Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankSep 07
HeiferlyBlankSep 07
naomisilvAug 20
naomisilvAug 19
HeiferlyBlankAug 18
6
By naomisilv
Hi I have been diagnosed with Dysautonomia and POTS. I was very happy to get the diagnosis after 8 years of weakne...
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HeiferlyBlankSep 07
EEustisAug 19
HeiferlyBlankAug 18
3
By EEustis
Hello everyone, Question, especially for POTS folks: I recently developed a polyneuropathy after vaccination. It is...
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TCRyderAug 29
LowMacJul 31, 2010
mtgardnerJul 30, 2010
LowMacJul 22, 2010
LivingInHopeJul 18, 2010
13
By LowMac Blank
Hey Everyone, I'm a longtime member of MedHelp forums, actually longer than my current member name (since 2004) bu...
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potsinflSep 17, 2010
mtgardnerSep 17, 2010
NoFluxesSep 16, 2010
39
By NoFluxes Blank
Hey, I'm new here and need help and advice on my condition, I'm 16 years old and this disease has taken over my life....
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HeiferlyBlankAug 18
2
By AWDRG0096
I didn't really know where to post this. Perhaps someone here can help. This is a kind of odd phenomenon I've noticed...
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Lucia2844Aug 07
LivingInHopeApr 29, 2012
OnTheFence142Apr 14, 2012
DNP47Apr 13, 2012
OnTheFence142Apr 10, 2012
6
By OnTheFence142 Blank
Hi All, I have recently been diagnosed w/POTS after a + TTT. It didn't induce syncope but rather the diagnosis wa...
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ava2Jun 03, 2012
Family2011Sep 18, 2011
LivingInHopeMar 28, 2011
HeiferlyBlankMar 28, 2011
arpita124Mar 28, 2011
6
By arpita124 Blank
I haven't been given a diagnosis and I went to a neurologist because after researching my symptoms I suspected autono...
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naomisilvAug 19
HeiferlyBlankAug 18
2
By naomisilv
Hi All I have been diagnosed with POTS and Neurally mediated dysautonomia My GP has suggested that I get 8 liters o...
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HeiferlyBlankAug 18
1
By Tiffiny76
I have been experiencing issues since I was a teenager. I am now 38 & still undiagnosed. I should find out on Monda...
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HeiferlyBlankAug 04
HeiferlyBlankAug 04
2
By Dynaverse
To all you POTSIES out there, to what degree do you get shortness of breath if at all? When I walk more than 2kms ...
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HeiferlyBlankAug 04
HeiferlyBlankAug 04
2
By denisef_0324
I have been diagnosed with Neurocardiogenic Syncope for about 7 years, but I always knew there was something wrong wi...
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HeiferlyBlankAug 04
Ball123Jul 27
HeiferlyBlankJul 26
4
By MadiBogden
Okay I'm 16 and I can't remember how long but for the longest time I would pass out. I would pass out from getting up...
1115123_tn?1406285283
HeiferlyBlankAug 04
1
By Dynaverse
So, I had orthostatic intollerance for about 4 years, and I was living a very normal life and dealing with all the sy...
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Ball123Jul 27
DynaverseJul 24
HeiferlyBlankJul 23
4
By sam_amilia
Hi all, I am just wondering if you could please go I to detail about your POTS symptoms. My story is, about 11 ye...
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Kai_spJul 26
HeiferlyBlankJul 26
Kai_spJul 23
HeiferlyBlankJul 23
5
By Kai_sp
I am 16 wks pregnant and in my 30s. No health issues except for anxiety for 3 about years now. Recently, I had hypert...
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HeiferlyBlankJul 26
1
By Notgoingdownyet
Hello everyone. I just found out I have dysautonomia. I've been bedridden since December 2013. I tested positive for ...
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By TRAVELERSUNITE
I was recently diagnosed w/ autonomic dysfunction, so I haven't had a lot of discussion time w/ a doctor yet. I'm tra...
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By Dynaverse
So.. I need some help figuring out what's going. Please read and give me your thoughts. Basically, 4 years ago, I ...
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HeiferlyBlankJul 23
AdamqtnzJul 09
est_sunshineOct 17, 2012
LivingInHopeSep 21, 2012
DancingGiraffeSep 21, 2012
11
By DancingGiraffe Blank
Hi, I recently saw a neurologist who said I have pandysautonomia. He also said there are tests to see if this is aut...
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HeiferlyBlankJul 23
1
By pots123
I am 40 y.o female who has been battling POTS for at least 5 years. Tried numerous meds. Currently taking midodrine...
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Heiferly
Columbus, OH