Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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1
By spooniegirl
hi everyone. I'm a teenager who has had POTS symptoms for over 2 years, but was just recently diagnosed this past Oct...
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By AlyssaM0987
Hello from Canada.... Any Canadians experience trying to get a diagnosis in Canadaa? I am 5 years into this battle An...
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FoggyMomJan 19
HeiferlyBlankJun 20, 2014
2
By jennir54 Blank
My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who sp...
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northerncaliFeb 06, 2014
carolannaraDec 11, 2013
dancingbelleJul 09, 2013
LivingInHopeDec 01, 2011
24
By Lynn63 Blank
My daughter has Hyperadrenergic Postural Orthostatic Tachycardia Syndrome and I am just wondering if anyone else has ...
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1
By steiner71
As I look through the comments and articles on this website I noticed that many writings are not about "dysautonomia"...
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kleejonesJan 12
1
By Loulou0728 Blank
Hi all. I've been dealing with dysautonomia for years and am sick of being sick. I want to be more proactive in findi...
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By steiner71
I started with symptoms of Orthostatic Hypotension (OH) and extreme fatigue at age 11. I am now 69 and was finally -...
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By ilafaye
My daughter has POTS and Ehlers Danlos Syndrome hypermobility type. The last several times I've given her a warm bath...
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SltrblJan 08
LucasN77Dec 04, 2015
LucasN77Dec 04, 2015
Danago88Dec 03, 2015
4
By LucasN77 Blank
Hi , I'm a 23 year old guy , Yesterday got diagnosed with dysautonomia ( Vasovegal Syncope , I have never have fain...
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RB1987Jan 08
1
By Heartfreak Blank
I'm a 28 year old female, and have been living with these unexplain symptoms, I do a lot of research and have came ac...
1933354 tn?1323366434
AcasondcDec 27, 2015
AcasondcDec 27, 2015
crazycamApr 15, 2013
rhonda1017Apr 13, 2013
4
By crazycam Blank
Hello. I am really hoping someone or a doctor can provide feedback. I am experiencing some terrifying things and am a...
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Danago88Dec 18, 2015
helyannaAug 19, 2011
evo123May 25, 2011
evo123May 25, 2011
CHRISTYDRAKEMay 25, 2011
17
By HeiferlyBlank Blank
How far along are you in getting a diagnosis? (Note that the option of "I've been told a specific subtype of dysauto...
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mobvco3Dec 18, 2015
mobvco3Dec 18, 2015
DeanNunnFeb 14, 2013
aPOTSmomOct 09, 2012
techiemom64Sep 11, 2012
27
By CHRISTYDRAKE Blank
My son is being treated for autonomic dysfunction. He is taking fludrocortisone for the dizziness. Every day since ...
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HeiferlyBlankOct 06, 2009
Mom2four85Oct 06, 2009
halbashesOct 04, 2009
DizzyJSep 24, 2009
DizzyJSep 24, 2009
9
By DizzyJ Blank
My trip to Rochester, MN was a rough one for me. I fell in the DFW airport because they didn't get a wheelchair for m...
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massgirl80sDec 11, 2015
Zoe5710Jan 26, 2014
JLS_23Jan 25, 2014
Dorn82Nov 16, 2013
JCBFanClubSep 20, 2013
9
By Zoe5710 Blank
Hello! Do you have big flare-ups of dysautonomia symptoms? Does anyone have these issues more in cold weather? ...
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By MrsFox13 Blank
I am a POTS patient. I was diagnosed when I was 18 by the Mayo clinic. Since then my symptoms would get better and wo...
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By Pyr2 Blank
Just had ANSAR testing and it showed PPS in response to sympathetic stimulation. Does anyone know what this is? It ...
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IcannotDec 09, 2015
gogetter7Oct 30, 2015
ConnieraAug 26, 2015
HeiferlyBlankJul 25, 2015
CHRISTYDRAKEJul 08, 2015
5
By ezeden Blank
My daughter has just been diagnosed with dysautonomia. We have been going to a gastroenterologist for months and had ...
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kdawg87Dec 08, 2015
Danago88Dec 03, 2015
2
By kdawg87 Blank
I'm a 28 year old that recently started having syncope. Preceding that I had EKG changes, mild mitral valve regurg, c...
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Pipp9601Dec 08, 2015
m3369Feb 19, 2009
halbashesNov 19, 2008
3
By CindyBell411 Blank
Hi there, My daughter has severe gastroparesis...now they are wondering about automonic instability......does anyo...
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