Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Ncsmomof2Feb 08
2
By spooniegirl Blank
Hi everyone, I'm a teenage girl who has been experiencing POTS symptoms for almost 3 years, and was just diagnosed t...
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heckyaFeb 18
jc4385Feb 08
2
By AlyssaM0987 Blank
Has anyone gone to mayo clinic? What kinds of testing do they do for Dysautonomia there? It is going to be expensiv...
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lotti3Jan 30
PhyllischasDec 07, 2015
OdyvanchkNov 17, 2014
34
By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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fastbackFeb 13
Rose1516Dec 24, 2009
HeiferlyBlankDec 23, 2009
Rose1516Dec 23, 2009
HeiferlyBlankDec 22, 2009
5
By Rose1516 Blank
What causes so many auto immune disorders in one person and could it be a sign of blood cancer and how do you get som...
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By Shelbzmarz
Hello I have ZERO ENERGY all the time! I take midodrine and my BP is usually 100/60. My doctor will not prescribe any...
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Ncsmomof2Feb 08
1
By AlyssaM0987 Blank
I have a few further questions for those who have been diagnosed with Dysautonomia... Has anyone ever received any ac...
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LivingInHopeMay 13, 2010
KujiforoMay 13, 2010
cathystMay 13, 2010
auntissieMay 12, 2010
8
By cathyst Blank
I think this may sound like a crazy question, but has anyone had an issue with hair loss? My hair has always been su...
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1
By spooniegirl Blank
hi everyone. I'm a teenager who has had POTS symptoms for over 2 years, but was just recently diagnosed this past Oct...
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By AlyssaM0987 Blank
Hello from Canada.... Any Canadians experience trying to get a diagnosis in Canadaa? I am 5 years into this battle An...
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FoggyMomJan 19
HeiferlyBlankJun 20, 2014
2
By jennir54 Blank
My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who sp...
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northerncaliFeb 06, 2014
carolannaraDec 11, 2013
dancingbelleJul 09, 2013
LivingInHopeDec 01, 2011
24
By Lynn63 Blank
My daughter has Hyperadrenergic Postural Orthostatic Tachycardia Syndrome and I am just wondering if anyone else has ...
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1
By steiner71 Blank
As I look through the comments and articles on this website I noticed that many writings are not about "dysautonomia"...
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kleejonesJan 12
1
By Loulou0728 Blank
Hi all. I've been dealing with dysautonomia for years and am sick of being sick. I want to be more proactive in findi...
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By steiner71 Blank
I started with symptoms of Orthostatic Hypotension (OH) and extreme fatigue at age 11. I am now 69 and was finally -...
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By ilafaye Blank
My daughter has POTS and Ehlers Danlos Syndrome hypermobility type. The last several times I've given her a warm bath...
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SltrblJan 08
LucasN77Dec 04, 2015
LucasN77Dec 04, 2015
Danago88Dec 03, 2015
4
By LucasN77 Blank
Hi , I'm a 23 year old guy , Yesterday got diagnosed with dysautonomia ( Vasovegal Syncope , I have never have fain...
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RB1987Jan 08
1
By Heartfreak Blank
I'm a 28 year old female, and have been living with these unexplain symptoms, I do a lot of research and have came ac...
1933354 tn?1323366434
AcasondcDec 27, 2015
AcasondcDec 27, 2015
crazycamApr 15, 2013
rhonda1017Apr 13, 2013
4
By crazycam Blank
Hello. I am really hoping someone or a doctor can provide feedback. I am experiencing some terrifying things and am a...
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Danago88Dec 18, 2015
helyannaAug 19, 2011
evo123May 25, 2011
evo123May 25, 2011
CHRISTYDRAKEMay 25, 2011
17
By HeiferlyBlank Blank
How far along are you in getting a diagnosis? (Note that the option of "I've been told a specific subtype of dysauto...
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mobvco3Dec 18, 2015
mobvco3Dec 18, 2015
DeanNunnFeb 14, 2013
aPOTSmomOct 09, 2012
techiemom64Sep 11, 2012
27
By CHRISTYDRAKE Blank
My son is being treated for autonomic dysfunction. He is taking fludrocortisone for the dizziness. Every day since ...
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