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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
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5337781 tn?1366615369
This has been going on for months and i am just exhausted at this point .... my fam and friends are ready to take me to the funny farm be...
2 answers |
Avatar universal
I have had 2 MRI's and my last one was to exclude demyelination, I have also been having they think mini strokes, I have been off work...
2 answers |
2034625 tn?1392646892
Saw these Golden Girls episodes on TV recently and they hit freakishly close to home. So, I looked up the links for them to share with yo...
3114202 tn?1341898812
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antibiotic for ten day th...
2 answers |
3114202 tn?1341898812
last January Ive encountered right leg got swell, i go to my doctor and was diagnosed as cillulitis, the i took antibiotic for ten day th...
Avatar universal
I have to many problems all at once . It started Jan 2013 , Everything happening on the left side of body . My left side of ear , has to ...
1 answer |
Avatar universal
I spent 2 years trying to get a firm diagnosis - I even spent 5 months on antibiotics for Lyme. I had plenty of MRIs and blood tests. M...
5 answers |
Avatar universal
Hi everyone, I'm from the UK and getting increasingly frustrated with our system for getting a diagnosis and I've come to realise that t...
9 answers |
163240 tn?1337907961
i am hoping the reason its been so quiet here is because everybody got a dx's. wondering were everyone is.
8 answers |
4852890 tn?1360045418
I have been to so many doctors i cant even tell you how many. finally was diagnosed with this big word. I was put on lyrica and it made m...
1 answer |
Avatar universal
I am so glad to have come across this group! I have been suffering for almost a year with a number of things and no one has a clue so I f...
7 answers |
163240 tn?1337907961
its been awhile. i needed to take a break from pure frustration. I have had it with my neuro and my muscular neuro. my neuro wants me wan...
2 answers |
Avatar universal
Hello second family, First off sorry I haven't posted in awhile, I have been pretty sick for the last four months. I think I am finall...
2 answers |
4083235 tn?1351035852
Hello Neuro LimboLanders...just wanted to say how much I happy I am to have found this forum and reading your stories and symptoms has ma...
4 answers |
956292 tn?1334058469
Hi All - I went to doc today for my results from sleep study and everything was normal so he is going to start me on medication to se...
4 answers |
4557113 tn?1356462619
I have just joined MedHelp. I am a 43 year old mom of three. I was working full time as a registered nurse until November, 2009. I went o...
1 answer |
Avatar universal
Hi My Second Family, Lately there hasn't been as much activate on this forum. So, I am not sure if anyone will take time to read this po...
2 answers |
4540744 tn?1356152830
Hello to all of you! My name is Geneva, aka Gege. I started having numbness, tingling, & crawling senations in both of my hands, face (st...
1 answer |
Avatar universal
In march I had my gallbladder removed, I woke up and knew things werent right. my left side was tingling, my face felt numb, my left eye ...
3 answers |
956292 tn?1334058469
Although I have no immediate connection with anyone involved with the horribe tragedy that took place in Newtown, Conn. last Friday, othe...
4 answers |
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