Arteriovenous Malformation (AVM) Community
Long-term pain management
About This Community:

WELCOME TO THE ARTERIOVENOUS MALFORMATION (AVM) COMMUNITY: This Patient-To-Patient Community is for discussions relating to Arteriovenous Malformations, which are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. They are comprised of snarled tangles of arteries and veins.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Long-term pain management

My paternal grandfather, uncle, and father have all had AVMs, so it's in the family. I was born with a very large AVM on the bottom of my left foot. At birth it was slightly smaller than an egg. At nine months, they operated and attempted to remove it and failed, so when I was two years old, they tried again and failed.
There is another large AVM in my left knee, one in my right lower abdomen, one in my right jaw, and one on the back of my skull on the right hand side. During puberty, the AVMs in my left leg  and jaw flared and were very painful. This culminated in several doctor's visits, including a trip to the Mayo Clinic. We were told that there was nothing to be done about my left foot because the AVM had grown so large it was inoperable. At the time, we were also told there was little to be done about the AVM in my knee.
I'm 23 years old now, female, and have  been living without too many problems until these past three months. Again, the AVMs in my left leg have become increasingly painful, to the point where I have difficulty walking sometimes. The AVM in my left foot also seems to have spread up to my ankle. The worst times are in the morning, when I first get up, but any time after I stand from a period of inactivity is also painful. They also ache dully when I simply sit. I've tried a pressure wrap for them, but to little effect. I'm not sure if it's activity or inactivity that's making them worse. I've been doing a serious yoga regimen since March of 2012, and my commute to work is about a mile walk. I don't run or do any cardio.
This is all complicated by the fact that I'm currently living in Japan. What I'm asking is if anyone has any suggestions for long-term pain management.  I have a limited supply of pain killers from the States, and I have over-the-counter pain killers from Japanese pharmacies.  Other than that, I would dearly love to hear any suggestions.  Thank you very much.
LJapan
351246_tn?1379685732
Hi!
Since you are not in your own country, you can visit a local doctor and ask for a prescription of pain killers. These can be NSAIDs or any other drug. Fentanyl patch can be tried for long term pain relief. Other than this wear comfortable shoes. You can also wear compression stockings. These help push blood out of the AVM and helps dull the pain. Take care!
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Arteriovenous Malformation (AVM) Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank