Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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AmyschiJun 18
HeiferlyBlankJun 17
RissM1994Jun 16
4
By RissM1994
Hello everyone, my name is Riss and I'm 19 years old. The past week or so has been a whirlwind for me. My story start...
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Freefran5Jun 16
hbw1Jun 11, 2012
Fellowpatient513Jun 06, 2012
LivingInHopeJun 03, 2012
11
By lfreem02 Blank
I have been on Midodrine for a few weeks. My dose was increased from 5mg three times a day to 10 mg three times a da...
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CruBee44Jun 16
HeiferlyBlankFeb 24, 2011
CruBee44Feb 23, 2011
7
By CruBee44 Blank
Hello! I am a 26 year old female with inappropriate sinus tachycardia (IST), displaying all symptoms. I recently had ...
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jjnycJun 15
Ball123Jun 08
2
By jjnyc
So great to read other people's posts and realized I'm not alone on this bizarre journey. I'm a 40 year old female wh...
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1
By mnichthompson
I was diagnosed with POTS 2 years ago, but i've never had to have a hospital visit. Past few days, i've been feeling ...
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Ball123Jun 08
Pooyan01Jun 08
2
By Ball123
I have trouble bending down. Like tying my shoes etc. It feels like all my blood rushes to my head and making it expl...
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Ball123Jun 08
1
By ronbelladog
My heartrate drops into the low 40s while asleep as per holter monitor. It runs high 50s low 60s during the day. I do...
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meggsmomJun 03
HeiferlyBlankOct 07, 2009
2
By nancyannetaylor Blank
Two weeks ago I had my first episode of Harlequin's Syndrome. Does it progress, debilitate, or stay the same?
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By Ball123
I think that hyperadrenergic POTS should really be differed from other kinds of POTS. To me they seem to stem from co...
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By Dynaverse
Hey, I have POTS (postoral orthostatic tachycardia snydrome) and my doctor needs to put me on Coumadin for 6 months. ...
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Ball123Jun 01
1
By Kndfree
I am newly diagnosed with Low Vitamin D and I am also being tested for Autonomic Nervous System Disorder specifically...
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rdhrntobeSep 17, 2012
lollol3May 09, 2011
enzymeloverSep 26, 2010
21
By lovemydowncomforter Blank
I am a 24 year old female. I've been told after having "unexplained" tachycardia for the last 6 years, that I have In...
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JamiebroMay 17
DejiboMay 28, 2010
halbashesJan 07, 2010
cathystDec 04, 2009
12
By cathyst Blank
Just checking to see who all is dealing with gastroparesis, your symptoms and treatment. I would also like to know i...
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By Sleepy_lady
I went to the ER, my resting heart rate was 90-110 because I was nervous at the doctor, they suspect I have pots and ...
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By Jewelsday68
I have dysautonomia. I often have abnormal ECG readings when I'm feeling very bad. Today's reading is moderate r...
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deanna178May 16
steve947Dec 09, 2011
HeiferlyBlankNov 22, 2011
KellysavedbygraceNov 17, 2011
4
By steve947 Blank
Everytime I eat, my blood pressure drops 25 to 35 points, with fatigue and weekness folowing. I know the medical name...
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bean418May 16
CorieAMay 16
bean418May 14
CorieAMay 14
bean418May 13
9
By brienh05
I recently was diagnosed with dysautonomia and was first given metropylol(spelling) and my symptoms worsened so the c...
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CorieAMay 16
1
By sconesail
Hi All, Does anyone else have really tight muscles with dysautonomia? I faint quite a bit ( about 5-10 times a day...
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By CorieA
My 15 y.o. daughter has been diagnosed with dysautonomia. She identifies as asexual. I've read that dysautonomia ca...
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bean418May 16
Ball123May 04
bean418Apr 30
Ball123Apr 30
bean418Apr 30
27
By Ball123
Does anyone know anything about valsalva headaches and POTS? Can POTS cause headaches associated with straining, coug...
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