Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

Important Announcement:
Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
Ball123Jul 27
DynaverseJul 24
HeiferlyBlankJul 23
4
By sam_amilia
Hi all, I am just wondering if you could please go I to detail about your POTS symptoms. My story is, about 11 ye...
Avatar_f_tn
Kai_spJul 26
HeiferlyBlankJul 26
Kai_spJul 23
HeiferlyBlankJul 23
5
By Kai_sp
I am 16 wks pregnant and in my 30s. No health issues except for anxiety for 3 about years now. Recently, I had hypert...
Avatar_f_tn
HeiferlyBlankJul 26
1
By Notgoingdownyet
Hello everyone. I just found out I have dysautonomia. I've been bedridden since December 2013. I tested positive for ...
Avatar_f_tn
By TRAVELERSUNITE
I was recently diagnosed w/ autonomic dysfunction, so I haven't had a lot of discussion time w/ a doctor yet. I'm tra...
1115123_tn?1406285283
By Dynaverse
So.. I need some help figuring out what's going. Please read and give me your thoughts. Basically, 4 years ago, I ...
3712143_tn?1347939865
HeiferlyBlankJul 23
AdamqtnzJul 09
est_sunshineOct 17, 2012
LivingInHopeSep 21, 2012
DancingGiraffeSep 21, 2012
11
By DancingGiraffe Blank
Hi, I recently saw a neurologist who said I have pandysautonomia. He also said there are tests to see if this is aut...
Avatar_f_tn
HeiferlyBlankJul 23
1
By pots123
I am 40 y.o female who has been battling POTS for at least 5 years. Tried numerous meds. Currently taking midodrine...
Avatar_f_tn
HeiferlyBlankJul 23
1
By mellyXbby
I have autonomic dysfunction yet the doctor never directly determined the exact type in general. I have had this for ...
Avatar_f_tn
HeiferlyBlankJul 23
1
By Amyschi
Hello. I am very interested and would appreciate hearing from anyone who has been seen at the University of Toledo b...
Avatar_m_tn
By GMays
Someone i love was diagnosed with Dysautonomia and am looking for a doctor for her. We live in Fort Worth and want ...
6959467_tn?1397884405
madprigMay 01
lia_joyApr 24
3
By madprig Blank
I have felt like I have been in a dream since October 2013, after months of not knowing what was wrong I was diagnose...
886699_tn?1270783344
HeiferlyBlankJul 06
joylinkJul 06
robin5232Mar 12
elisha79Nov 20, 2013
halesred1Sep 17, 2013
32
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
Avatar_f_tn
HeiferlyBlankJun 28
2
By MomTo2Nics
This is a complicated question. I hope someone can help. My Son had a malformation removed from his spinal cord abo...
Avatar_m_tn
CorieAJun 29
HeiferlyBlankJun 28
2
By CorieA
A study came out earlier this year showing a connection between autoantibodies and pots. http://www.dysautonomiainte...
Avatar_f_tn
HeiferlyBlankJun 22
CorieAJun 22
HeiferlyBlankMay 26
tmama007May 16
CorieAMay 16
5
By tmama007 Blank
I am wondering if someone can direct me. In October of 2013 out of the blue I started having trouble getting my breat...
Avatar_f_tn
HeiferlyBlankJun 20
1
By jennir54
My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who sp...
886699_tn?1270783344
itsthebmanAug 01, 2010
KavbearJul 21, 2010
laurab2818Jul 19, 2010
LivingInHopeJul 19, 2010
HeiferlyBlankJul 19, 2010
25
By pepito6 Blank
The dr. told me that I need to drink a lot of water and electrolyte's drink. I have been, drinking gatorade 2, but I...
Avatar_f_tn
AmyschiJun 18
HeiferlyBlankJun 17
RissM1994Jun 16
4
By RissM1994
Hello everyone, my name is Riss and I'm 19 years old. The past week or so has been a whirlwind for me. My story start...
Avatar_f_tn
Freefran5Jun 16
hbw1Jun 11, 2012
Fellowpatient513Jun 06, 2012
LivingInHopeJun 03, 2012
11
By lfreem02 Blank
I have been on Midodrine for a few weeks. My dose was increased from 5mg three times a day to 10 mg three times a da...
Avatar_f_tn
CruBee44Jun 16
HeiferlyBlankFeb 24, 2011
CruBee44Feb 23, 2011
7
By CruBee44 Blank
Hello! I am a 26 year old female with inappropriate sinus tachycardia (IST), displaying all symptoms. I recently had ...
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Arrhythmias Answerers
1124887_tn?1313758491
Blank
is_something_wrong
Oslo, Norway
612876_tn?1355518095
Blank
Heiferly
Columbus, OH