SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
521 members
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TheLightSeekerFeb 07, 2013
1
By baby_grl_404 Blank
I have been to so many doctors i cant even tell you how many. finally was diagnosed with this big word. I was put on ...
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TheLightSeekerFeb 06, 2013
UnsureMSFeb 06, 2013
leasamFeb 06, 2013
UnsureMSFeb 05, 2013
leasamFeb 05, 2013
7
By leasam Blank
I am so glad to have come across this group! I have been suffering for almost a year with a number of things and no o...
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TheLightSeekerJan 27, 2013
UnsureMSJan 26, 2013
2
By chefaid90 Blank
its been awhile. i needed to take a break from pure frustration. I have had it with my neuro and my muscular neuro. m...
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UnsureMSJan 23, 2013
TheLightSeekerJan 23, 2013
2
By UnsureMS Blank
Hello second family, First off sorry I haven't posted in awhile, I have been pretty sick for the last four months....
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TheLightSeekerJan 04, 2013
TheLightSeekerJan 02, 2013
BubblesRN74Jan 02, 2013
TheLightSeekerJan 01, 2013
4
By BubblesRN74 Blank
Hello Neuro LimboLanders...just wanted to say how much I happy I am to have found this forum and reading your stories...
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TheLightSeekerJan 04, 2013
SidestepsJan 02, 2013
jibjenDec 20, 2012
tjlmooDec 19, 2012
4
By jibjen Blank
Hi All - I went to doc today for my results from sleep study and everything was normal so he is going to start me...
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TheLightSeekerDec 26, 2012
1
By darkangel1313 Blank
I have just joined MedHelp. I am a 43 year old mom of three. I was working full time as a registered nurse until Nove...
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TheLightSeekerDec 22, 2012
tjlmooDec 19, 2012
2
By UnsureMS Blank
Hi My Second Family, Lately there hasn't been as much activate on this forum. So, I am not sure if anyone will take ...
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TheLightSeekerDec 22, 2012
1
By Gege79 Blank
Hello to all of you! My name is Geneva, aka Gege. I started having numbness, tingling, & crawling senations in both o...
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RicobordDec 20, 2012
TheLightSeekerDec 16, 2012
UnsureMSDec 13, 2012
3
By me2348 Blank
In march I had my gallbladder removed, I woke up and knew things werent right. my left side was tingling, my face fel...
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RicobordDec 20, 2012
UnsureMSDec 19, 2012
tjlmooNov 21, 2012
xrdsNov 19, 2012
4
By xrds Blank
Hi all, my doctor seems dead set I have ms however my neuro is saying no, 18 months ago woke up with paralysis of rig...
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RicobordDec 20, 2012
tjlmooDec 19, 2012
jibjenDec 18, 2012
UnsureMSDec 18, 2012
4
By jibjen Blank
Although I have no immediate connection with anyone involved with the horribe tragedy that took place in Newtown, Con...
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LilScoutDec 15, 2012
UnsureMSDec 13, 2012
TheLightSeekerDec 07, 2012
3
By LilScout Blank
Hi all I tried to post in the 'introduction' section a few days ago, but it doesn't seem to have worked. But not a...
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SidestepsDec 13, 2012
Jacksmom516Dec 12, 2012
jibjenDec 12, 2012
SidestepsDec 11, 2012
jibjenDec 11, 2012
5
By Sidesteps Blank
I am sorry I haven't been around as much! I hope everyone is as well as they can be...or BETTER! We just complete...
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SidestepsDec 11, 2012
TheLightSeekerDec 11, 2012
2
By Sidesteps Blank
Name Result Normal Range ...
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tjlmooDec 08, 2012
1
By jibjen Blank
Hey everyone, I had my sleep study done this week and now just waiting for results. Hopefully will not have to do ...
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UnsureMSDec 05, 2012
princessbeforeyouDec 02, 2012
tjlmooDec 01, 2012
3
By princessbeforeyou Blank
neurological limbo land fits me to a "T" Thats my dx with no tx. After having survived a roll over that landed me in ...
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By UnsureMS Blank
Hello family, Today is my 7th voice with no voice. During my time with no voice I am learning to listen more. So, ...
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TheLightSeekerNov 29, 2012
tjlmooNov 29, 2012
2
By TheLightSeeker Blank
To All. Dr. Garth Nicolson is coming back to MedHelp next week to answer your Auto-immune related questions. He's...
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UnsureMSNov 29, 2012
tjlmooNov 28, 2012
TheLightSeekerNov 24, 2012
UnsureMSNov 23, 2012
Mables3Nov 22, 2012
9
By UnsureMS Blank
Well hello my second family, I just wanted to see how everyone was doing. Any new developments for anyone stuck he...
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