Return to Profile page
Blank
All my dysautonomia buddies--you recognize these, right? Purple legs!!
All my dysautonomia buddies--you recognize these, right?  Purple legs!!
Comments (4)
612876 tn?1355514495
Heiferly, Mar 27, 2010
For anyone who doesn't have this disease symptom and is now thinking I'm a total freak of nature:  allow me to explain.  Due to severe pooling of blood in my legs/feet when I stand upright, my skin appears blotchy and discolored (often gray/purple in hue with some redness mixed in but will blanch to white when pressed--yes, that's my fingerprint on one of the legs in this picture).  Testing has revealed that even with the maximum dosage of vasoconstrictive medication being taken, I still have about 40% of my blood pooling when upright.  I swear my legs are not normally this hideous; please don't start sending condolence cards to my SO.  :-p
Avatar universal
globalhiking, May 25, 2010
Where did I see legs like that .... mmmmm .... Ah yes! my own :-)  
612876 tn?1355514495
Heiferly, May 25, 2010
On a positive note, if Barney retires, I have a new dayjob.  :-D  Too bad those syrup-y sweet preschool songs really grate on my nerves.  I'd much rather be a Wiggle.  But I think it'd be a hard sell, trying to replace the Wiggle who retired due to Orthostatic Intolerance with myself, a fellow "dysautonomian."
Avatar universal
bbxx, Feb 07, 2011
You know, I always wondered when they say if a white finger print is left after you press on your skin, thats not good. I use to think everyone had that. Now I understand what they are saying. Theres a name for that when someone is a live example, but I cant remember--anyway. Wow. You have such a great attitude!
Comment
Post Comment