Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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1
By micaela7
I was diagnosed a few months ago. my cardiologist told me not to exercise... sit and do everything... get an office j...
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AmberCCCMar 04
AmberCCCMar 04
17
By JCappiello
Hi Everyone. I was recently diagnosed with POTS about 2 months ago. I had worn a heart monitor for 3 weeks and my h...
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saagsjhMar 11
saagsjhMar 11
cathystJun 09, 2009
Kim282Dec 15, 2008
HeiferlyBlankNov 11, 2008
5
By kitty0604 Blank
Hello I was just diagnosed with autoanomic dysfuncion, neurogenic orthostatic insufficiency, with postural tachycardi...
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By alienshadow
Not sure where to start Last sept I woke up with an dizzy type feeling in 2011.. I had foot surgery on sept 30th 2011...
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1
By AmberCCC
Hi all, I am new here. I have a DX of POTS. I was diagnosed in 2010. I became very ill and unable to work. I ended up...
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PhysioSamMar 01
TerrysmiserableOct 13, 2011
tyger1970Apr 11, 2011
janni20Apr 05, 2011
madmerlinJul 21, 2009
13
By JSkrill Blank
Does anyone here know of any relationship with autonomic dysfunction and cervical stenosis? I have found a little bi...
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By Timidstar
I posted another similar question on the diabetes forum, but then I found out that this is the same thing as autonomi...
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ball8016Feb 25
HeiferlyBlankJan 06
ladymleeJan 06
ladymleeJan 06
15
By MJ968
I passed out in 2007 and started getting lightheaded in 2009. Since then and till now the lightheadedness is gettin...
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tabby1980Feb 23
LivingInHopeDec 26, 2011
nanisampsonDec 21, 2011
laurab2818May 24, 2010
LivingInHopeMay 23, 2010
14
By Sherr514 Blank
I was diagnosed with MVP 11 yrs ago. Have not had to many problems or symptoms until Dec 2008. I had a run of somethi...
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Jess1220Feb 21
Potsx2Jan 05
potsy20Jun 13, 2011
8
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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Shellbot17Nov 06, 2012
KK1476Oct 04, 2012
HeiferlyBlankMar 27, 2010
tonyadMar 26, 2010
9
By tonyad Blank
Hi Friends, I have yet another question and hope that a few of you can chime in on this for me. For those of yo...
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HeiferlyBlankDec 14, 2012
CurrerBellDec 06, 2012
HeiferlyBlankMay 15, 2010
LivingInHopeMay 15, 2010
21
By RedAngel84 Blank
Does anyone else lead a very active lifestyle while being very symptomatic with POTS? I'm pretty new to this while th...
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melodychildDec 14, 2012
AngelDuCielNov 29, 2012
HeiferlyBlankMay 17, 2010
EmzVVS25May 17, 2010
7
By EmzVVS25 Blank
hi there Im 25 year old female who has vasovagal syncope weekly. I have some questions if someone out there can he...
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vasalguyJan 17
KyJonesDec 03, 2009
halbashesSep 23, 2009
DizzyJSep 11, 2009
6
By Allie915 Blank
In April, my husband was diagnosed with vasovagal syncope. He was in the hospital for 4 days having testing done. The...
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Heater535Feb 19
michele005Feb 18, 2012
alisonvpFeb 17, 2012
BrittRae13Jan 30, 2012
4
By Heater535 Blank
I have recently been diagnosed with dysautonamia and I feel as if I've had sudden mood swings or have been getting an...
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HeiferlyBlankFeb 05
twopackFeb 04
4
By MsSherman
I have been in a nursing home for almost a yr. in the last three months I have started experiencing extreme zaps in ...
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HeiferlyBlankJan 28
evo123Jan 27
HeiferlyBlankJan 27
6
By Seely7
I was diagnosed with dysautonomia almost a year ago. I recently found out I am pregnant. I am 10 weeks. My doctor has...
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acrobaticFeb 17
Nervous74Mar 04, 2011
lucy189Feb 21, 2011
laurab2818Feb 17, 2011
laurab2818Feb 17, 2011
7
By jkhomer Blank
My husband and I will be flying to Boston this week to have a full autonomic work up for him. He has been struggling...
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dizinsFeb 17
felixthecat79Nov 15, 2011
jessie85Aug 19, 2011
perry3000May 18, 2011
45
By AireScottie Blank
How long do your compression stockings work? Most brands state they should last 6 months. Mine always start to stre...
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DeanNunnFeb 14
aPOTSmomOct 09, 2012
techiemom64Sep 11, 2012
techiemom64Sep 11, 2012
CHRISTYDRAKESep 10, 2012
25
By CHRISTYDRAKE Blank
My son is being treated for autonomic dysfunction. He is taking fludrocortisone for the dizziness. Every day since ...
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