Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By VIVECAH
It is supposed to read my doctor put me on midodrine
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ny2caliApr 19
halbashesMar 04, 2009
2
By princess4969 Blank
I have been poked, prodded, and darn near disected..My symptoms started 9 years ago and I have had unexplained severe...
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PmarkerApr 18
LaLa4Oct 20, 2010
HeiferlyBlankOct 20, 2010
LaLa4Oct 20, 2010
vbc2000Oct 20, 2010
28
By ParrotPal Blank
Hello. Am new to medhelp. Is there anyone that can help with the names of physicians that can treat, diagnose, or h...
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HeiferlyBlankApr 14
momintexasJun 17, 2009
gracieandzacharyJun 04, 2009
chamesMay 27, 2009
8
By laurab2818 Blank
Has anyone gone to to Vanderbilt for evaluation and treatment? I'm considering trying to get into the clinic or also...
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Scarlett2001Nov 14, 2014
debkrollsJul 05, 2014
debkrollsJul 05, 2014
CHRISTYDRAKEJun 11, 2014
16
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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dml1977Apr 08
dml1977Apr 08
HeiferlyBlankMar 03
21
By ablanken Blank
My 21 yo athletic daughter began feeling tired, had some dizziness, difficulty concentrating, occasional headache, be...
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1
By LausDeo
does anyone know of a dr--cardiologist or other--in Ocala Fl area who is familiar with POTS?
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tashad90Mar 26
tashad90Mar 26
tashad90Mar 26
HeiferlyBlankMar 15
tashad90Mar 14
11
By Seely7 Blank
I was diagnosed with dysautonomia almost a year ago. I recently found out I am pregnant. I am 10 weeks. My doctor has...
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HeiferlyBlankMar 21
1
By mamiJ
I have dysautonomia and have intermittent spasticity and weakness in arms and especially legs. I sometimes get contra...
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HeiferlyBlankMar 17
Nanna48Mar 16
HeiferlyBlankMar 15
3
By Nanna48
A great discussion here! Does anyone else think they may have sacral dysfunction? An important topic, as this is so m...
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HeiferlyBlankMar 15
Nanna48Mar 15
HeiferlyBlankMar 04
HeiferlyBlankFeb 10
7
By cjvision
I am inquiring to see if anyone has had their wisdom teeth pulled while under the influence of POTTS disease? And if ...
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HeiferlyBlankMar 15
Nanna48Mar 15
Nanna48Mar 15
HeiferlyBlankMar 14
5
By crowmedicus
For 13 years I have been dealing with a mystery illness and I've been checked for nearly everything imaginable, but s...
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HeiferlyBlankMar 14
DenTekMar 12
AireScottieJul 22, 2009
HeiferlyBlankJul 21, 2009
AireScottieJul 21, 2009
5
By HeiferlyBlank Blank
A few community members have expressed interest in hearing about what my experience was like getting testing done at ...
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HeiferlyBlankMar 11
LindaTXJun 06, 2010
tkimberJun 06, 2010
LindaTXJun 03, 2010
9
By tkimber Blank
Hi, I am new to this site, just recently diagnosed. Does anyone have any specialist, besides UCLA to go for testing ...
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HeiferlyBlankMar 03
HeiferlyBlankFeb 22
5
By GAreb169
I have been home bound for nearly 3 years. If I am exposed to any heat, or much activity, I go into what I call heat ...
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HeiferlyBlankMar 04
HeiferlyBlankMar 03
7
By thedmxdj
my dysautonomia has been getting worse over the last year... should i be enquiring about a degenerative failure of my...
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HeiferlyBlankFeb 23
boulboulFeb 23
HeiferlyBlankFeb 22
3
By boulboul
After extensive research im now sure that post my open heart surgery last year I developped dysautonomia and now im ...
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HeiferlyBlankFeb 20
limonteeFeb 20
LaLa4Sep 27, 2010
CHRISTYDRAKESep 26, 2010
10
By laurab2818 Blank
Halbashes' recent post about her latest concussion made me think about something I have been meaning to ask. Do othe...
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By queenofhearts316
Hi everyone, I am only 22 and while the Doctors here are unfamiliar I have the symptoms of Pots.My heart rate increas...
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HeiferlyBlankFeb 19
HeiferlyBlankFeb 17
HeiferlyBlankNov 29, 2014
4
By HeiferlyBlank Blank
Hi. I'm Heiferly and I'm the CL (Community Leader) here in the Dysautonomia forum. (I'm also co-CL of the ostomy foru...
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