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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

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5337781 tn?1366615369
This has been going on for months and i am just exhausted at this point .... my fam and friends are ready to take me to the funny farm because i get almost hysterical over the very real sensation of being in an earthquake !!! Pleas help
  Posted
Avatar universal
I have had 2 MRI's and my last one was to exclude demyelination, I have also been having they think mini strokes, I have been off work for 18months now as I cannot function with day to day life as I used to, all this just came on when...
  Posted
2034625 tn?1392646892
Saw these Golden Girls episodes on TV recently and they hit freakishly close to home. So, I looked up the links for them to share with you all here. I guess "limboland" has been around for a long time. Part 1: http://www.youtube.c...
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3114202 tn?1341898812
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antibiotic for ten day the swelling was gone, but ive nontice that on my right calf was still big compare to the left, then i...
  Posted
3114202 tn?1341898812
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antibiotic for ten day the swelling was gone, but ive nontice that on my right calf was still big compare to the left, then i...
  Posted
Avatar universal
I have to many problems all at once . It started Jan 2013 , Everything happening on the left side of body . My left side of ear , has to 2 sounds , hissing and roaring sound , had a ear test , I have Meniere's Disease lost hearing . At ...
  Posted
Avatar universal
I spent 2 years trying to get a firm diagnosis - I even spent 5 months on antibiotics for Lyme. I had plenty of MRIs and blood tests. My MRIs looked non-specific. Finally, I was sent to a local, well respected university hospital. So...
  Posted
Avatar universal
Hi everyone, I'm from the UK and getting increasingly frustrated with our system for getting a diagnosis and I've come to realise that this seems to be a general problem across the world. I'm in my early 40s and female. When I st...
  Posted
163240 tn?1337907961
i am hoping the reason its been so quiet here is because everybody got a dx's. wondering were everyone is.
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4852890 tn?1360045418
I have been to so many doctors i cant even tell you how many. finally was diagnosed with this big word. I was put on lyrica and it made me feel like i wanted to kill myself. dr took me off of it and all thoes feeling went away. i have be...
  Posted
Avatar universal
I am so glad to have come across this group! I have been suffering for almost a year with a number of things and no one has a clue so I find myself in this confusing limbo land. May 2012 I noticed I couldnt smell as well I used to, th...
  Posted
163240 tn?1337907961
its been awhile. i needed to take a break from pure frustration. I have had it with my neuro and my muscular neuro. my neuro wants me wants me to see the mus.neuro but he wants to wait to see me any further until my mom gets a muscle bio...
  Posted
Avatar universal
Hello second family, First off sorry I haven't posted in awhile, I have been pretty sick for the last four months. I think I am finally feeling a bit better, and well life is getting better all the way around. I am gonna get to start ...
  Posted
4083235 tn?1351035852
Hello Neuro LimboLanders...just wanted to say how much I happy I am to have found this forum and reading your stories and symptoms has made me feel like I may not be "crazy" afterall! As a 38 y/o female that has been quite healthy I am ...
  Posted
956292 tn?1334058469
Hi All - I went to doc today for my results from sleep study and everything was normal so he is going to start me on medication to see if it can help with my fatigue. Happy Holidays! I hope you are all well Jib Jen
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4557113 tn?1356462619
I have just joined MedHelp. I am a 43 year old mom of three. I was working full time as a registered nurse until November, 2009. I went out for a simple laprascopic hysterectomy. While out recovering, I began falling. Went to doctor, thi...
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Avatar universal
Hi My Second Family, Lately there hasn't been as much activate on this forum. So, I am not sure if anyone will take time to read this post. Still I had to pray for the members of this forum. If anyone does take time to read it I pray it...
  Posted
4540744 tn?1356152830
Hello to all of you! My name is Geneva, aka Gege. I started having numbness, tingling, & crawling senations in both of my hands, face (starting at my chin) slowly moving up my arms & up my face up to my eyebrows. This was November 19th 2...
  Posted
Avatar universal
In march I had my gallbladder removed, I woke up and knew things werent right. my left side was tingling, my face felt numb, my left eye was very blurry. They said I was fine and released me, about a week later I wound up in the ER becau...
  Posted
956292 tn?1334058469
Although I have no immediate connection with anyone involved with the horribe tragedy that took place in Newtown, Conn. last Friday, other than just being a human being on this earth, my heart hurts. It hurts beyond words. I have wat...
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