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Cycle 3 Sent me packing to the ER

Mar 31, 2009 - 25 comments

More bad belly pain again.  I even had to call an ambulance.  I am 48 years old and have never had to go in an ambulance.  Not much can be resolved.  The doc feels the chemo agents are causing gall bladder spasms Marie

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408448 tn?1286883821
by marie3B, Mar 31, 2009
I have been home 3 hours and no new pains.  I received the best possible care in the ER today.  I cannot praise them enough.  I wish my nurse could live here with me.  I was so scared and hurting.  Marie

Avatar universal
by shewrites, Apr 01, 2009

I'm so sorry you're going through this.  

They say the way to deal with pain is to get ahead of it.  Do you know when it's coming?  How long after your chemo?  Can't  the doctor give you something to keep it at bay?  And something stronger for once you know you're in trouble?  The pain might be less, and you'd be less scared, if you had a plan for dealing with it.  

Hope you recover from this latest attack -- and I hope that the doctor can figure out a strategy to help, too.  


Avatar universal
by abrite, Apr 01, 2009
Oh Marie, my heart goes out to you. Can the doctor give you something for your gallbladder spasms?  Bentyl is an antispasmodic that is used for irritable bowel syndrome and sometimes gallbladder spasms. I wonder if it would be appropriate for you. You must be completely exhausted. I will pray for a good night sleep!

378425 tn?1305628294
by dawnlyn, Apr 01, 2009
Marie,

I wanted you to know that I am thinking of you.  I hope you and your doctor can figure something out.   I will keep you in my prayers.  Love Dawnlyn

Avatar universal
by cirella, Apr 01, 2009
Oh Marie, I'm sorry you are going through this!  

Hugs!

483733 tn?1326798446
by TrudieC, Apr 01, 2009
Sweetie, so sorry you are having such a tough time with this.  I hope that some of the suggestions above might help.  Much love, Trudie

408448 tn?1286883821
by marie3B, Apr 01, 2009
I had 3 more attacks in the night and 1 this morning.  The breathing that the ER nurse showed me got me through with NO YELLING!!! Yay.  I am going to do what shewrites suggests and take a stronger pain med before bed on the Monday of my next cycle.  I am also gong to ask about the Bentyl that abrite mentioned.  I can feel the spasms so strong then the pain goes to my stomach.  My pump is unhooked now and I have an 11 day break from the chemo.  Did I already report that the sono they did in ER measured my tumor near the liver slightly smaller than the last 2 measurements?  It was 3.5 x 2.5 cm.  They said yesterday it was 2.9x 2.5.  I am trying not to get my hopes up too high, but it was encouraging.  The ER staff,  doc, nurses, sono techs, everyone were so good to me. I could not have been trreated any better.  Thanks everyone.  Love, Marie

349465 tn?1289081764
by Teresa222, Apr 01, 2009
Marie,
I just hate this for you. You must really be hurting to head for the ER. Most ER's are a pain to navigate and get some help. About six months ago, I spent THREE nights on a narrow cot in the ER because they could not find a bed for me. I can truly say it was the worst experience I've ever had at a hospital. The ER nurses did not want to be bothered with me once they got the initial care completed.
I agree with the others, you should take pain pills around the clock now. Perhaps even increase them. I've been having a few spasms lately and I doubled my pain meds to take care of the pain. It worked.  I am now taking them around the clock. Are you involved in a "Pain Management" treatment program? It's much better to have them take care of your pain. They can put you on stronger drugs than most ONC's will attempt to prescribe.
Take care. My prayers are with you!
Teresa222

765463 tn?1261799696
by MercyJ, Apr 01, 2009
Marie,
I pray for you that our Lord Jesus Christ will send you waring and ministering angels to protect you and bring you peace during these trying times. Also that he will speak wisdom to you as to what to do to get relief. I also believe the way the other gals do. I once had a nurse tell me to stay ahead of the pain with my pain pills. I had alot of pain because of constipation. it was a catch 22. the more pain pill I took the more laxitives I had to take, but I finally found a balance. Jesus is so sweet I can always feel his hand on my chin saying keep your chin up and keep the faith. I love all you gals. May his comfort be yours.
Karen

415684 tn?1257329318
by JC145, Apr 01, 2009
Marie ..

Not much more I can add .. just wanted you to know that I understand your pain and wish I could help you with it.  You live alone as well, don't you .. that has to make it really scary.  Would ice packs / heating pad .. help or cause more pain.  I love my heating pad when I am in pain. (It's actually one of those things you microwave to get hot.)

God bless you girl ... hope you find a solution.

Judy

725998 tn?1258048708
by gls2824, Apr 02, 2009
Marie -- I'm so sorry.  As if you didn't have enough to deal with!

Sending healing thoughts your way!

Gerri

408448 tn?1286883821
by marie3B, Apr 02, 2009
Thank you everyone for the prayers and helpful suggestions.  I took 2 Darvocets before bed and used a heating pad on low.  I had a few small attacks, but they were not as painful and I did not have to scream and wake up Robin.  I have not had a pain since 7:30 this morning so I hope I will be in the clear til next treatment.  Before next treatment I will be armed with stronger pain meds and the anti-spasmodic drugs.  I don't want to discontinue the chemo.  I don't like to have to stay on the pain pills.  The pain is totally gone once the attacks are over, but I have no choice but to take the pills if they help me through the pain when it hits.  You are all such a big help to me.  This new problem has turned me into a real crybaby.  Love, Marie

Avatar universal
by cyndilouwho123, Apr 02, 2009
Marie Iam new at this I never wanted to talk about my cancer but we were told told today that my girl friend has ovarien cancer and Iam researching it. My heart really goes out to you and what you have gone though. The doctor told her today her ca125 was 4000 and it should only be 35. she goes tomorrow for a ct and scheduled her surgery for Monday 4/6 iam really worried because everything I have read her count is way out there. Can you give me some advise or insight on this please. Thanks and all my prayers.
Cyndi

408448 tn?1286883821
by marie3B, Apr 02, 2009
cyndylouwho123,  I sent you a private message about your friend and ovca.  I thank you for taking the time to come here for her.  You are a good friend.  I also thank you for your prayers.  Keep us posted on what is going on and we will help you and she all the way.  marie

523728 tn?1264621521
by bohan54, Apr 02, 2009
Dear Marie,

There's got to be a way to minimize your pain and allow you to continue your treatment.  I'm glad to see you felt you got good ER treatment but hope you don't end up there again any time soon.  

All my best wishes and love to you,
Sharon

329994 tn?1301663248
by lvfrogs, Apr 03, 2009
Marie,
I can't offer any solutions, but wanted you to know that I will continue to keep you in my prayers and I hope that some of the suggestions the other women had will help you. Glad that your ER was a positive experience for you.  Big hugs for you!
Colleen

356929 tn?1246389756
by Sandymac, Apr 05, 2009
Marie,
    I, somehow, didn't see this journal when it began, but I wanted to let you know that I've been thinking of you. .. I just hate that you're having to go through this.. So sorry..

Love,
Sandy

408448 tn?1286883821
by marie3B, Apr 07, 2009
The bad pains stopped a few days ago.  I am okay for now.  Enjoying the break until my next chemo.  It will be scary to let them give it to me knowing the pains it will trigger in my gallbladder.  I will dope up if I have to.  Marie

408448 tn?1286883821
by marie3B, Apr 14, 2009
Cycle #4 is going in me now.  This time last cycle I was in ER.  Yesterday I saw a NP in place of my onc.  I showed her my ER records and told her I wanted to do what the ER doc suggested for me.  She prescribed levsin, the ant-spasmodic, at my request, and vicodin.  Did not even need the pain pills.  I had the spasms but they were greatly lessened.  I may be able to keep on til the last treatment.  I had my doubts after  #3.  Marie

483733 tn?1326798446
by TrudieC, Apr 14, 2009
So glad your new plan is working.  Hope it keeps up!  Love, Trudie

Avatar universal
by cirella, Apr 14, 2009
Marie!  I'm happy to hear this.  Good for you for taking charge and happy to read that your NP listened!  Hope you feel better each day.

Love

356929 tn?1246389756
by Sandymac, Apr 14, 2009
Marie.. that sounds like a good plan to me !! Thinking of you a lot ! Tonight our "show " is on right?? Hope each day is more pain free than the last !

Love,
Sandy

415684 tn?1257329318
by JC145, Apr 14, 2009
Yeah, Marie .. so glad this go round is better.  Isn't it amazing how we have to be the ones to push for help.  Good thing you had your ER records and got the right meds to help this time.  Congrats.  Judy

408448 tn?1286883821
by marie3B, Apr 14, 2009
The ER records did not specify which anti-spasmodic to get.  I just used the internet to find the one with least drug interactions and side effects.  So far no side effect, just relief.  The NP's name is Jeanie, so I have the Elton John song, Little Jeanie stuck in my head.  Love to all, Marie

146692 tn?1314331773
by butterflytc, Apr 21, 2009
Dear Marie,
    Sorry about all you had to go thru while I was away. I am trying to catch up on everyone, but finding myself stalled with the news of Jan. I cannot help remembering  our last day in Springfield, and Jan reading off the list of angels. I left there hoping our circle would not be on that white ribbon next year.
   I am glad the pain is more under control for you, but saddened for your battle with it all. I am praying your regiment is working and killing off the ogre inside of you. Sometimes I think we just start too accept the pain, and somehow are better able to handle what we become used too. I no longer take the extended release morphine, as I hate how it makes me feel. I take the immediate release only when I cannot handle it at all. I hope your meds keep working. You are in my thoughts
love
butterflyTc

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