Feb 08, 2009
First I want to thank everyone for their prayers and good wishes... I just logged on and it was so nice to read my messages and notes! Such warmth and care from people I have never met - it makes me feel loved.
I had a very bad blood infection. My doctors doubled my calories via my feeding tube again... and I have gained weight but I think I look bigger than I actually am due to the steroids and fluid retention. My kidneys are failing and I am on low salt, low protein and low phosphorus which severely limits me in addition to my celiac disease... which is ridiculously limiting - not that I was really eating much but now even if I want to I can't. I'm also not supposed to drink too much.
I am really just so HAPPY to be home and in my own bed again! I hate being in the hospital and I barely sleep there. I am exhausted.
I feel thankful but I also don't know how much more of this I can take.