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Oct 24, 2013 - 14 comments

Before my mom goes to see the doctor, she has blood work drawn.  Part of the test, they can tell the presence of Cancer with a test called CA125.  Her last test produced the result of 850, increasing 100 points from the last one.  A very high CA 125 indicates the Cancer has spread.  And also gives  you a pretty good idea that the chemo is not working.  Usually a PET scan is done as well.  
This morning they decided to admit her because the results also indicated she was anemic.  Also she was having some mild pain in her stomach and they wanted to do a scan check for any blood clots, etc.  Thankfully, there were none, but she did have some fluid in her lungs which was why she is having the pain.  So they will drain that fluid as well.
She also had a high pulse this morning, so they put her on heart monitor, but that seems to be normal.  
As far as treatment is concerned the next step the dr is suggesting is a Hormone Therapy.  It will consist of 20 pills a day.  She hasn't decided yet what she is doing.  She was really hoping this chemo would work.  We all were.  
The dr said the hormone pills were successful for some but nothing is guaranteed.  
So that is the latest.  She should be released tomorrow hopefully.  Not sure what is going to happen next.  My dad was crying and I feel bad because I just don't know what to say or do.
Thank you for listening.  

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by Sheaby, Oct 24, 2013
I'm so sorry that you and your family is having to go through this.  Cancer is a nasty nasty thing, and it always seems to attack some of the best people.  Don't feel bad that you don't know what to say or do, sometimes just being there is enough.  Knowing that you have each other to lean on, and knowing that you're all there to support your mom.  I really do hope that there is something that can help alleviate her pain and help her enjoy every day as much as possible.  Keeping you and your family in my thoughts in prayers.  Xoxo

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by plumber43, Oct 24, 2013
I'm so so sorry, I wish they had better news for your family! Your in my thoughts and prayers and I'm sending you hugs.
All my love,

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by Des_a_rae, Oct 24, 2013
My goodness, bless her heart, she just can't catch a break. :(   I agree about cancer being nasty.  It runs in my family and I have lost 3 great uncles to it, then my grandmother has been diagnosed with breast cancer twice but thank god she's still here.   I also agree about not feeling bad.  Sometimes we are at a loss for words.  You all have been through soo much and I don't know if there would be anything else left to say.  Sometimes all we can do is cry and sometimes that's enough.  I always have your mom, you and your whole family in my thoughts and prayers.   Sending love and hugs!  

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by mandaszoo, Oct 24, 2013
There is no easy solution here and I do not have any answers or anything that will give you hope or peace of mind. Just know that you and your family are in my thoughts and prayers .  Amanda x

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by Moma_Cher, Oct 24, 2013
Oh Joanne- I was hoping for better news. Just know you will have good days and bad. I'm glad there is another treatment available for her that has been successful for some. Maybe this hormone therapy will be right for her. Poor dad... Just so unfair.
Hang in there and take care of yourself please! You need to be kind to yourself as well.

You're all in my prayers xoxo

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by mhv, Oct 24, 2013
I am sorry.  I know how you feel with your dad, because that's how I feel with you.  I can tell you I am here to listen if you need me.  And you and your family are in my thoughts and prayers.  

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by Grace358, Oct 25, 2013
Gosh that is really tough. I hope things can improve somehow for her. It must be very sad for your dad too and how to support both of them when they are going through so much anguish and pain. Sending your mum, dad and your family lots of love and support

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by hopeitworks, Oct 25, 2013
Im sorry to read this. I am here for you anytime. We all are. Praying for your family xoxo

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by journey2motherhood, Oct 25, 2013
Thank you ladies.  I don't know what I would do without you all.   The dr called in her prescription for 600 pills for the month.  Unbelievable right?  He also said this is really it.  He had one more chemo that maybe he could try but he wants to try and see how the pills work.  He said really it was just a matter of time  and he couldn't give a time frame.  I'm going out of my mind.  
I thought about putting a plea on facebook to beg for an oncologist who thinks they can help to be her doctor.  Does that sound stupid?  I don't have a facebook account but I thought if I can post it on everyone I know page it would be ok.  

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by Shannon79, Oct 25, 2013
I'm so sorry. I wish you'd received better news. I have no words to share unfortunately. Just know that I'll be thinking and praying for you and your family.

As far as the Facebook thing goes, I don't think it's stupid at all. And may be worth a shot. You never know what kind of response you'll get. I don't have a Facebook account either, but I say do it

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by Shannon79, Oct 25, 2013
I'm sure plenty of these ladies here would gladly post it on their Facebook walls

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by Des_a_rae, Oct 25, 2013
I was about to say..You make the facebook account, make your post and I'll be glad to share!!  I'll even get my friends and family to share.   It's worth a try!!!   I would be just like yourself.  It's out of desperation and when it comes down to something like this.. we ARE desperate and it's nothing to be ashamed of.  If it were my mother, I'd be doing the same, and plus probably emailing oncologists everywhere, asking if they think they were able to do more.  Nothing wrong with wanting and hoping for MORE.   I'm so sorry you're having to go through this Journey..I know it's awful for you mom, but you're trying so hard yourself to get through this.  Sending you both hugs!!  Let me know if you get that facebook thing going!!!  

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by retta483, Oct 25, 2013
Im so sorry you are going threw this :( sending you and your mom lots of prayers ( hugs ) xoxox

1386655 tn?1452097056
by journey2motherhood, Oct 28, 2013
Thank you so much ladies, you are all such great friends.  I really appreciate all your prayers and please keep them coming.  

I spent time yesterday with my parents and I am happy to tell you that she is not giving up!  She is interested in looking into other Cancer centers and what different options are out there.  My sister and I were very happy to hear this.  She was released on Saturday and although she had more pain from draining the fluid, yesterday she was doing much better.  
This morning she started her hormone therapy.  Its 10 pills in the morning, 10 at night.  The oncologist's assistant called this morning and said we are hoping the hormone therapy will keep the cancer under control while her dr researches other options for her.   So this is great hopeful news and I feel a little better knowing this.  
I will keep you all updated on her progress.
I can't thank you all enough for your continued prayers.  It means the world to me.  xoxo

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