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Symptoms for a long time

Nov 27, 2013 - 28 comments

I have tested for every STD including HIV and HTLV, this was negative after 17months. My current struggles are white coated tongue with teethmarks at the border. Severe headache which is much better now, but have a moving crawling sensation 24/7 in scalp/brain. Balanitis and peeling hand and soles. My next stop will be at a dermatoligist on 2 dec, to se if I have actually a yeast infection or staph. So everyone who reads this, always use condom, if you don´t won´t to end up like me, undiagnosed and struggling with mental problems now. I have always been a very stress hard person, but this is getting the better of me......

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5331153 tn?1372071575
by klbuurman, Nov 29, 2013
Please update after the dermatologist.  Im interested to hear. Thx

Avatar universal
by ashler1977, Nov 30, 2013
Thanks for your update.

Condoms should be used both for oral and vaginal/anal, specially when you don't know the person's health status. I am going through a similar problem for 17 months in a row now due the lack of use of condoms in oral sex.

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by ashler1977, Nov 30, 2013
Besides the white coated tongue do you feel soreness, dryness or thick or foamy saliva in your tongue?

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by learning550, Nov 30, 2013
well in my case, i had a protected sex, no Oral sex at all but still have the similar problem with the tongue. My risk involves kissing and protected sex.

Avatar universal
by pali78, Nov 30, 2013
Hi, Yes I will post an update after the dermatologist. He thinks we should make an penile biopsy. I probably will need to do this, because I have to find out what this is, it is not responding to hydrocortisone or canesten (not a pleasant procedure). Ofcourse we have to use condoms, but I was (classical excuse) very very drunk. And this chick promised me, that she was clean, how incredibly stupid I was to believe her, and she was very hot, and I was weak. My tongue is dry and a bit of burning sensation at times. I will probably ask the dermatologist to take tests her also. I hope to get a diagnoses soon, Reiters syndrom, or RA. I Also have a red irritated scalp in places. like red dots and red plagues. I am also currently takin Terbinafin for athletes foot as well. Have no history prior to this exposure of ezceme or psoriasis. But I will update when hopefully I have some constructive answers.

Avatar universal
by Teak, Nov 30, 2013
You two do not have HIV concerns.

Avatar universal
by learning550, Nov 30, 2013
Also ask you dr. to test for "bacilli gram negative anaerobic". I think this could be the issue with the tongue.

Why does your dr. wants to do penile biopsy? I thought biopsy's are the last thing dr. wants to do.  

How long after the exposure did your symptoms started to show up? Do you have any contact with the girl to take her for tests?

Avatar universal
by pali78, Nov 30, 2013
Hi Teak, thank you for that comment! I am past my HIV concern and do believe my test results. And also If I think rationally, that my symptoms are not the typical major ARS symptoms which if I stand correct are Fever,swollen lymphnodes,very sore troath. I actually had none of these symptoms, but swollen white coated tongue with teethmarks at border,balanitis, and rash palms and soles. But will update this  journal if that´s ok? I will hopefully learn my diagnoses in the near future, and maybe this can help other as well my self with similar problems.

Avatar universal
by pali78, Nov 30, 2013
@ learning550:
I will have to do an biopsy because my balanitis does not respond to canesten or hydrocortinsone. There are lot´s of other options like Lichen Planus, reiters syndrom,scabies just to name a few.
I Found this girl on facebook after our one night stand. I did write her many messages to tell her about what happened to me, as I expected she does not answer back. I even did take this one step further, and looked for her at the municipality database only to find out that she does not use her maiden name on facebook, so that´s an dead end for me unfortunately.
And this also fueled my already bad paranoia. The only way forward is to test and than accept the test results. I did have an exposure 2 rounds of unprotecded sex with a stranger, not particulary intelligent, but you did not even have an exposure, so you should be able to move on without second thoughts.

Avatar universal
by learning550, Dec 01, 2013
I wonder why she is not responding to your message in FB. You are right there is no point of beating a dead horse. Nothing gonna change your test result. Atleast you don't have HIV. Hopefully it's something that you body will pass in few years. Try keeping your immune healthy with good diet, exercise and vitamins. Ya my exposure was light and I even took the girl for HIV testing after 10 weeks of exposure, she came negative. But I am trying to find out what exactly is causing my tongue white and now and then irritated taste bud.

Are you talking about unprotected sex with different stranger than the girl you met in club?  Ya man that's the problem with hot girls, we feel like we hit the jackpot and wanna leave no stone unturned :) . I don't blame you on that. Keep in touch man. Keep us in Loop.

Avatar universal
by Blessedtb23, Dec 02, 2013
Well I have the same issue after a sexual enconter been going on for twelve months.. Also have problems with scalp dryness its very flaky n itchy.. Thts y I been thinking ita related to a fungal problem I have nerve pains,also I seen a coupke ppl say they dealing with pain like tht. U kno we dnt kno wat this is but I soon hope they find a cure for this I am sressed out daily.. Lord let us soon get over this please I wanna be normal,again we all do

Avatar universal
by pali78, Dec 03, 2013
Ok, update from my visit to the dermatologist. I am diagnosed with seborrheic dermatitis on scalp/face and glans. And dyshidrotic dermatitis/stress ezceme on palms and soles. Got prescription medicine called Nystatin for facial dryness and scalp. And got pevisone creme to put on severe red penis for 3 days. Well I was just getting over my hiv fear and when you read the internet, just look what it says about this condition:
Seborrheic dermatitis is one of the most common skin manifestations of HIV infection. It occurs in 3-5% of the general HIV-uninfected population but in up to 85-95% of patients with advanced HIV infection.
Well looks like I am in the 3-5% population. The dermatologist said if I had an negative hiv test, than this is just a genetic disorder. He also told me that likely this girl had a yeast infection, based on my symptoms after my unprotecded sexual exposure. I have only tested one time for HIV and syphilis and 2 times for chlamydia and gonorea, had this done 17 months after exposure.
my test was HIV 1 & 2 / P24 Ag screen Not detected
Combination testing of HIV-1 and -2 antibodies
and HIV p24 antigen, allows for earlier
detection of HIV infection.
This should be a conclusiv test. But I now probably will take a second test for final piece of mind.
The tongue issue I will also run test for this at a later time, just try to clear 1 condition at the time and then try to not stress to much more, obviously severe stress has damaging effect on my body and I need to adress this problem quickly

Avatar universal
by learning550, Dec 03, 2013
if it makes you feel better  i have been diagnosed with seborrheic dermatitis on scalp/face. I have this ever before my recent exposure. So i don't think HIV is the concern for it. I still have it, i use OTC shampoo for it, which controls. I understand why you would connect HIV with this though. I don't think this is the concern though. and think HIV cannot be advance so quick. Your dermatitis would be out of control.

Avatar universal
by pali78, Dec 04, 2013
Yes I agree, the dermatologist said pretty much the same. He said he had HIV clients every day, and their rash was much more prominent than mine. He told me not to worry.

Avatar universal
by pali78, Dec 04, 2013
Yes, keratolysis Exfoliativa was diagnosed by a dermatologist by picture from a doctor at Doctor spring. This was a "hands on visit" If it that´s you are referring to. Or maybe you are referring to anxiety.

Avatar universal
by Teak, Dec 04, 2013
You  don't have HIV.

Avatar universal
by pali78, Dec 04, 2013
Yes, I do agree. It´s just taking time to sink in. I also believe I need therapy to deal with my anxiety. Thanx for answering anyway.

Avatar universal
by ashler1977, Dec 04, 2013
I would suggest to visit an inmunologist, just to check that everything is alright on that side. I don't know where you're living, but here in Europe all my tests (including CD4 and CD8 counts, in case you're still concerned about HIV) were payed by my  health insurance.

Good luck and do keep us posted.

Avatar universal
by Teak, Dec 04, 2013
Both of you need to seek professional mental help to deal with your issues. Neither of you have an HIV concern.

Avatar universal
by ashler1977, Dec 04, 2013
I am not in the HIV prevention forum.

We're talking about real health concerns, confirmed by dermatologists, infectologists, etc. You don't need to come here to tell us that we need to seek "mental health".

@pali78, unjoin the HIV prevention forum so that you avoid to read these unuseful comments.

Avatar universal
by Teak, Dec 04, 2013
Pali is in the HIV prevention forum and you have gone on and on about HIV for 2 years. Try using the PM function to socialize.

Avatar universal
by RainLover71, Dec 04, 2013
When are the two of you going to accept that you don't have HIV & googling HIV symptoms is not helping the situation.I suggest you both accept your negative status & get on with your life.You're both wasting so much time worrying for nothing.

Avatar universal
by pali78, Dec 04, 2013
@it is not only googling symptoms, it´s indeed specialist on this forum who say say seborrheic dermatitis is very very commonly  linked to HIV :
http://www.medhelp.org/posts/Dermatology/Why-is-seborrheic-dermatitis-associated-with-HIV/show/1918043
Yes I will unjoin this community, because I have one test that´s is negativ, and that´s is more important than any symptom.

707563 tn?1553635552
by Emily_MHManager, Dec 04, 2013
Hi everyone -

I have removed this journal from the sidebar feeds, so it will not show in HIV.

One of you may also want to create a user group, and you can talk there with more privacy, if you wish. If you need help setting one up, let me know.

Emily



Avatar universal
by pali78, Dec 04, 2013
Hi Emily, yes that would be fine. Could you set one up for me?
thanx

Avatar universal
by RainLover71, Dec 04, 2013
Go to HIV LETS TALK that's my group & I will be happy to answer all your questions with my expertise in HIV matters.

Avatar universal
by Melsteph, Oct 31, 2015
Hi everyone
I know these past posts were from 2013 but I need some help/feedback. I stepped on a needle at the beach while being very intoxicated and I pulled it out of my foot but didn't think anything of it. I'm not sure what kind of needle it was. 2 weeks later my symptoms began. I had watery diarrhea for 3 weeks for them to finally figure out it was a parasite called cryptosporidium. Then A few additional symptoms began too. My body gets really hot but when I take my temperature I have like a 98-99 degree temp Farenheit. I have a sore throat just about everyday, I have lost 31 pounds in 8 weeks and I have a rash that appears and goes away and then comes back. I also have swollen lymphnodes in my neck that come and go throughout the day. I am also fatigue. I have a difficult time sleeping although I do take a sleeping pill and it has gotten a little better. I have gone to so many doctors to try and figure out what is going on. This happened in April 2015 and I have been to 4 infectious disease doctors, regular doctors, a psychiatrist who has me on depression/anxiety meds. They have tested me for TB, HIV, hepatitis b and c, Epstein Barr virus, Cmv, lupus, toxoplasmosis and all STD's too just in case ( I was sexually active like 2 weeks after the needle exposure but my symptoms started before so I don't think it's that) I have even done a colonoscopy and endoscopy which came back ok. I'm in the process of my last couple doctors which are a neurologist this Monday and then waiting on results from rheumatologist and another infectious disease doctor that is doing HIV ( the most advanced one that actually looks for the hiv antibodies) Lyme disease and some other stuff. Up to 5 months after exposure everything has come back negative except for the Epstein Barr virus which came up positive in the acute phase in July. I re tested in September for a panel of everything CBC and HIV, hepatitis and Epstein Barr and in September it shows I have past exposure to Epstein Barr but not acute. I still feel every symptom though and that's what makes me nervous. Could it be I'm still experiencing symptoms of Epstein Barr even though it shows I only have past exposure? Someone please help me!

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