SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
521 members
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TheLightSeekerJul 25, 2013
Me967Jul 10, 2013
freefallinMay 06, 2013
dogmumMay 06, 2013
freefallinMay 06, 2013
280
By MrsAristotle Blank
Hi everyone you can introduce yourself on this thread. What brought you here, how long you have been waiting for ...
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suzsibsAug 27
TheLightSeekerOct 18, 2013
geofranOct 17, 2013
3
By jibjen Blank
Hey everyone, I waned to drop in and say hello. I know it has been WAY too long I am sorry!!!! I hope you are a...
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By MrsAristotle
Just stepping back to say Hi to everyone, i wonder how you were all getting on. I finally got diagnosed with MS and c...
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By Peggymousa
Ive read here how so many neuro patients wait years for a diagnosis. This is worrying. I need a diagnosis soon so tha...
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By chefaid90
It is going on almost 5 yrs now and still no dx. I am tired of fighting and my neuromuscular doctor can bite my butt....
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sing316Nov 01, 2013
DagunOct 31, 2013
2
By sing316 Blank
Hi, I just joined MedHelp and am looking forward to hearing from some people. Last month I started having tremors in...
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By sing316 Blank
Hello, I have been reading a lot of the current postings and I feel that maybe I don't belong here. Most of you have...
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SidestepsSep 23, 2013
dogmumApr 05, 2013
2
By Lethalethal Blank
Do you suffer with Trigeminal neurlgia? I got my first Trigeminal neuralgia attack last year. It lasted 3 weeks a...
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TheLightSeekerSep 03, 2013
UnsureMSSep 03, 2013
TheLightSeekerSep 02, 2013
3
By UnsureMS Blank
My husband is 30 and yesterday had a severe seizure. His body tensed up, and his eyes rolled in the back of his head ...
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TheLightSeekerJun 16, 2013
1
By FrenchChick537 Blank
Doctor said not MS but Functional Neurological Disorder? Can anyone help me with this please.
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dogmumMay 24, 2013
freefallinMay 22, 2013
TheLightSeekerMay 21, 2013
freefallinMay 21, 2013
freefallinMay 21, 2013
7
By freefallin Blank
Hi everyone! Although it seems this place is pretty barren lately, I'm SO glad to have stumbled upon this group and t...
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dogmumMay 06, 2013
TheLightSeekerApr 27, 2013
2
By nonabaronna Blank
This has been going on for months and i am just exhausted at this point .... my fam and friends are ready to take me ...
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dogmumMay 06, 2013
FrenchChick537May 01, 2013
2
By FrenchChick537 Blank
I have had 2 MRI's and my last one was to exclude demyelination, I have also been having they think mini strokes, ...
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By dogmum Blank
Saw these Golden Girls episodes on TV recently and they hit freakishly close to home. So, I looked up the links for t...
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TheLightSeekerApr 04, 2013
arfeApr 03, 2013
2
By arfe Blank
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antib...
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By arfe Blank
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antib...
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TheLightSeekerMar 27, 2013
1
By justme02130 Blank
I have to many problems all at once . It started Jan 2013 , Everything happening on the left side of body . My left s...
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LethalethalMar 18, 2013
TheLightSeekerDec 21, 2012
RicobordDec 20, 2012
SidestepsDec 14, 2012
jibjenDec 12, 2012
5
By Icheese Blank
I spent 2 years trying to get a firm diagnosis - I even spent 5 months on antibiotics for Lyme. I had plenty of MRIs...
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emilyisobelMar 12, 2013
emilyisobelFeb 19, 2013
TheLightSeekerFeb 18, 2013
emilyisobelFeb 18, 2013
TheLightSeekerFeb 16, 2013
9
By emilyisobel Blank
Hi everyone, I'm from the UK and getting increasingly frustrated with our system for getting a diagnosis and I've co...
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TheLightSeekerMar 05, 2013
chefaid90Mar 04, 2013
TheLightSeekerMar 04, 2013
TheLightSeekerMar 04, 2013
chefaid90Mar 03, 2013
8
By chefaid90 Blank
i am hoping the reason its been so quiet here is because everybody got a dx's. wondering were everyone is.
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