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Timeline: March 2012 - July 2013

Jul 28, 2013 - 1 comments

chiari malformation



March 2012:
Woke up one morning with double vision
*have had 20/20 for my entire life
Severe earache/infection
Mild rash on scalp noticed by fiance
Numbness in arm/hand

April 2012:
Brain MRI with contrast (clear)
Blood test
^no diabetes or high blood pressure
Visit to eye specialist (diagnosed with right 6th nerve palsy)
Numbness increases in arm and hand
Ear pain continues even after 2 bottles of medication (Amoxicillin)

July 2012:
Loss of balance starts
Double vision continues
Hard to focus and concentrate
Mild memory loss
Back and neck pain/lots of pressure
Ear pain continues (inner and back of ear/right ear only)

**** Fall/Winter 2012:
Double vision goes away overnight
Regain balance
Numbness continues
Made the mistake of cancelling appt. with the neurologist because the symptoms went away

March (again) 2013 - first day of Spring:
Mows for the first time, 5 min. in I start stumbling
Pain in the back of head
Severe headaches start

May 2013:
Double vision returns
Balance worsens by the day
Headaches are 24/7 now
Family doctor keeps telling us it's allergies
^prescribed vertigo pills, Amoxicillin, Prednisone and an Anti-inflammatory
^Medication do not help, at all
"Crawling" feeling on scalp
^flea season so I blame it on bugs (no bugs discovered)

June 2013:
Schedule appt. with neurologist
No longer able to go into work (liability due to lack of balance)
Double vision continues
Constantly complaining of headaches and pressure in the back of the skull
Mid-back pain (can't bend over)
Visit ENT: finds nothing, 100% on hearing test, no redness or inflammation in inner ear
Ear pain continues (right side only)
Hiccuping on a daily basis (never before?)

July 2013:
Neurologist looks at MRI from last year for 15 seconds, says he doesn't see anything wrong.
Orders another brain MRI w/ contrast
I beg for C-spine and T-spine MRI, he agrees
Tells us we need a psych test due to memory loss test (stress and lack of sleep)
Tells us we need to see a physical therapist for balance issues (i don't follow through since we don't know what's wrong yet)
Receive 3 MRIs in two days: Brain w/ contrast, C Spine, T Spine

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Avatar universal
by JewelsB, Jan 02, 2014

It seems like it's been a while since you've updated this journal entry.  Just wanted to ask if you have ever been tested for Lyme disease?  I was noticing all of these same symptoms.  Went through HELL trying to figure it all out until I realized it could be Lyme disease and demanded the blood test.  I was right.  Then I had a brain MRI and they found I also have chiari malformation.  Which brings me here.  Anyway, I thought since you mentioned all of the other testing and no proper diagnosis, maybe you could have Lyme disease too.  Alot of people are misdiagnosed and some never find out for years.  Just wanted to reach out as it is horrible and maybe it could help.  

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