Feb 04, 2009
I began Doxil treatments last November. (2008) I am due to take my fifth treatment next Tuesday. About a week ago I developed a burn on my back that goes under my arms around to the front of my body. It is on both sides. It is not that painful, so I am trying not to worry about them having to stop the treatments. I have a few mild, red places on the palms of my hands that could be caused from the Doxil. I am using a triple antiobiotic ointment and a lotion with aloe in it, but NO alcohol in it's contents. It's amazing how many of the burn ointments have alcohol in them. That's just plain stupid to put them on a burn and have it burn like fire from the treatment! The people who are stupid are the manufacturers of such products. Look at the contents before you buy anything to treat your Doxil burns. The product I found that works and does NOT burn is Burn Jel Plus, made by WaterJet. It's in a 4 oz. bottle and contains Lidocaine for the burn pain.
Of course, my skin is as dry as it's ever been in my life. I keep the moisture lotion flowing constantly. I just found some aloe treated socks at Walmart in the pharmacy section that I am using on my feet. Tonight, I will add more moisture lotion to my feet, then sleep in them. Another unfortunate side effect is the drying of the skin on my face. I have aged quite a bit and about that...I WHINE. It's no fun to age on a daily basis. :-( But, I would put up with ANYTHING to fight this baffling cancer.
It never ceases to amaze me how so many of us who have this disease, have differing circumstances to work through. I've begun to just look at others as to how long they've had OVCA. The one case I must closely resemble is Doicat. She and I are trying to follow eachother's illness to see what our doctor's have to say about the treatments and Clinical Trials that are available to us. Unfortunately, I don't qualify for some of the same trials because it is written on my records by my original ONC that I am a Stage IIC. However, the ONC I changed to immediately after my initial surgery has written on my records now that I am "unstaged." He considers me unstaged because no lymph glands were tested when I was first diagnosed.
I wanted to update all of you who are on or are considering Doxil as your next treatment. I know that several of you had to quit taking it for various reasons. It would be great if you could make a journal entry here to explain why and what problems you had to cause your doctor to stop the treatments. By the way, my CA 125 remains within the normal range and has throughout my four treatments. I am not very confident in the CA 125 being very accurate on me. My ONC says it still is as far as tracking whether or not it is rising. Go figure.....