Apr 15, 2008
My 11-year old son does poorly in school and I'd love to know why.
During my pregnancy we were told that he had Cystic Fibrosis and Down Syndrome. Even after testing by specialists were told told to terminate immediately. Further testing showed no symptoms. Shortly after birth he was diagnosed with sepsis and spent two weeks in ICU receiving high doses of numerous antibiotics. He later had ear infections that were not clearned since he was immune to antibiotics after his hospital stay. At one year old he had tubes in his ears that did not help.
At four years old he was placed in preschool and immediately placed back into the 3-year old class. We were able to place him in public Pre-K based on speech and language issues (which was a stretch). He did poorly in Kindergarten and repeated the grade. He is now in fourth grade and is still doing poorly, even with his work below grade level. During these years he has had IEP's and special help.
He has been IQ tested at least three times by the public school system and an independant office. These scores were from 68-72, on medication and not. Teachers referred him out for Asperger testing and he was not diagnosed. He's also been tested by a speech and hearing clinc at the local university. Teachers each year tend to have the mentality 'He's just not had a good, the right, teacher yet until me...' but soon realize he is more than they can handle. He is in no way a behavior problem. We have been told a little of everything.... developmentally delayed, ADD, Low IQ, you name it.
He suffers from anxiety, has some odd mannerisms (ok, a lot), knowledgeable about areas he has an interest in (science), depression, etc. I think he is in the autism spectrum, PDD-NOS. School is trying to help but nothing seems to be working. IEP's are hard since his academic abilities versus working level are not at such a degree for a learning disability. Shouldn't a low IQ be across the board- in all areas, versus doing well in areas he has an interest in? I was recently told be a health professional that he needs to come home and play outside and work with his hands, not doing hours of homeowork. She said he'd have a job using basic skills and will need assistance in daily living skills. I am not settling for that response. What should I do?