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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

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551343_tn?1350880995
Hi everyone you can introduce yourself on this thread. What brought you here, how long you have been waiting for a diagnosis and a little bit about yourselves. You can read about me on the top of this page. 3 years and 1 month ...
MrsAristotle | Last answer
956292_tn?1334058469
hey everyone Maria had asked if i could give some background on what has been going on with me..here it goes: In November 2002 I saw my dad's doc because i would get headaches off and on and my dad had an anurysm..so he wanted me t...
jibjen | Last answer
Avatar_universal
Hi everyone, I hope you are all well. Not been on the forum in a while. Couple of updates are that my ANA was recently slightly raised and speckled and I'm having it repeated in 2 months or so, and i've been seeing a chiropractor (3 s...
ee849 | Last answer
Avatar_universal
I am a knew member. I have a lot of diagnosed symptoms but no disease diagnosis. When I was a baby I didn't sleep, so I was given meds to relax and sleep. During childhood suffered from anxiety and depression, still do. A yr. ago I over...
Janielss | Posted
Avatar_universal
Here are my symptoms: Headache, ranging from annoyance to migraine, every second of every day for 21 months. Left sided pain, loss of sensation, tingling off and on for over a year. Fatigue Brain Fog Body aches Dizziness L...
Sariberry | Posted
1583304_tn?1296800777
I am a RN who after 6 years finally have crossed over from undiagnosed land to being diagnosed with Lupus and a blood disorder called heterozygous mutation of the MTHFR gene. Now I am happy to know I have a name to the illness cause I t...
OldYeah | Last answer
12292574_tn?1424502084
rpoore (@rpoore) posted · Fri, Feb 20 1:25am · View Hi i am so lost as u can see by my pic i have facial swelling that has been here for 13 weeks now it is not painful except ocassional headaches not many tho i get itchy back of the...
rpoore | Posted
Avatar_universal
Hello, I was wondering if Quix is still around because my situation might be similar to hers. 2002 - Really bad pain radiating from my thoracic spine around my ribs to my front. - Dr. gave me medication to help with pain. Lasted a few ...
HattyJo | Posted
Avatar_universal
here is my story Hi my name is Carol i think i might have MS because im getting crazy symtoms like i start to get a hot flash like im sweating but im not blurry vision body shaking loss of balance and hearing loss or ringing bells all w...
shorty3742 | Last answer
Avatar_universal
Hi all, my doctor seems dead set I have ms however my neuro is saying no, 18 months ago woke up with paralysis of right arm and hand, had pins n needles and numbness.This then continued and never really fully went away, then a few months...
xrds | Last answer
956292_tn?1334058469
Hey everyone, I waned to drop in and say hello. I know it has been WAY too long I am sorry!!!! I hope you are all well. I am ok and hanging in there . Taking my Avonex like a good girl 1x a week and so far - so good. Love my doc...
jibjen | Last answer
551343_tn?1350880995
Just stepping back to say Hi to everyone, i wonder how you were all getting on. I finally got diagnosed with MS and co infection of Lymes ... Erichilosis, by Dr Munro from Breakspeare Clinic. My GP has not argued with this diagnosis. ...
MrsAristotle | Posted
Avatar_universal
Ive read here how so many neuro patients wait years for a diagnosis. This is worrying. I need a diagnosis soon so that I can get well and go back to work. Im self employed and can't afford this !! Its already been six months and my probl...
Peggymousa | Posted
163240_tn?1337907961
It is going on almost 5 yrs now and still no dx. I am tired of fighting and my neuromuscular doctor can bite my butt. I am tired of dealing with him since i get no where. Not even my mom who also sees him likes him. in the past year i ha...
chefaid90 | Last answer
Avatar_universal
Hi, I just joined MedHelp and am looking forward to hearing from some people. Last month I started having tremors in my left leg. They just showed up. If I stand the tremor starts and then they go away when I sit down. A couple of ti...
sing316 | Last answer
Avatar_universal
Hello, I have been reading a lot of the current postings and I feel that maybe I don't belong here. Most of you have had issues that are un-diagnosed for over a 1 yr or more and mine isn't even a week old. Anyways...I am here because I ...
sing316 | Posted
Avatar_universal
Do you suffer with Trigeminal neurlgia? I got my first Trigeminal neuralgia attack last year. It lasted 3 weeks and it was 24/7. I was out of my mind. I went to two dentists. The first one prepped a tooth for a crown....and the pa...
Lethalethal | Last answer
Avatar_universal
My husband is 30 and yesterday had a severe seizure. His body tensed up, and his eyes rolled in the back of his head and then he started compulsiving and spitting up. I believe this was a seizure. After wards he became very combative and...
UnsureMS | Last answer
Avatar_universal
Doctor said not MS but Functional Neurological Disorder? Can anyone help me with this please.
FrenchChick537 | Last answer
Avatar_universal
Hi everyone! Although it seems this place is pretty barren lately, I'm SO glad to have stumbled upon this group and to have had the opportunity to read through several of your stories. Not that I'm glad that so many people are suffering ...
freefallin | Last answer
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