Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankNov 09, 2014
IcannotNov 06, 2014
maithNov 05, 2014
HeiferlyBlankOct 10, 2013
HeiferlyBlankOct 10, 2013
14
By the_mighty_gooch Blank
Does anyone know of a Dysautonomia Clinic in California? I heard there is one at UC Davis but couldn't find it online...
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HeiferlyBlankNov 09, 2014
IcannotNov 06, 2014
2
By Despairjam
Does anybody suffer nausea gastrointestinal problems severe fatigue tremors trouble sleeping headaches? I have a hiat...
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HeiferlyBlankNov 09, 2014
Red_StarOct 20, 2014
2
By Bamboozlem
Hi, I have EDS Hypermobile (diagnosed last year) and POTs (diagnosed this Summer). First question: understand...
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By curiousmom13
I live in Clay County, Florida. My 16 year old daughter has been diagnosed with Dysautonomia after years of misdiagno...
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Shirts3414Jul 11, 2014
Shirts3414Jul 11, 2014
HeiferlyBlankJan 18, 2013
lizzy222Jan 17, 2013
cathystNov 30, 2009
10
By cathyst Blank
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want ...
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HeiferlyBlankOct 08, 2014
JMOgdenOct 04, 2014
anomaleJun 28, 2014
Hannah_Marie13Jan 05, 2012
AsthmaPOTSNov 01, 2011
7
By laurab2818 Blank
Anyone else have asthma and POTS? I went to Cleveland Clinic and they recommended beta blocker, calcium channel bloc...
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HeiferlyBlankOct 08, 2014
68SurvivorOct 05, 2014
2
By gemme771
this happened a few times to me i am laying down and i feel that i am going to faint things look a little dim and my...
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drocnodiagnosisOct 05, 2014
HeiferlyBlankSep 26, 2014
2
By drocnodiagnosis
I have a provision dx of dysautonomia based on an understanding PCP's observance of an episode of bradycardia in his ...
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Steve6Oct 30, 2014
AireScottieSep 23, 2009
evo123Sep 22, 2009
supineallthetimeSep 22, 2009
evo123Sep 22, 2009
8
By evo123 Blank
Has anyone had any problems whilst being weaned off Fludrocortisone (florinef)? I have been getting terrible flank p...
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hp0416Oct 29, 2014
mgam3131Jan 15, 2014
ts_mommy123Sep 22, 2013
ts_mommy123Sep 22, 2013
ashspenc21Nov 11, 2012
34
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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kelcee333Oct 29, 2014
HeiferlyBlankJul 06, 2014
lashleylynnJun 29, 2014
HeiferlyBlankJun 28, 2014
lashleylynnJun 22, 2014
24
By JSkrill Blank
Does anyone here know of any relationship with autonomic dysfunction and cervical stenosis? I have found a little bi...
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amit123456789Oct 08, 2014
HeiferlyBlankApr 28, 2010
2
By karinosa Blank
I went to my appointment earlier today and this is what was said. He thinks that my on/off swelling of hands/feet/an...
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RiddleyOct 01, 2014
laurab63Sep 08, 2014
RiddleySep 08, 2014
HeiferlyBlankSep 07, 2014
RiddleyAug 16, 2014
6
By Riddley Blank
Four months ago, I began to have these episodes, mostly in the late morning or late at night, which began with tachyc...
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lyza13Sep 28, 2014
lladridoFeb 27, 2010
CHRISTYDRAKEFeb 10, 2010
3
By pepito6 Blank
I have POTS and might have to get a colonoscopy, has anyone ever done one while suffering with POTS, I am afraid to g...
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HeiferlyBlankSep 07, 2014
1
By PraxxtorCruel Blank
I feel I may have some form of orthostatic intolerance based on the fact that I get a whole variety of symptoms when ...
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HeiferlyBlankSep 07, 2014
1
By RioM Blank
Hi Around 5 months ago, I was at work one day when suddenly my heart skipped a few beats, my body then went in...
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HeiferlyBlankSep 07, 2014
HeiferlyBlankSep 07, 2014
naomisilvAug 20, 2014
naomisilvAug 19, 2014
HeiferlyBlankAug 18, 2014
6
By naomisilv Blank
Hi I have been diagnosed with Dysautonomia and POTS. I was very happy to get the diagnosis after 8 years of weakne...
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HeiferlyBlankSep 07, 2014
EEustisAug 19, 2014
HeiferlyBlankAug 18, 2014
3
By EEustis Blank
Hello everyone, Question, especially for POTS folks: I recently developed a polyneuropathy after vaccination. It is...
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TCRyderAug 29, 2014
LowMacJul 31, 2010
mtgardnerJul 30, 2010
LowMacJul 22, 2010
LivingInHopeJul 18, 2010
13
By LowMac Blank
Hey Everyone, I'm a longtime member of MedHelp forums, actually longer than my current member name (since 2004) bu...
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CHRISTYDRAKEAug 28, 2014
justine911Aug 28, 2014
potsinflSep 17, 2010
mtgardnerSep 17, 2010
NoFluxesSep 16, 2010
39
By NoFluxes Blank
Hey, I'm new here and need help and advice on my condition, I'm 16 years old and this disease has taken over my life....
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Heiferly
Howard, OH