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Marshmallow Girl...

Feb 08, 2009 - 1 comments

First I want to thank everyone for their prayers and good wishes... I just logged on and it was so nice to read my messages and notes! Such warmth and care from people I have never met - it makes me feel loved.

I had a very bad blood infection.  My doctors doubled my calories via my feeding tube again... and I have gained weight but I think I look bigger than I actually am due to the steroids and fluid retention. My kidneys are failing and I am on low salt, low protein and low phosphorus which severely limits me in addition to my celiac disease... which is ridiculously limiting -  not that I was really eating much but now even if I want to I can't. I'm also not supposed to drink too much.

I am really just so HAPPY to be home and in my own bed again! I hate being in the hospital and I barely sleep there. I am exhausted.

I feel thankful but I also don't know how much more of this I can take.

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by Loribop, Feb 08, 2009
Glad you are home.  Hang in there!!

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