Please support Cystic Fibrosis Awareness & Research
Please support Cystic Fibrosis Awareness & Research
Comments (3)
486867 tn?1307139011
bree08, Nov 22, 2009
You are in my thoughts and prayers often! How is everything?
566175 tn?1278430472
cure65roses, Nov 25, 2009
We are still in the hospital.  We finally got Hailey's stomach problems under control, finally got her well enough to go home, she was discharged .....and Hannah got admitted the same day with a lung infection.  It's a respiratory virus and Hannah will be in the hospital 14 days for a round of IV antibiotics.  We are expecting Hailey to come down with it also and be here through December. We can't catch a break.  The CF clinic tells me the girls will be ok and once we get over this hump but will have occasional flare ups.  It's a lot of work to take care of these precious little girls... multiple daily breathing treatments and digestive enzymes and medications every day for the rest of their life plus frequent clinic visits and hospitilizations...  Twins is hard by itself but once we got the diagnosis of CF our world just got devastatingly more busy.  We work so hard to help keep their lungs clear and their nutrition up since they can't digest foods very well.  agghhh  But they are soooooooo worth it!
486867 tn?1307139011
bree08, Nov 25, 2009
Thank you for the update... You are in my prayers OFTEN!!! I hope they find a cure for CF!!! {{HUGS}} I am here for you!
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