I currently have no diagnosis. (Almost 2yrs since symptoms began)I have an appoitment with a new Neuro next week.
MY ?? ->I need some ideas on questions to ask so that I can get a "straight answer"... My current neuro/muscular specialist and neurologist seem to be "dodging" my questions about motor neuron disease. They both say "I don't know" and "watch and wait.
I'm not sure what to think, but when researching, my symptoms do kind of line up with PLS, not sure about ALS.
Symptoms= Tingling and twitching in all extremeties, face, scalp and tongue, arms and legs feel "heavy", poor motor skills, dropping things frequently and falling about once a week.
Tests ran= MRIs =clear
EMG/NCS= "nerve damage" (idk to what extent)
LOTS of labs= all within normal range
What has been ruled out= Diabetes, Lupus, MS
Various vitamin defeciencies, GB, Lyme disease,fibromyalgia, CFS, BFS...I'm drawing a blank on the others, I know there are more
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.