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The rheumatologist I saw today was great, but he doesn't think he can help -

Mar 27, 2009 - 5 comments
Tags:

neurologist

,

rheumatologist

,

limbo




because he thinks it's neurological.

Gah!

Seriously, though, he listened and took my timeline into consideration and said he definitely thought whatever was happening was real.

His theory is that something is going on neurologically that makes me extra sensitive (physically, not psychologically) to stimuli. He used the analogy of a house with a burglar alarm.

The burglar alarm should only go off it someone busts a window in the house or something. So all the blood tests will look for my broken window, something rheumatologic that will explain the alarm (pain). But it's likely there is no broken window, and the alarm is being triggered by things that shouldn't trigger it, like passing cars (no idea what stimuli would be the cars). So the alarm goes off and I call the police (go to the doctor). The police come and look around the house (do tests) and find nothing. They say, "Lady, you're crazy," and don't show any interest in continuing to search. The problem with this, the rheumatologist pointed out, is that they're operating under the assumption that the burglar alarm is programmed properly.

The doctor was very thorough in his exam and very reassuring; he made it clear that he definitely believed me and that he believed this was definitely a real, physical problem with the brain itself and not psychological in nature. He really seemed to get it; he even understood that after hearing other people tell me all tests showed I was healthy had begun to make me doubt my own sanity sometimes.

It is too bad all the tests he's ordered will probably come back normal; I would really like a verifiable broken window and for him to be my doctor.

When this bloodwork comes back and I get bounced back to a neurologist, I will definitely be asking for someone other than the jerk I saw on Monday. I mean, just because he doesn't think this could be MS doesn't mean he shouldn't have looked for a neurological source of the problems, especially since so many of the symptoms are, you know, neurological and all.



Comments
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Avatar universal
by deborah0904, Mar 27, 2009
I just love a dr. who will validate your symptoms!!  This man is a jewel.  I don't want you to be sick but, I do want you to find out what is wrong.   I'll be praying for you that you find the answers you need.

Avatar universal
by Trace420, Mar 27, 2009
Thanks! I know what you mean. I'd give almost anything for a diagnosis right now; after all, something's wrong whether I have a name for it or not. ;-)



739070 tn?1338603402
by rendean, Mar 27, 2009
I'm so glad you found a doc who agreed something IS wrong. Too bad he isn't a neuro...but baby steps will lead to the answer eventually. Most of us have taken hundreds of "baby steps" to get a diagnosis...any diagnosis. Hang tough and continue with those steps, each one will get you closer to the answer.

Avatar universal
by foxey54, Mar 27, 2009
SAME WITH ME. THEY KEEP TELLING ME THE PAIN IS ALL IN MY HEAD. LIKE I'M CRASY. BUT MY HOLE BODY IN THE JOINTS THOUBS LIKE A TOOTHACHE, THE PAIN IS SEVERE NO MEDICATION AT ALL THIS HAS BEEN GOING ON FROM JAN 2008 AFTER THE FLU PLEASE HELP IF ANY ONE CAN GUESS WHAT 'S WRONG  THE DOCTORS DON'T

Avatar universal
by Trace420, Mar 27, 2009
Thanks, guys! Your support means the world!

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