ALS Community
Questions I need to ask my neurologist
About This Community:

This patient support community is for discussions relating to Amyotrophic Lateral Sclerosis (ALS).

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Questions I need to ask my neurologist

I currently have no diagnosis. (Almost 2yrs since symptoms began)I have an appoitment with a new Neuro next week.

MY ?? ->I need some ideas on questions to ask so that I can get a "straight answer"... My current neuro/muscular specialist and neurologist seem to be "dodging" my questions about motor neuron disease. They both say "I don't know" and "watch and wait.

I'm not sure what to think, but when researching, my symptoms do kind of line up with PLS, not sure about ALS.

Symptoms= Tingling and twitching in all extremeties, face, scalp and tongue, arms and legs feel "heavy", poor motor skills, dropping things frequently and falling about once a week.

Tests ran= MRIs =clear
EMG/NCS= "nerve damage" (idk to what extent)
LOTS of labs= all within normal range

What has been ruled out= Diabetes, Lupus, MS
Various vitamin defeciencies, GB, Lyme disease,fibromyalgia, CFS, BFS...I'm drawing a blank on the others, I know there are more
1874425_tn?1321976260
**correction**

I guess I *do* have a diagnosis (although I think it is kind of a BS one) =Idiopathic Multiplex Neuropathy
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
ALS Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank