SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
527 members
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TheLightSeekerJul 25, 2013
Me967Jul 10, 2013
freefallinMay 06, 2013
dogmumMay 06, 2013
freefallinMay 06, 2013
280
By MrsAristotle Blank
Hi everyone you can introduce yourself on this thread. What brought you here, how long you have been waiting for ...
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By Sariberry
Here are my symptoms: Headache, ranging from annoyance to migraine, every second of every day for 21 months. Le...
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thyroidianFeb 03, 2011
jibjenFeb 02, 2011
bbxxFeb 02, 2011
5
By OldYeah Blank
I am a RN who after 6 years finally have crossed over from undiagnosed land to being diagnosed with Lupus and a blood...
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By rpoore
rpoore (@rpoore) posted · Fri, Feb 20 1:25am · View Hi i am so lost as u can see by my pic i have facial swellin...
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By HattyJo
Hello, I was wondering if Quix is still around because my situation might be similar to hers. 2002 - Really bad pai...
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1
By shorty3742
here is my story Hi my name is Carol i think i might have MS because im getting crazy symtoms like i start to get a ...
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RicobordDec 20, 2012
UnsureMSDec 19, 2012
tjlmooNov 21, 2012
xrdsNov 19, 2012
5
By xrds Blank
Hi all, my doctor seems dead set I have ms however my neuro is saying no, 18 months ago woke up with paralysis of rig...
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sum1zangel302Dec 29, 2014
ee849Apr 23, 2012
MrsAristotleApr 22, 2012
ee849Apr 22, 2012
MrsAristotleApr 22, 2012
6
By ee849 Blank
Hi everyone, I hope you are all well. Not been on the forum in a while. Couple of updates are that my ANA was rece...
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suzsibsAug 27, 2014
TheLightSeekerOct 18, 2013
geofranOct 17, 2013
3
By jibjen Blank
Hey everyone, I waned to drop in and say hello. I know it has been WAY too long I am sorry!!!! I hope you are a...
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By MrsAristotle Blank
Just stepping back to say Hi to everyone, i wonder how you were all getting on. I finally got diagnosed with MS and c...
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By Peggymousa Blank
Ive read here how so many neuro patients wait years for a diagnosis. This is worrying. I need a diagnosis soon so tha...
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TheLightSeekerMar 30, 2014
chefaid90Mar 30, 2014
TheLightSeekerMar 29, 2014
3
By chefaid90 Blank
It is going on almost 5 yrs now and still no dx. I am tired of fighting and my neuromuscular doctor can bite my butt....
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sing316Nov 01, 2013
DagunOct 31, 2013
2
By sing316 Blank
Hi, I just joined MedHelp and am looking forward to hearing from some people. Last month I started having tremors in...
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By sing316 Blank
Hello, I have been reading a lot of the current postings and I feel that maybe I don't belong here. Most of you have...
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SidestepsSep 23, 2013
dogmumApr 05, 2013
2
By Lethalethal Blank
Do you suffer with Trigeminal neurlgia? I got my first Trigeminal neuralgia attack last year. It lasted 3 weeks a...
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TheLightSeekerSep 03, 2013
UnsureMSSep 03, 2013
TheLightSeekerSep 02, 2013
3
By UnsureMS Blank
My husband is 30 and yesterday had a severe seizure. His body tensed up, and his eyes rolled in the back of his head ...
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TheLightSeekerJun 16, 2013
1
By FrenchChick537 Blank
Doctor said not MS but Functional Neurological Disorder? Can anyone help me with this please.
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dogmumMay 24, 2013
freefallinMay 22, 2013
TheLightSeekerMay 21, 2013
freefallinMay 21, 2013
freefallinMay 21, 2013
7
By freefallin Blank
Hi everyone! Although it seems this place is pretty barren lately, I'm SO glad to have stumbled upon this group and t...
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dogmumMay 06, 2013
TheLightSeekerApr 27, 2013
2
By nonabaronna Blank
This has been going on for months and i am just exhausted at this point .... my fam and friends are ready to take me ...
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dogmumMay 06, 2013
FrenchChick537May 01, 2013
2
By FrenchChick537 Blank
I have had 2 MRI's and my last one was to exclude demyelination, I have also been having they think mini strokes, ...
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