Jan 29, 2009
Those of us who have Chronic Fatigue Syndrome, may have heard about scandals involving CDC funding that was allocated for this devastating illness. These scandals were reported by the Washington Post and other respected news sources around the country. CDC officials diverted research funds away from CFS research and misled Congress about the matter, according to the Inspector-General's report.
There is good news though... as a result of these scandals, the CDC did a public awareness campaign on Chronic Fatigue Syndrome and there were commercials and even ads in magazines about this disease. (it is a disease.. IMO). Also, senators such as Harry Reid were involved and these senators demanded accountability from the CDC.
Well I have some very unfortunate news to report. The CDC games have begun again (in my opinion) and our tax dollars are being wasted.
Here is a video presentation from Dr. James Jones from the CDC. This presentation was given to OB/GYN physicians because they wanted information on CFS. I couldn't believe what I saw after I watched this video ! In my opinion, this CDC physician did a below average job. No where does he mention that many fibro and CFS patients have fibroids, low vitamin D levels, osteopenia and abnormal hormone levels. I am embarrassed by this. And this is probably the reason why my CFS patients are still getting smiles from physicians and medical staff after we tell them our diagnosis.
And now there are other new problems with the CDC. This is our tax dollars being wasted... in my opinion. If you would like to read more about this, check out Cort Johnson's website. And thank you, Cort, for allowing me to post this and reporting this injustice:
"Welcome to the Dec edition of Phoenix Rising. Here we're caught up again in one of the most intriguing and possibly consequential stories in memory: the CFID's Association of America's accusations that the CDC has essentially been squandering money - lots of money - on dead end projects on CFS. Now with the full minutes of the federal advisory meeting on CFS present we dive deeper into the controversy and take a quick look at the ups and downs of Dr. Reeves tenure and ask what happens if he does leave.
As all this was unfolding a group of ME/CFS experts was doing the first external review of the CDC program in ten years and we take a critical look at the report they issued during this rather turbulent period."
The latest info on the latest CDC games with CFS funding:
I suspect that politics play a huge role in these illnesses. Remember Gulf War Syndrome ? It was real... then it wasn't.... and then it was and then it wasn't again. And now, it is real again. But what makes me scratch my head is that the military knew how to treat GWS all along. ; ^ )
As far as new illnesses and people questioning these "controversial" illnesses, keep in mind that a polio and MS diagnosis used to be controversial. If you are concerned about this, please consider contacting your local senators and demand justice for people like me. I just want my tax dollars not to be wasted. I want answers and I want the best treatment available. I'm tired of the special interest groups involved (oh and they are... I've been reading about that one too!) and the CDC WASTING OUR money again. It's time to hold this agency accountable again... no matter how many times it takes.
How to contact your senators:
And one last thing... thank God that a new blood test that can diagnose CFS is on the horizon ! To all of those who didn't believe CFS was real.... remember not to do this in the future when other new illnesses emerge. If bird flu, SARS and West Nile Virus didn't kill their victims... then we probably would have questioned whether or not these people were ill as well. Stop the judging and do your research !