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May 07, 2009 - 1 comments

this is my very fist journal entry here. I don't know why I am having a bummed day. I have 4 boys 17 (Nathaniel) 10 (Dillan who will be 11 on the 31)   7 (Gary) and some know 5 (Christopher) I have a disease called Neurofibromatosis and it is tumors that grow on your nerves and are painful well so far the2 oldest so no signs of it Gary has some signs and I was looking Christopher over and her has it I know he does. he has me and the Cafe au Lait marks to meet the standards. I can't believe he as it with everything he has gone through heart surgery illness and so on. Today in preschool was MOTHERS' DAY PARTY the 5 kids in preschool worked hard on their presents. Christopher painted me a box that I can put into it anything I wanted and made sure to paint it my favorite colors. I am not sure if I am bummed 'cause this disease can be nasty(can turn malignant) and everything he has gone through and that we almost lost him or what is it that is bothering I wanted to cry when he gave it to me. those things are so special because they come from the little ones heart.
Thanks for listening

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390388 tn?1279636213
by Me967, May 07, 2009
Michelle you REALLY have had alot on your shoulders lately.  It's totally understandable that you would be bummed out some days.  You have been threw so much with your own pains, and only worry about your children.  You are a wonderful person.  

We have all been there at one time or another.  You really have some special children and I think of christopher often.  I hope he is feeling better now or closer to an answer.  I know you have been threw the mill trying to get him a pacemaker and getting doctors to listen to you.  Sorry I haven't written in soo long.  If you ever want to chat, I'm here.   Please take care and know you have a friend with an open ear.  

((((Sending Happy HUGS your way to cheer you up))))

Your friend always;  Amy.

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