SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
Founded by MrsAristotle on October 2, 2009
515 members
515 members
Search this Group:
NikodicretaDec 22, 2012
1
By Gege79 Dec 21, 2012
Hello to all of you! My name is Geneva, aka Gege. I started having numbness, tingling, & crawling senations in both o...
3
By me2348 Dec 11, 2012
In march I had my gallbladder removed, I woke up and knew things werent right. my left side was tingling, my face fel...
By xrds Nov 19, 2012
Hi all, my doctor seems dead set I have ms however my neuro is saying no, 18 months ago woke up with paralysis of rig...
By jibjen Dec 17, 2012
Although I have no immediate connection with anyone involved with the horribe tragedy that took place in Newtown, Con...
3
By LilScout Dec 05, 2012
Hi all
I tried to post in the 'introduction' section a few days ago, but it doesn't seem to have worked. But not a...
SidestepsDec 13, 2012
Jacksmom516Dec 12, 2012
jibjenDec 12, 2012
SidestepsDec 11, 2012
jibjenDec 11, 2012
5
SidestepsDec 11, 2012
NikodicretaDec 11, 2012
2
By Sidesteps Dec 10, 2012
Name Result Normal Range
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tjlmooDec 08, 2012
1
By jibjen Dec 08, 2012
Hey everyone,
I had my sleep study done this week and now just waiting for results. Hopefully will not have to do ...
3
By princessbeforeyou Dec 01, 2012
neurological limbo land fits me to a "T" Thats my dx with no tx. After having survived a roll over that landed me in ...
By UnsureMS Dec 05, 2012
Hello family,
Today is my 7th voice with no voice. During my time with no voice I am learning to listen more. So, ...
NikodicretaNov 29, 2012
tjlmooNov 29, 2012
2
By Nikodicreta Nov 29, 2012
To All.
Dr. Garth Nicolson is coming back to MedHelp next week to answer your Auto-immune related questions.
He's...
UnsureMSNov 29, 2012
tjlmooNov 28, 2012
NikodicretaNov 24, 2012
UnsureMSNov 23, 2012
Mables3Nov 22, 2012
9
Well hello my second family,
I just wanted to see how everyone was doing. Any new developments for anyone stuck he...
4
By jibjen Nov 21, 2012
Hi,
for those of you celebrating this week, have a Happy Thanksgiving!
I hope you have a peaceful day!
Love ...
3
This is my first time posting in this forum! I am trying my best to "survive limbo land" and today wasn't one of my b...
tjlmooNov 19, 2012
NikodicretaNov 19, 2012
NikodicretaNov 19, 2012
NikodicretaNov 19, 2012
UnsureMSNov 08, 2012
6
Hi All,
I know I have been AWOL but I think of you all often..I have been fighting fatigue lately..I wanted to sen...
Hi,
Can someone tell me if spastic hands and feet attributeable to neuro. I mean I have been having some very pai...
panda2526Nov 17, 2012
RicobordNov 17, 2012
panda2526Nov 13, 2012
panda2526Nov 13, 2012
RicobordNov 10, 2012
7
Hello everyone, and I apologize if this has been covered in other posts, but I haven't read through all of them. What...
RicobordNov 17, 2012
tjlmooNov 14, 2012
MrsAristotleNov 11, 2012
tjlmooNov 11, 2012
RicobordNov 10, 2012
5
Hello to ALL my limbo friends & family.
I finally have a brain mri w/wo contrast scheduled for this Wed.Nov.14. It ...
UnsureMSNov 12, 2012
MrsAristotleNov 11, 2012
RicobordNov 10, 2012
UnsureMSNov 08, 2012
jibjenNov 08, 2012
5
Good morning all,
Today after some deep research and posting in the Lyme forum. I want to say I believe I have lym...
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