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Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

41 - 60 (of 1824) questions
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Avatar universal
I'm a 28 year old female, and have been living with these unexplain symptoms, I do a lot of research and have came across POTS quite a bit. My main symptoms are heart palpitations, weird chest pains, dizziness ( I have never passed out, ...
  Posted
1933354 tn?1323366434
Hello. I am really hoping someone or a doctor can provide feedback. I am experiencing some terrifying things and am at a loss. I have had several episodes of what my cardio would call inappropriate sinus tachycardia. I went to ER for a p...
  Posted
612876 tn?1355518095
How far along are you in getting a diagnosis? (Note that the option of "I've been told a specific subtype of dysautonomia, but the underlying cause is still being investigated." does not apply to all subtypes, as in some subtypes there ...
  Posted
Avatar universal
My son is being treated for autonomic dysfunction. He is taking fludrocortisone for the dizziness. Every day since February, he has had stomach pain and/or nausea in varying degrees. His cardiologist is telling me this is not part of ...
  Posted
986162 tn?1297442041
My trip to Rochester, MN was a rough one for me. I fell in the DFW airport because they didn't get a wheelchair for me in time to get on the plane. Didn't hurt anything but my pride. It took most of the day to get there and get back, so ...
  Posted
Avatar universal
Hello! Do you have big flare-ups of dysautonomia symptoms? Does anyone have these issues more in cold weather? I have been diagnosed with peripheral neuropathy. No one has been able to tell me what the underlying cause might be. ...
  Posted
Avatar universal
I am a POTS patient. I was diagnosed when I was 18 by the Mayo clinic. Since then my symptoms would get better and worse, but mostly better. Things have turned worse now. My family doesn't know how to help, my doctors are helping as much...
  Posted
Avatar universal
Just had ANSAR testing and it showed PPS in response to sympathetic stimulation. Does anyone know what this is? It says I also have increased adrenergic tone.
  Posted
Avatar universal
My daughter has just been diagnosed with dysautonomia. We have been going to a gastroenterologist for months and had endoscopy's and a colonoscopy with no answers for her chronic constipation and nausea, now we know it is caused by the d...
  Posted
Avatar universal
I'm a 28 year old that recently started having syncope. Preceding that I had EKG changes, mild mitral valve regurg, chest pain/SOB. I just completed my tilt test where I did not faint but did have hypotension drop and sinus tach. ...
  Posted
Avatar universal
Hi there, My daughter has severe gastroparesis...now they are wondering about automonic instability......does anyone else out there with this condition have gastroparesis? Cindy
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Avatar universal
I have had dysautonomia for about a year now,and I'm looking for people who dysautonomia in or near Charlotte.
  Posted
Avatar universal
I can't stay focused on anything. It's like my mind just goes blank in the middle of work, talking, everything. Feeling afraid and depressed. Fearful of losing my cognitive abilities. I'm only 44. I'm told I have severe chronic dysa...
  Posted
16502957 tn?1448576185
Heya guys, I was just wondering if any of you would be willing to do an interview over Skype or Facebook about what effects PoTS has on yours and your family's every day life? I am making a documentary for college and would greatly appre...
  Posted
Avatar universal
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want to travel to Vanderbilt. Several doctors told me not to waste my time. In the meantime, I have no autonomic dr to answ...
  Posted
Avatar universal
My tilt table test results showed severe and chronic dysautonomia but the doctor didn't say which kind. From what I read MSA, PAF, and PD fall into the severe chronic category. I'm having only orthostatic hypotension with a drop in BP o...
  Posted
1510006 tn?1305086486
I am 22 weeks pregnant with my son and I have been diagnosed with POTS/Hypotension for almost 4 years now. I have been researching POTS and Pregnancy because I want to be prepared for the worst. Originally my greatest worry was passing...
  Posted
Avatar universal
Hi everyone. Just got tested but my neuro not an autonomic neuro. During Vasalva, they noted a normal sympathetic increased AND a paradoxical parasympathetic function. On standing, "this patient showed a significant decrease in sy...
  Posted
Avatar universal
My 34-year-old son recently fainted -- not his first time, it has happened every so many years -- but it was concerning because he was just walking down a sidewalk, no triggers/warnings, was lucky he didn't mess up his face/head too badl...
  Posted
Avatar universal
I am 26 and newly diagnosed with POTS. It first hit me three months ago after a bad case of what I thought was food poisoning. Since then, I have had near fainting, dizziness, tremors, brain fog, unsteadiness, shortness of breath, etc. I...
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