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Recent Update 09/30/13

Sep 30, 2013 - 5 comments

I have been through MANY a pain management team and each has their own education about treatment. Most of them prescribe drugs which do not help me due to pancreatic problems developed due to the high dosage of drugs.
I have had steroid injections, nerve blocks and so much more but a handful of doctors with knowledge of my pain issues diagnosed me with Piriformis syndrome. I have done the physical therapy thing many times with no help.
Over years of diagnosis and treatments, finally I got an answer from more than one doctor. Because of the surgeries I have had over the years, I have developed scar tissue which presses on the nerves surrounding the pain areas I have described (hip, back and piriformis muscle). There is nothing that can be done for this and no more surgeries are recommended for me.
After researching my areas of pain and MANY a doctor, I found a sports medicine doctor who gives me injections to my hip and piriformis muscle area which help. I have had Botox injections to these areas and the injections help. The injections help[ stop the muscle from spasms. (pressure on the nerves again from the scar tissue create spasms) (muscle relaxers sometimes help)
I have had to do much research to understand what is happening and why.
The more you learn, the more you can tell your doctor to look into (if they have the educated background).

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3112530 tn?1434035633
by TheMadMan, Oct 05, 2013
Followup up from Chief Of Staff 10-4-2013.
Received a call from the chief of staff concerning the shortage of doctors and appointment times. He told me that they have positions open but no doctors to fill the positions at the anesthesia pain management clinic here. We addressed other areas of concern and some questions he could not comment on because he did not have the answer.
He did suggest 'fee basis' for my treatment to a neurosurgeon clinic but the paperwork for that is intense and he does not know the procedure but he will submit paperwork anyway.  Since this is considered 'elective' surgery, approval is granted on a case by case basis. He was trying to be as helpful as possible but understands my plight.
I will see what channels I can push at my end to accomplish the task of getting treatment. Followup as soon as I get answers.

3112530 tn?1434035633
by TheMadMan, Feb 27, 2014
02-26-14 Medical update
I am currently being followed at the West Los Angeles Veterans hospital. I was recommended there by the Chief of Staff and I found out that the doctors in the pain management clinic have actually received a better education about my condition than I thought. Many years ago, I had been throughout the VA health care system but none of the doctors had enough information about my degenerative joint/disk disease to treat, so drugs was the favorite of choices. Finally, they have educated the staff there to understand what the latest medical procedures are and what can be done.
I have had a history of steroid injections from many doctors but NOW I find out that can actually damage my bones and apparently have already.
I am getting a series of RFA injections to deaden the nerves that are causing so much pain. The first injection to my trocanter (hip region) was successful. I was awake for the procedure and I learned a thing or two from the treating physician. (In the past, I have always been put out for this procedure but now I find out that was only to pad the bill).
My next procedure will be to the SI joint and surrounding area. I have had this procedure done in the past with success but of course the muscle grows back nut it seem no other physician that I had been to, wanted to do this procedure. Of course them would mention it but never follow up on it. When I questioned these doctors about why they are not doing the RFA procedure, their answer was....let's try this shot and see what happens.
Now I feel comfortable with the attending doctor and staff and I can actually talk to the doctor about what he is doing and not feel like he is talking down to me. So far, so good but will see more results on March 7th, 2014. Stay tuned????

139792 tn?1498589250
by Dalubaba, May 28, 2015
Why did you stop journal- writing. It would have given lot of information to readers. Usually you do not fine a journal described so beautifully.. Dalubaba.

139792 tn?1498589250
by Dalubaba, May 28, 2015
Why did you stop journal- writing. It would have given lot of information to readers. Usually you do not fine a journal described so beautifully.. Dalubaba.

3112530 tn?1434035633
by TheMadMan, May 28, 2015
I am sorry but I just haven't had the time recently. So many thing to still take care of and working on getting a new doctor. I am expected to see the Neurologist soon and will report what he/she has to say.
Thanks for the thoughts.

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