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Cerebral Palsy Community

This forum is an un-mediated, patient-to-patient forum for questions and support regarding cerebral palsy issues such as: Books and Journals, Daily Living and Social issues, Diagnosis, Education and Schools, Equipment (orthotics, walkers, wheelchairs, cars, etc.), Family and Patient Support Groups, Financial Help and Support, Insurance Issues, Legal Rights and Issues, Research, Long-Term Care, Treatments (Biofeedback, Hyperbaric Oxygen Therapy, Conductive Education, Suit Therapy, Botox, Baclofen, PERC, etc.)

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Avatar_universal
I just started experiencing muscle spasms with my spastic muscles! I think that's what it is. It is a sudden stabbing pain and when it goes the muscle just let's go. It's my leg so I feel like I can't hold myself up. Been to a dr. Have m...
timidlady | Posted
Avatar_universal
My 4 year old daughter was diagnosed with congenital encephalopathy when she turned year old, My question is what causes this disorder. And is her developmental delays p[art of this disorder? She is four but developmentally she is two, t...
moona36 | Last answer
16730842_tn?1450919037
I am 32 and I live in Washington State. Does anyone know of anyone who is cerberal pausly specialist that I could email or is in the west cost that I could talk to? Papsmears are impossible for me and doctors don't want to deal with it,...
TrulyEnchanting | Posted
Avatar_universal
I live in NYC and wanted to find a new doctor that treats adults with cerebral palsy.
angelchc903 | Posted
Avatar_universal
I was born with mild CP. The spacicity was in my legs and with the help of braces and therapy, I was able to walk "normal". I am now 38. I have always had almost no muscle on the left side of my body. If I was very tired, sometimed I ...
mamiJ | Last answer
Avatar_universal
I am a male of 19 years of age. I must have injured my head at a very young age or it might have been right at birth which resulted in my right hand and leg getting effected. I have mild Cerebral palsy in both hand and leg of the right s...
Nicknamesmith | Posted
Avatar_universal
I have mild cp, mild sle (lupus) and severe bipolar disorder. My question is I was born with mild cp. As a kid, I fell down a lot, but didn't have leg stiffness until the mid 00's. When I was 7 years old, I had a lot of infectons, but di...
lori_theo | Posted
Avatar_universal
My son is 30 years old, he has Severe Cerebral Palsy and Severe Learning Disabilities. For several years he has suffered very painful leg spasms during his sleep, waking him throughout each night. I am trying to find advice on the most a...
Trem001 | Posted
Avatar_universal
My son suffers daily with pain in both legs, he is very stiff and lives with hot water bottles and has been taking baclofen but even though he takes one 3 times a day the pain never goes away. Any suggestions.. So hard to watch him. He...
Jknowles | Last answer
Avatar_universal
I'm 42 years old and have over the last few years noticed increased back/neck/hip pain. I was diagnosed as a child with a mild spastic CP affecting primarily my legs and I have a deformed left hip and shorter and thinner left leg. I had...
defdet | Last answer
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DAER DOC, I HAVE A SON , HIS DOB IS 25 TH MAY 09. HE WAS BORN WITH PREMATUIRITY ( 30 +). VENTILAOTR AND NICU SUPPORT GIVEN FOR INITIAL 10 DAY TO OVERCOME POST BIRTH RESPIRATORY DISTRESS. MRI OF BRAIN DONE AFTER FEW DAYS , AND IT IS FO...
shuvanjan | Last answer
Avatar_universal
WHEN AN ADULT WITH CP GETS A SPAINED ANKLE SIMPLY FROM DOING A TRANSFER FROM A WHEELCHAIR TO THE TOILET WHAT CAN BE DONE? I AM WORRIED ABOUT IT BECAUSE I NEED TO DO TRANSFERS AND MY LEFT LEG ISNT SO STRONG MY FOOT TURNS AND WHEN I STAND...
Disabled18 | Posted
Avatar_universal
My 15 month old daughter has hypotonia and developmental delay and has been receiving physiotherapy and hydrotherapy to help as couldn't sit until 12 months and just started crawling this week. She also has shown preference to her right ...
angelag880 | Last answer
788392_tn?1249876407
My son is 7-years-old and was diagnosed with mild cerebral palsy and epilepsy when he was 5. He was slightly developmentally delayed but nothing drastic until after he was potty trained and having frequent accidents. After many tests and...
atwitsend2 | Last answer
Avatar_universal
I have had concerns regarding my 7 month old daughter's developmental milestones for a few months now. I have been playing the waiting game to see if perhaps she is just slightly delayed and will eventually do all those things, but she h...
dka86 | Last answer
Avatar_universal
Hello, my daughter was born with cerebral palsy. She's now 12 and a little over a week ago she had surgery to help her walk better. She had 2 plates in her knee, lengthened tendons and stretched her calf muscle on her right leg. Sh...
Cknotts1981 | Posted
Avatar_universal
My son was denied Physiotherapy at age 7yrs because he could not walk. He was given a wheelchair and despite all I tried to do from reading books and internet, I have witnessed gross muscle wastage all over his body. He is now 17yrs old,...
Anastas_cia | Posted
Avatar_universal
Dear sir, My sister is detected with bulbar pulsy. In India we have not found any treatment for this disease. I shall be glad if anybody thhrows some light on the treatment of BULBAR PULSY.
prajeshdutta | Last answer
Avatar_universal
We were told that my son has motor dyspraxia and hypotonia but when I read about mild CP the symptoms sounded the same to me. He had a difficult birth. He was full term but my labor was induced with pitocin, a monitor showed that ...
lorjhill | Last answer
Avatar_universal
I have mild cp and at 20 ive looked into getting my tendons cut on the right side in my leg where my CP is. My question is how long does the surgery take? How much pain will their be after surgery?? And do you know how long PT will take...
esto | Posted
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