SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
530 members
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dogmumMay 06, 2013
FrenchChick537May 01, 2013
2
By FrenchChick537 Blank
I have had 2 MRI's and my last one was to exclude demyelination, I have also been having they think mini strokes, ...
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By dogmum Blank
Saw these Golden Girls episodes on TV recently and they hit freakishly close to home. So, I looked up the links for t...
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TheLightSeekerApr 04, 2013
arfeApr 03, 2013
2
By arfe Blank
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antib...
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By arfe Blank
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antib...
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TheLightSeekerMar 27, 2013
1
By justme02130 Blank
I have to many problems all at once . It started Jan 2013 , Everything happening on the left side of body . My left s...
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LethalethalMar 18, 2013
TheLightSeekerDec 21, 2012
RicobordDec 20, 2012
SidestepsDec 14, 2012
jibjenDec 12, 2012
5
By Icheese Blank
I spent 2 years trying to get a firm diagnosis - I even spent 5 months on antibiotics for Lyme. I had plenty of MRIs...
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emilyisobelMar 12, 2013
emilyisobelFeb 19, 2013
TheLightSeekerFeb 18, 2013
emilyisobelFeb 18, 2013
TheLightSeekerFeb 16, 2013
9
By emilyisobel Blank
Hi everyone, I'm from the UK and getting increasingly frustrated with our system for getting a diagnosis and I've co...
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TheLightSeekerMar 05, 2013
chefaid90Mar 04, 2013
TheLightSeekerMar 04, 2013
TheLightSeekerMar 04, 2013
chefaid90Mar 03, 2013
8
By chefaid90 Blank
i am hoping the reason its been so quiet here is because everybody got a dx's. wondering were everyone is.
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TheLightSeekerFeb 07, 2013
1
By baby_grl_404 Blank
I have been to so many doctors i cant even tell you how many. finally was diagnosed with this big word. I was put on ...
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TheLightSeekerFeb 06, 2013
UnsureMSFeb 06, 2013
leasamFeb 06, 2013
UnsureMSFeb 05, 2013
leasamFeb 05, 2013
7
By leasam Blank
I am so glad to have come across this group! I have been suffering for almost a year with a number of things and no o...
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TheLightSeekerJan 27, 2013
UnsureMSJan 26, 2013
2
By chefaid90 Blank
its been awhile. i needed to take a break from pure frustration. I have had it with my neuro and my muscular neuro. m...
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UnsureMSJan 23, 2013
TheLightSeekerJan 23, 2013
2
By UnsureMS Blank
Hello second family, First off sorry I haven't posted in awhile, I have been pretty sick for the last four months....
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TheLightSeekerJan 04, 2013
TheLightSeekerJan 02, 2013
BubblesRN74Jan 02, 2013
TheLightSeekerJan 01, 2013
4
By BubblesRN74 Blank
Hello Neuro LimboLanders...just wanted to say how much I happy I am to have found this forum and reading your stories...
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TheLightSeekerJan 04, 2013
SidestepsJan 02, 2013
jibjenDec 20, 2012
tjlmooDec 19, 2012
4
By jibjen Blank
Hi All - I went to doc today for my results from sleep study and everything was normal so he is going to start me...
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TheLightSeekerDec 26, 2012
1
By darkangel1313 Blank
I have just joined MedHelp. I am a 43 year old mom of three. I was working full time as a registered nurse until Nove...
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TheLightSeekerDec 22, 2012
tjlmooDec 19, 2012
2
By UnsureMS Blank
Hi My Second Family, Lately there hasn't been as much activate on this forum. So, I am not sure if anyone will take ...
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TheLightSeekerDec 22, 2012
1
By Gege79 Blank
Hello to all of you! My name is Geneva, aka Gege. I started having numbness, tingling, & crawling senations in both o...
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RicobordDec 20, 2012
TheLightSeekerDec 16, 2012
UnsureMSDec 13, 2012
3
By me2348 Blank
In march I had my gallbladder removed, I woke up and knew things werent right. my left side was tingling, my face fel...
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RicobordDec 20, 2012
tjlmooDec 19, 2012
jibjenDec 18, 2012
UnsureMSDec 18, 2012
4
By jibjen Blank
Although I have no immediate connection with anyone involved with the horribe tragedy that took place in Newtown, Con...
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LilScoutDec 15, 2012
UnsureMSDec 13, 2012
TheLightSeekerDec 07, 2012
3
By LilScout Blank
Hi all I tried to post in the 'introduction' section a few days ago, but it doesn't seem to have worked. But not a...
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