SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
531 members
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551343 tn?1350880995
TheLightSeekerJul 25, 2013
Me967Jul 10, 2013
freefallinMay 06, 2013
dogmumMay 06, 2013
freefallinMay 06, 2013
280
By MrsAristotle Blank
Hi everyone you can introduce yourself on this thread. What brought you here, how long you have been waiting for ...
956292 tn?1334058469
ApllfAnSep 10, 2015
MrsAristotleNov 23, 2010
helen41Nov 23, 2010
jibjenNov 22, 2010
9
By jibjen Blank
hey everyone Maria had asked if i could give some background on what has been going on with me..here it goes: I...
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Hereshopin777Jun 16, 2015
Ben9878Apr 10, 2015
sum1zangel302Dec 29, 2014
ee849Apr 23, 2012
MrsAristotleApr 22, 2012
8
By ee849 Blank
Hi everyone, I hope you are all well. Not been on the forum in a while. Couple of updates are that my ANA was rece...
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By Janielss Blank
I am a knew member. I have a lot of diagnosed symptoms but no disease diagnosis. When I was a baby I didn't sleep, s...
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By Sariberry Blank
Here are my symptoms: Headache, ranging from annoyance to migraine, every second of every day for 21 months. Le...
1583304 tn?1296800777
neecie1961Mar 04, 2015
thyroidianFeb 03, 2011
jibjenFeb 02, 2011
bbxxFeb 02, 2011
5
By OldYeah Blank
I am a RN who after 6 years finally have crossed over from undiagnosed land to being diagnosed with Lupus and a blood...
12292574 tn?1424502084
By rpoore Blank
rpoore (@rpoore) posted · Fri, Feb 20 1:25am · View Hi i am so lost as u can see by my pic i have facial swellin...
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By HattyJo Blank
Hello, I was wondering if Quix is still around because my situation might be similar to hers. 2002 - Really bad pai...
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TheLightSeekerFeb 02, 2015
1
By shorty3742 Blank
here is my story Hi my name is Carol i think i might have MS because im getting crazy symtoms like i start to get a ...
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shorty3742Jan 21, 2015
RicobordDec 20, 2012
UnsureMSDec 19, 2012
tjlmooNov 21, 2012
xrdsNov 19, 2012
5
By xrds Blank
Hi all, my doctor seems dead set I have ms however my neuro is saying no, 18 months ago woke up with paralysis of rig...
956292 tn?1334058469
suzsibsAug 27, 2014
TheLightSeekerOct 18, 2013
geofranOct 17, 2013
3
By jibjen Blank
Hey everyone, I waned to drop in and say hello. I know it has been WAY too long I am sorry!!!! I hope you are a...
551343 tn?1350880995
By MrsAristotle Blank
Just stepping back to say Hi to everyone, i wonder how you were all getting on. I finally got diagnosed with MS and c...
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By Peggymousa Blank
Ive read here how so many neuro patients wait years for a diagnosis. This is worrying. I need a diagnosis soon so tha...
163240 tn?1337907961
TheLightSeekerMar 30, 2014
chefaid90Mar 30, 2014
TheLightSeekerMar 29, 2014
3
By chefaid90 Blank
It is going on almost 5 yrs now and still no dx. I am tired of fighting and my neuromuscular doctor can bite my butt....
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sing316Nov 01, 2013
DagunOct 31, 2013
2
By sing316 Blank
Hi, I just joined MedHelp and am looking forward to hearing from some people. Last month I started having tremors in...
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By sing316 Blank
Hello, I have been reading a lot of the current postings and I feel that maybe I don't belong here. Most of you have...
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SidestepsSep 23, 2013
dogmumApr 05, 2013
2
By Lethalethal Blank
Do you suffer with Trigeminal neurlgia? I got my first Trigeminal neuralgia attack last year. It lasted 3 weeks a...
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TheLightSeekerSep 03, 2013
UnsureMSSep 03, 2013
TheLightSeekerSep 02, 2013
3
By UnsureMS Blank
My husband is 30 and yesterday had a severe seizure. His body tensed up, and his eyes rolled in the back of his head ...
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TheLightSeekerJun 16, 2013
1
By FrenchChick537 Blank
Doctor said not MS but Functional Neurological Disorder? Can anyone help me with this please.
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dogmumMay 24, 2013
freefallinMay 22, 2013
TheLightSeekerMay 21, 2013
freefallinMay 21, 2013
freefallinMay 21, 2013
7
By freefallin Blank
Hi everyone! Although it seems this place is pretty barren lately, I'm SO glad to have stumbled upon this group and t...
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