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Pain

Jun 15, 2012 - 5 comments

I know that surgery was never meant to treat my Chiari Malformation.. And I do not regret ever having surgery. I feel grateful and blessed that I had the opportunity to have my surgery. I am just tired of being in constant pain. I am almost out of my pain meds and I have stretched them out for a long time, only using them when I cannot handle the pain any longer. My new PCP does not write prescriptions for pain meds for patients with chronic pain.. And I am still waiting for the referrals for pain management, neurology and endocrinology. I just found out that the insurance I am on will be terminating on July 1st, and I just went through heck to get this PCP and these referrals. I have the choice to choose from 5 different plans and there are 2 new ones available July 1st.. However, since I do not know which specialist my PCP wants to send me to for another couple of weeks, I won't know which insurance to switch to.. Plus he wants to send me to a different clinic because he cannot write prescriptions for pain. He does seem concerned and he doesn't want me to feel like he is just booting me out of his clinic, he wants me to get the pain relief I need. I will just have to suffer for probably another month or better. The pain in my head is now more on the left side and it is a constant stabbing sensation and then the scalp feels numb or tender. I also noticed a lot of pain behind my left ear. Of course there is the stiff like feeling in my neck and the throbbing pain throughout my entire back. I also am running fevers again. 101 this morning.. And my tonsils are swollen as well as the front of my neck... It is probably tonsillitis.. again. I get that a lot. I don't really want a tonsillectomy.. But I don't know what else to do, my tonsils are constantly swollen, red and hurt. I am researching homeopathic remedies to help with some of the pain, but none of which have been successful thus far.
I am tired of being jockeyed around with doctors.. I want to be able to stick with one for longer than a few months. It is frustrating because each doc is different with the way they deal with chronic pain. All I know is that is that my quality of life blows and I am feeling sorry for myself.
I finally find a doc who made the referrals that I've needed for the past 3 years and now I have to start all over again. When I found all this out, I think it really upset my nervous system because I couldn't stop throwing up. The good news is that Jade's insurance is not affected and she can stay with the doc she has now, thank God.

Well, I guess that I have dealt with this for 3 years, whats another couple of months, right?
UGH!!!!!!!

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Avatar universal
by Londres70, Jun 15, 2012
Have you seen Dr. E.?  

620923 tn?1452915648
by selmaS, Jun 15, 2012
Can u call all ur Drs u have right now with the list of the new ins options and ask which ones they participate with, that way u can keep ur Drs.....



620923 tn?1452915648
by selmaS, Jun 15, 2012
Can u call all ur Drs u have right now with the list of the new ins options and ask which ones they participate with, that way u can keep ur Drs.....



973741 tn?1342342773
by specialmom, Jun 15, 2012
Yes, most docs are clear about which insurances they accept.  A simple phonecall to the office asking if they accept any of the 5 insurance plans you know you can choose from should be easy enough.  They are used to this type of thing---  especially specialists.  

Sorry you are in so much pain.  That's terrible.  May this work out that you can see some  of these docs.  good luck

Avatar universal
by deadmemory, Jun 17, 2012
Since I don't know which specialists my doc wants to refer me to, I don't know what insurance to go to. I will try to call the referral coordinator tomorrow to see if she can give me a better idea. No, Dr. E said that my Chiari decompression looks stable so there is no reason for a followup. He said the swelling should resolve on its own and that I should be referred to a neurologist to monitor my symptoms. He may want to do a duraplasty in the future, but for now he said there is not anything he can do surgically.
I ended up tripping and falling over one of Jade's toys on Friday night and caught myself with my right hand.. Well I heard a crunch and felt a pop and my wrist is double its normal size.. I had it checked out the following morning and I broke my wrist in 2 places and tore the joint. I am in a very uncomfortable metal brace for the next month. The doc is sending my xrays to a orthopedic radiologist for review to see if I will need surgery (pins in the bones and reconnect the torn ligament) She thinks by totally immobilizing the wrist, it should correct itself... But we'll see. Well the pain in my wrist is sort of taking my mind off my other pain. I also presented with a fever of 100 and my blood pressure was a little high.. 142/90.. well the bottom number isn't terribly high.. I think the pain from my wrist caused a minor spike of my blood pressure.

Well I am gonna get off now because typing is difficult and hurts.
Have a great day everyone

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