Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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mark326Feb 13
JCappielloFeb 20, 2013
HeiferlyBlankDec 14, 2012
CurrerBellDec 06, 2012
HeiferlyBlankMay 15, 2010
22
By RedAngel84 Blank
Does anyone else lead a very active lifestyle while being very symptomatic with POTS? I'm pretty new to this while th...
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By arob2013
New poster and looking for direction... Some history; - 5 years ago bouts of sour stomach, reflux, severe indig...
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By kerid30
I'm not on any medication as of yet I have had pots for 4 years I finally go to a real specialist Thursday I have alr...
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By Lou_17
I was diagnosed when I was 15 with P.O.T.S Syndrome. I know it is not a disease, but I wonder if it will ever go away...
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reannacnDec 13, 2013
uniquelybeccaDec 12, 2013
uniquelybeccaDec 12, 2013
4
By techiemom64 Blank
HI I am new to this forum, and looking for a neurologist close to me that has experience or expertise in dysautonomia...
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Shay1125Feb 07
motherlovehoustonAug 01, 2012
HeiferlyBlankJun 27, 2009
BluebirdyJun 26, 2009
HeiferlyBlankMay 31, 2009
14
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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RheaAnnFeb 01
2
By SeanMichael24
Hey everyone i am all new to this site and just wanted to introduce myself and ask all you guys for your opinion. My ...
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By Witolaura0630
Hello everybody, Dysautonomia patient here. I am recovering from a big flare up. Can I get a full body massage? I wa...
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carolannaraDec 11, 2013
dancingbelleJul 09, 2013
LivingInHopeDec 01, 2011
Lilkel612Dec 01, 2011
23
By Lynn63 Blank
My daughter has Hyperadrenergic Postural Orthostatic Tachycardia Syndrome and I am just wondering if anyone else has ...
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laurab63Feb 05
3
By serialiller
Hi everyone, Okay... first, some background: I have dysautonomia from whatever combo of ME/CFS (Multiple doctors h...
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laurab63Feb 05
inkwell82Feb 04
2
By ablanken
My daughter was seeing a doctor at Cleveland Clinic who retired. It took a long time to get an appointment there. Cur...
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oklara23Feb 05
PlevarioFeb 05
3
By oklara23
Hello everyone I am a 14 year old female. I was recently admitted to the hospital & got told I have vasovagal syncope...
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By Fkilpatrick
Can anyone recommend a qualified physician/neurologist in the Atlanta, Ga area experienced in treating autonomic dysf...
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sacox88May 28, 2012
HeiferlyBlankOct 28, 2011
26
By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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Zoe5710Jan 26
JLS_23Jan 25
Dorn82Nov 16, 2013
JCBFanClubSep 20, 2013
LivingInHopeJan 02, 2012
8
By Zoe5710 Blank
Hello! Do you have big flare-ups of dysautonomia symptoms? Does anyone have these issues more in cold weather? ...
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By colleen344
Hi - does anyone know if abilify is safe to take with POTs? I have pretty bad anxiety/depression that has been drug r...
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By SyedMashor
I have Ankylosing Spondylitis (AS) or Seronegative Spondyloarthropathy. Suffering for 7 years now. Disease progressio...
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mgam3131Jan 15
KittieBeeJan 11
HeiferlyBlankSep 30, 2011
Loopy_emmSep 27, 2011
GilserJul 19, 2010
6
By larrygav1962 Blank
My daughter was diagnosed with POTS in 2007 and is concerned after reading an internet web article that women with PO...
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mgam3131Jan 15
ts_mommy123Sep 22, 2013
ts_mommy123Sep 22, 2013
ashspenc21Nov 11, 2012
tape49Sep 18, 2012
33
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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Ball123Jan 12
NlgaJan 11
HeiferlyBlankAug 08, 2013
hallie4roseAug 07, 2013
caseytoneyAug 06, 2013
11
By fbrodya Blank
I'm new to the group, and this is my first post. I'm a member of several dysautonomia-related FB pages, and it always...
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