Last June my mother had a total gastrectomy for stage IV gastric cancer. For about 2 weeks, she was able to eat food in addition to feeding tube feedings. After that, she began vomiting anything she ingested. She completed 6 weeks of radiation (including 6 days of chemotherapy) about 2 months ago and testing has showed no cancer remaining, although she has a "bump" on her lumbar spine which will be biopsied (the doctor thinks it may only be related to arthritis). THE DOCTOR HAS NO IDEA WHY SHE CANNOT EVEN KEEP A SIP OF WATER DOWN. He thinks maybe some of her intestines are pushing food in one direction, while other parts are pushing food in a different direction. The reason this makes no sense to me is because she recently had her esophagus stretched and was able to eat for about 1-1/2 days afterward. The person who did the procedure said the balloon went right down, but he could see her esophagus close up again. (she had her esophagus stretched once before with the same result). A barium swallow (actually, it was put into her feeding tube), performed the next day, showed no blockage. Later in the day after the barium test, she was sick and no longer able to eat or drink without throwing up. Has anyone, anywhere, ever heard of something like this happening or, better yet, does anyone know how such a thing may be treated? The doctor wants to do exploratory surgery and perhaps "reconnect" her. I don't know how she would survive it -- she is dehydrated and wasting away before our very eyes.
A couple of other issues... 1) almost 6 months after surgery, shouldn't she be getting vitamin B12 shots? 2) her feeding tube keeps leaking a yellow liquid. What is that and how can it be stopped? Her doctor doesn't seem to address it. The tube had actually come out a couple times and had to be sewn back in. She gets so sick when she is fed, that she is hardly getting 500 calories a day.
She lives near Pittsburgh, PA and is supposedly seeing the top doctor there, but we are losing faith quickly. Referrals, recommendation, suggestions... anything would be appreciated before she winds up in surgery again.