SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
Founded by MrsAristotle on October 2, 2009
515 members
515 members
Search this Group:
dogmumOct 08, 2012
techiemom64Sep 11, 2012
MrsAristotleJul 13, 2012
dogmumJul 06, 2012
MrsAristotleJun 16, 2012
11
As so many are interested i thought we could share a thread on everything and anything gluten free. Its such an inter...
278
Hi everyone you can introduce yourself on this thread.
What brought you here, how long you have been waiting for ...
dogmumMay 16
1
By freefallin May 09, 2013
Hi everyone! Although it seems this place is pretty barren lately, I'm SO glad to have stumbled upon this group and t...
dogmumMay 06
NikodicretaApr 27
2
By nonabaronna Apr 23, 2013
This has been going on for months and i am just exhausted at this point .... my fam and friends are ready to take me ...
dogmumMay 06
FrenchChick537May 01
2
By FrenchChick537 Apr 29, 2013
I have had 2 MRI's and my last one was to exclude demyelination,
I have also been having they think mini strokes,
...
By dogmum Apr 19, 2013
Saw these Golden Girls episodes on TV recently and they hit freakishly close to home. So, I looked up the links for t...
dogmumApr 05
1
By Lethalethal Mar 18, 2013
Do you suffer with Trigeminal neurlgia?
I got my first Trigeminal neuralgia attack last year. It lasted 3 weeks a...
NikodicretaApr 04
arfeApr 03
2
By arfe Apr 02, 2013
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antib...
By arfe Apr 03, 2013
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antib...
NikodicretaMar 27
1
By justme02130 Mar 12, 2013
I have to many problems all at once . It started Jan 2013 , Everything happening on the left side of body . My left s...
5
By Icheese Dec 11, 2012
I spent 2 years trying to get a firm diagnosis - I even spent 5 months on antibiotics for Lyme. I had plenty of MRIs...
9
By emilyisobel Feb 14, 2013
Hi everyone,
I'm from the UK and getting increasingly frustrated with our system for getting a diagnosis and I've co...
8
NikodicretaFeb 07
1
By baby_grl_404 Feb 05, 2013
I have been to so many doctors i cant even tell you how many. finally was diagnosed with this big word. I was put on ...
7
By leasam Feb 04, 2013
I am so glad to have come across this group! I have been suffering for almost a year with a number of things and no o...
NikodicretaJan 27
UnsureMSJan 26
2
By chefaid90 Jan 25, 2013
its been awhile. i needed to take a break from pure frustration. I have had it with my neuro and my muscular neuro. m...
UnsureMSJan 23
NikodicretaJan 23
2
By UnsureMS Jan 21, 2013
Hello second family,
First off sorry I haven't posted in awhile, I have been pretty sick for the last four months....
4
By BubblesRN74 Dec 30, 2012
Hello Neuro LimboLanders...just wanted to say how much I happy I am to have found this forum and reading your stories...
4
By jibjen Dec 19, 2012
Hi All -
I went to doc today for my results from sleep study and everything was normal so he is going to start me...
NikodicretaDec 26, 2012
1
By darkangel1313 Dec 25, 2012
I have just joined MedHelp. I am a 43 year old mom of three. I was working full time as a registered nurse until Nove...
NikodicretaDec 22, 2012
tjlmooDec 19, 2012
2
By UnsureMS Dec 19, 2012
Hi My Second Family,
Lately there hasn't been as much activate on this forum. So, I am not sure if anyone will take ...
Recent Activity
Most Popular Trackers
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.
This site complies with the HONcode standard for trustworthy health information: verify here.
Copyright © 1993-2012 Med Help. All rights reserved.
