Jul 29, 2012
Friday was the last day of week 4. Gary did VL on Wednesday, Tuesday we spent the day at the Cancer Center in Tucson, AZ because he needed a transfusion (2 units) and the doctor he uses, sends all their patients there for the transfusions. What a lovely facility! It was a long day, but they made sure he was comfortable for the entire time he was there. . . : ) His kidney functions GFR were at 27! So they cut back his prograf to 1 mg every other week, and his Riba from 1200 mg to 600 mg a day on July 20 and then after the transfusion on Wednesday at doctor appointment, cut it back more to 200 mg a day. The prograf level was bit high 7.9 and that can cause problems with the Kidneys, since the riba is eliminated through the kidneys, that dose was cut as he was so anemic (hemoglobin was 7.0 and crit was 25, wbc was 1.4). The doctors are very good about explaining everything to us. They said that for the next 8 weeks, there will probably be more changing of doses. They are going to start increasing the Riba again, once his levels are better, then we will just keep doing labs twice a week to keep an eye on everything.
I feel that the docs at U of AZ are doing and amazing job keeping tabs on him. They are always helpful with our questions and our phone calls. After all that we have been through (especially Gary) these docs are high on our list!
Still hanging in there, hopefully by this Friday, we will know what his VL is at the week 4 check point!