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My boys progress

Aug 01, 2012 - 13 comments

My boys are 18 days old now. It seems like for every step forward there's another step back as well. The nicu can be very stressful as I'm finding out. Overall my boys have been doing great. Gaining weight and having their food intake increased daily.

A few days ago I noticed both boys had a cough so I mentioned this to the doc. Yesterday he decided to test them for the 6 common viruses/cold you can get. It could take up to a week to get the results back. Today after he had seen them, he says they are both doing great and they are breathing well and if they are sick they are handling it very well. He doesn't believe that they are sick but he doesn't know why they ate coughing. They don't cough often either it's only once in a great while.

But because they could have a cold he decided to move them into isolation so if they are sick they don't get anyone else or other babies sick. So they will be in this new room till results come back. I'm hoping they come back tomorrow cause it really stinks that we have to be in the gown,gloves and mask now when we visit. I hate not being able to kiss them or feel their skin on mine. I'm hoping they are not sick! And the ng tube that's down their nose and thoat is just irritating it.

Also Maks isn't doing as well at the bottle as Aleks is. He forgets to take breaks and breathe. He has days he does really well and other days not so much so the doc wants a speech therapist to come see Maks and evaluate him. To see if he's ready for the bottle and to give tips on how to help him. They just want them bottleling safely. I am extremely grateful that their doc is so cautious and vigilant about their care!

It's just hard on me as their mom to hear about these set backs and I know they are well taken care of and are exactly where they need to be but it's still hard. I cried my eyes out earlier and I'm sure I'll be crying once I get home. I honestly can't wait till they are perfect and ready to go home. I thought I had a lot of grey hair before I'd be surprised if I wasn't completely grey by the time their ready to come home!

Aleks weighs 4lbs 2.2oz and is 17.25 in long and Maks is 3lbs 7oz and 17in long.

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1386765 tn?1451167937
by pb95, Aug 01, 2012
One thing I learned from the NICU is that it is hard not to get caught up in the stress of the minute to minute changes.  We went from thinking our son was in grave danger to having no problems, up and down so many times over the 6 days he was there.  I don't think the worry will ever stop, no matter what.  At least that's what my mom tells me!!  They sound like they are making great progress and have such good care.  Crying will get the stress out and that is good.  Thinking of you and sending hugs.

1293683 tn?1334022810
by tones99, Aug 01, 2012
I think your boys are doing really well considering how premmie they were!  just think of it in terms of, if you had carried them to full term, they would still be doing this last bit of preparation for the outside world now safely tucked away in your womb .. so they are doing amazing being out in the world so early!  once you get past what your full term date would have been, I bet you will see them come along leaps and bounds .. and I can imagine how irritating the tube would be .. I'm sure we would be coughing too if we had it stuck down our throats!

It must be so hard for you though love and I really feel for you!  You will have them home in no time and this will all be a distant memory!

294043 tn?1354211546
by Helen72, Aug 01, 2012
This too shall pass...  This is all temporary and they will be gaining more weight and getting bigger and healthier.
The first cold is always hard, no matter what.  Glad your dr takes all necessary precautions.
(hugs)

982214 tn?1471458381
by krichar, Aug 01, 2012
I know it's hard but try not to read too much into everything. I agree with everyone else, they are gaining weight and coming along so well. They are beautiful and healthy miracles. Always better to be safe the sorry so take it in strides and just know everything they are doing is so your boys can come home sooner :)

1386765 tn?1451167937
by pb95, Aug 01, 2012
My son ripped out his tube with his pointy finger so many times I wish they would have taped him up better like your boys!  I think he is proof it is irritating!

1340863 tn?1366644684
by sisi2399, Aug 01, 2012
I know exactly what you mean.  I was there about 3 weeks ago but there is one thing i can tell you.  The feeding was the same with Mason and the nurses always told me that he was going to get it from one feeding to the other.  She said you will struggle to feed him now and in 3 hrs you will feed him again and be like "who is this baby"  never believed her and one day.... Bang.... Just like she said, she became a pro from one bottle to the next.  He went home 2 days after that.  Hang in there, it will b over soon.  I promise!  Mason cough in the nicu too, not much but every once in a while. He was fine and so will be Aleks and Maks.  I have them both in my prayers.  Try not to stress too much, (easier said then done) i know but babies need you strong.  Everything will b fine, just a matter of time.  Hugs!!!!

1626928 tn?1378853767
by AshersC, Aug 01, 2012
First of all I want to say that I looked at your posted pics of your boys and they are SO adorable!  I cannot imagine what you must be going through with them in the nicu.  I will pray for you and also your babies.  May those tests come back negative so you can hold them in your arms un-gowned/gloved and masked.  :)

1654570 tn?1364395883
by juana105, Aug 01, 2012
Try not to stress too much, hun.. I know it's tough, but your boys are doing so well considering their age and I am sure that the coughing is result of those tubes. You will be all in my prayers! xoxo

377493 tn?1356505749
by adgal, Aug 01, 2012
Oh honey.  We too had a NICU stay and it is so stressful.  Not having our babies with us every second goes against every maternal instinct we possess.  Logic dictates this is the best place for them, but instinct tells us we need to have them with us and it's so so hard.  I also found NICU difficult as I saw so many really bad situations, it became tough to not immediately assume Ryder had worse case scenario too.  You know what though?  It's going to be ok.  They were preemie, so right now they need a bit of help.  And that is ok.  They are gaining and getting stronger and healthier every single day.  And trust me, they know you are there even if you can't have skin to skin right now.  They know their mommy and they know she loves them and is there.  Before you know it, they will be home and things will be as they should be.  The worry is natural and normal, but truly, it sounds like they are doing great and will be fine.  Hang in there sweets, it will all be ok and your boys will be home before you know it!!

334926 tn?1436815123
by butterflybabies, Aug 01, 2012
Thank you everyone! It has comforted me to read your responses. It's just so hard, I just want to protect them all the time! After spending a few hours all geared up the doc came to tell me that me and dh don't need to wear all that gear when visiting them because we are already exposed to whatever they have if they do have something. But we do have to wear a mask when leaving their room and before walking through the hallway when we get there so we don't expose the other babies. I can live with that! As soon as he told me that I immediately stripped the gear off and grabbed my boys and cuddled with them and kissed them. Felt like a relief to feel their skin!! The nurses of course have to wear all that when they come in. Found out from the lab the results should be back tomorrow. It's gonna be a long night, I'm exhausted but worried and hoping the results are negative!

Thanks again for you prayers, comments and sharing your nicu experiences I really appreciate it! <3

922048 tn?1387946184
by Sherri90049, Aug 01, 2012
Oh honey! I can't imagine how nervewracking all this is! I'm glad you have so many ladies who've been there to reassure you. You guys are always in my thoughts and prayers, and I hope tomorrow will bring good news! Big hugs!!!! xx

334926 tn?1436815123
by butterflybabies, Aug 01, 2012
Thanks Sherri! I'll post when I know anything

967320 tn?1333203308
by JennaRie, Aug 02, 2012
I had an NG tube after I gave birth due to a c-section complication and I can tell you it is extremely irritating!! I felt like I'd throw up every time I spoke so I just refused to talk. It made my throat really sore and I constantly felt like gagging. Anyway, I hope that's the cause of their cough, and I hope they progress enough to get them removed soon - I bet they'll be even happier babies once that happens :)

What does it say about my 9 month old son that he still forgets to breathe sometimes when drinking a bottle? lol

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