opportunity to have my surgery. I am just tired of being in constant pain. I am almost out of my pain meds and I have stretched them out for a long time, only using them when I cannot handle the pain any longer. My new PCP does not write prescriptions for pain meds for patients with chronic pain.. And I am still waiting for the referrals for pain management, neurology and endocrinology. I just found out that the insurance I am on will be terminating on July 1st, and I just went through heck to get this PCP and these referrals. I have the choice to choose from 5 different plans and there are 2 new ones available July 1st.. However, since I do not know which specialist my PCP wants to send me to for another couple of weeks, I won't know which insurance to switch to.. Plus he wants to send me to a different clinic because he cannot write prescriptions for pain. He does seem concerned and he doesn't want me to feel like he is just booting me out of his clinic, he wants me to get the pain relief I need. I will just have to suffer for probably another month or better. The pain in my head is now more on the left side and it is a constant stabbing sensation and then the scalp feels numb or tender. I also noticed a lot of pain behind my left ear. Of course there is the stiff like feeling in my neck and the throbbing pain throughout my entire back. I also am running fevers again. 101 this morning.. And my tonsils are swollen as well as the front of my neck... It is probably tonsillitis.. again. I get that a lot. I don't really want a tonsillectomy.. But I don't know what else to do, my tonsils are constantly swollen, red and hurt. I am researching homeopathic remedies to help with some of the pain, but none of which have been successful thus far.
I am tired of being jockeyed around with doctors.. I want to be able to stick with one for longer than a few months. It is frustrating because each doc is different with the way they deal with chronic pain. All I know is that is that my quality of life blows and I am feeling sorry for myself.
I finally find a doc who made the referrals that I've needed for the past 3 years and now I have to start all over again. When I found all this out, I think it really upset my nervous system because I couldn't stop throwing up. The good news is that Jade's insurance is not affected and she can stay with the doc she has now, thank God.
Well, I guess that I have dealt with this for 3 years, whats another couple of months, right?