Aa
please help !! Has the doctors Misdiagnosed my son ??
I want a moms/ dads opinion about what you think, does it sound like a child that is
Suffering from autism?? Please be honest but kind!
He is now 7 years old.
I started this journey with my son when he was about 8 months that's when everything started to fall apart for him/us. (He was such a handful). I couldn't get him to sleep for nothing. I remember I took him to the hospital after he had been up for 36 hours. I beg them to give him something to sleep. That's when he had his first sleep test done. The test didn't help much.
When he was about 2 years old that's when he got diagnosed with ADD, his doctor put him on clonidine and Ritalin. He did well on Clonidine but the Ritalin didn't help it made him worse. So after several months we discontinued Ritalin. He was referred to a neurologist soon after he had his first seizure. He was diagnosed with Absence seizures and went on depokote sprinkles. His behaviors improved greatly.
His doctor also referred us to a behavior specialist, that's how I even fount out about SIP/ SPD. SENSORY INTERGRATION DISORDER! He went to get evaluated and that was when he got diagnosed with SIP/ SPD. By this time he was doing fairly well although he was so far delayed in all aspects of his life. The behavior specialist talked me into enrolling him into a "special school" for children under the age of five where he got speech, O.T, and they worked on behaviors and work very intensive with getting him to be social.
I think he has friends, but (@ Times) he doesn't have much interest in others. He has a best friend that is autistic (he cares for her so much this is the only child Micah has ever came home and really talked about). Transition is really hard for him, and leaving mommy to go to school is really hard as well. (This will set him off) He seems to like his teacher at times but at other times he says he hates him, that he wants his old class back. His behaviors are very UN consistent, I never know what his moods are going to be like nor do I know what he will do next. Meltdowns can happen anywhere, anytime, with whomever watching. He gets to a point where he can't be calmed down, you just have to be there and make sure he is safe. He is a runner he will run from me in a second if he is some place that is not familiar or if there is a lot of noises and a crowed. Not always the running just seems to come and go. Now at school he is a flight risk, he will run into traffic if he can get away so the staff and teachers must keep a constant watch on him.
He had to repeat 1st grade this year. He went through 4 different classes before he landed into his new classroom. Which is the behavior modification classroom. He got suspended 2 weeks ago for blacking his principal's eye while they restrained him. The school has had to restrain him, they have had me come pick him up and the list goes on. Seems nothing has clicked with him just yet. That's where we are this school year.
Summer he is more controllable he is with me because the last few day cares kicked him out. So I keep him at home and we stay on a school schedule we work on schoolwork for three hours a day. We play and we try and go out in public at least once a week, ect.
Sleep has always been a problem, not sure why but he can't get himself to sleep, he still want to sleep in my bed (With me), has never slept through the night all by himself with or without medication.
I feel very sorry for him he doesn’t seem happy and when he does it doesn’t last long. At times he seems to be in his own world. He can go from happy to angry in a matter of seconds. He can become very silly (fake) then he can be mean. There is no pattern on his moods he can be silly, mad, angry, mean, sweet, sad all in a matter of minutes. His meltdowns last anywhere from 30 minutes to hours over really nothing, or very minor things. He is developmentally delayed he is on about a four in a half to five year old level. He cries and screams a lot he repeats words over and over.
Popcorn,popcorn,popcorn, he won’t stop he will scream it louder and louder. Also it seems as if he doesn’t get what I’m telling him. For example, If I ask him to get his shoes on and don’t follow him to make sure he is doing it it’s almost as if I never told him to put his shoes on. (He forgets). He gets stuck on certain foods. Chicken nuggets or buttered toast and that’s all he will eat he refuses to eat anything else. His food has to be a certain temperature or he won’t eat it.
His doctor wants to up his seroquel (on 200mg now up it to 300mg) and depokote (2 125mg in the am 3 at bedtime now up it to 3in the am and 4 at bedtime), and start him back on lithium. I don't know what to do; I know I have to do something I'm just not sure that this is the right thing to do. We tried these medications for nearly 2 years and didn't see much of a change. He has been diagnosed with OCD, and PDD, SID, Bipolar disorder. Also almost all doctors have said he has Autistic tendencies.
Please let me know your thoughts, ideas, things that might work, anything will be helpful!
Rozanna
Suffering from autism?? Please be honest but kind!
He is now 7 years old.
I started this journey with my son when he was about 8 months that's when everything started to fall apart for him/us. (He was such a handful). I couldn't get him to sleep for nothing. I remember I took him to the hospital after he had been up for 36 hours. I beg them to give him something to sleep. That's when he had his first sleep test done. The test didn't help much.
When he was about 2 years old that's when he got diagnosed with ADD, his doctor put him on clonidine and Ritalin. He did well on Clonidine but the Ritalin didn't help it made him worse. So after several months we discontinued Ritalin. He was referred to a neurologist soon after he had his first seizure. He was diagnosed with Absence seizures and went on depokote sprinkles. His behaviors improved greatly.
His doctor also referred us to a behavior specialist, that's how I even fount out about SIP/ SPD. SENSORY INTERGRATION DISORDER! He went to get evaluated and that was when he got diagnosed with SIP/ SPD. By this time he was doing fairly well although he was so far delayed in all aspects of his life. The behavior specialist talked me into enrolling him into a "special school" for children under the age of five where he got speech, O.T, and they worked on behaviors and work very intensive with getting him to be social.
I think he has friends, but (@ Times) he doesn't have much interest in others. He has a best friend that is autistic (he cares for her so much this is the only child Micah has ever came home and really talked about). Transition is really hard for him, and leaving mommy to go to school is really hard as well. (This will set him off) He seems to like his teacher at times but at other times he says he hates him, that he wants his old class back. His behaviors are very UN consistent, I never know what his moods are going to be like nor do I know what he will do next. Meltdowns can happen anywhere, anytime, with whomever watching. He gets to a point where he can't be calmed down, you just have to be there and make sure he is safe. He is a runner he will run from me in a second if he is some place that is not familiar or if there is a lot of noises and a crowed. Not always the running just seems to come and go. Now at school he is a flight risk, he will run into traffic if he can get away so the staff and teachers must keep a constant watch on him.
He had to repeat 1st grade this year. He went through 4 different classes before he landed into his new classroom. Which is the behavior modification classroom. He got suspended 2 weeks ago for blacking his principal's eye while they restrained him. The school has had to restrain him, they have had me come pick him up and the list goes on. Seems nothing has clicked with him just yet. That's where we are this school year.
Summer he is more controllable he is with me because the last few day cares kicked him out. So I keep him at home and we stay on a school schedule we work on schoolwork for three hours a day. We play and we try and go out in public at least once a week, ect.
Sleep has always been a problem, not sure why but he can't get himself to sleep, he still want to sleep in my bed (With me), has never slept through the night all by himself with or without medication.
I feel very sorry for him he doesn’t seem happy and when he does it doesn’t last long. At times he seems to be in his own world. He can go from happy to angry in a matter of seconds. He can become very silly (fake) then he can be mean. There is no pattern on his moods he can be silly, mad, angry, mean, sweet, sad all in a matter of minutes. His meltdowns last anywhere from 30 minutes to hours over really nothing, or very minor things. He is developmentally delayed he is on about a four in a half to five year old level. He cries and screams a lot he repeats words over and over.
Popcorn,popcorn,popcorn, he won’t stop he will scream it louder and louder. Also it seems as if he doesn’t get what I’m telling him. For example, If I ask him to get his shoes on and don’t follow him to make sure he is doing it it’s almost as if I never told him to put his shoes on. (He forgets). He gets stuck on certain foods. Chicken nuggets or buttered toast and that’s all he will eat he refuses to eat anything else. His food has to be a certain temperature or he won’t eat it.
His doctor wants to up his seroquel (on 200mg now up it to 300mg) and depokote (2 125mg in the am 3 at bedtime now up it to 3in the am and 4 at bedtime), and start him back on lithium. I don't know what to do; I know I have to do something I'm just not sure that this is the right thing to do. We tried these medications for nearly 2 years and didn't see much of a change. He has been diagnosed with OCD, and PDD, SID, Bipolar disorder. Also almost all doctors have said he has Autistic tendencies.
Please let me know your thoughts, ideas, things that might work, anything will be helpful!
Rozanna
FOr right now.. just be SUPER glad that you have founda doctor that is taking care of your son in such a manner that most people would rip chicken heads off for. your doc might have an idea .. but she doesnt know what your son has. until she can do further tests. you are moving in the right direction..
dont start worrying right now.. its not going to do you any good.. sounds like you have a great doc.. wworrying does nothing but stress you out.. and i am sure.. that no matter what is going on with your son.. you will still love him the same.. i mean.. you know.. whats the use in worrying.. i am sure that all will be just fine.. those doorknob things. i want to take them home. i dont like them..lol.. they look like cervixes.. and i find them offensive..LOL.
you are doing great.. awesome job mom for getting him to a great doc.. !!!
dont start worrying right now.. its not going to do you any good.. sounds like you have a great doc.. wworrying does nothing but stress you out.. and i am sure.. that no matter what is going on with your son.. you will still love him the same.. i mean.. you know.. whats the use in worrying.. i am sure that all will be just fine.. those doorknob things. i want to take them home. i dont like them..lol.. they look like cervixes.. and i find them offensive..LOL.
you are doing great.. awesome job mom for getting him to a great doc.. !!!
Well I left the neurologist office even more confused. The neurologist wants to test him for fragile X, or something like that. Are you familiar with that? She said that a lot of his behavior problems sound like they are neurological problems instead of BP, but its to soon to tell. She wants to give him a 72-hour EEG test, because the test came back abnormal. (Something about the back of the brain was abnormal for his age) she also wants to test him for food allergies, and check his chromosomes. I hope this is making since.
The whole time we were there Micah (my son) was spinning around in circles, she asked him to sit down several times but he wouldn’t. She asked him to look at her and he wouldn’t. She was trying to get him to follow her finger, I think he really tried but he couldn’t. You know those things you place behind a door so the doorknob wont go through the wall? He was spinning that (I have never seen him enjoy doing that so much) he seemed to be intrigued by watching it spin. She asked me if I had heard of AS. I told her I had been looking into it because it does sound so much like him. she said all of this will take time but she is really wanting to work with him and figure out what is really causing his problems.
I hope this all makes since to you!!
Thanks,
Roseanna
Because these days.. docs are either inundated with so many patients.. they no longer have patience. it can be frustrating trying to find one that gives two cents. OR.. the doc you are going to see is a *****.. there are lots of those.
. and besides... you know more than any other doctor.. you are his mom.
this is going to sound INCREDIBLY strange...but.. im gonna say it anyway.
i have a collection of pens.. the my fetish is medical pens.. because they are all so different.. i have about 300. i take at least 20 to school with me everyday.. and its so hard to decide.. which pen to use..lol.. all my pens have a special case.. i love my pens.
I play with magnets everyday.. my bracelet .. is a magnet.. everything about magnets. i love. must have my magnets.
i have a collection of chap stick.. over 50. whenever i go anywhere.. ( like a store) i MUST see what they have . at the current time. my favorite is Apocathary from walgreens.
if i do not have these things.. i go NUTS. if i am in a rush.. and SOMEHOW.. i do not have in my possession, chapstick.. magnets..OR.. my pens.. i will drive back home to get them.. i cannot just stop and buy one.. that wouldnt be right.. so its back home i go. then back to school. its worth it.. because well.. it just is.
im really sensitive to color though.. ifs it is white.. its alright.. i cant stand black. and the other colors .. ew. i do however.. like bright flashing lights..i once sat at a yellow flashing light for some time. it was almsot like i could hear it working.. it was so cool.
see.. some people reading this might think me strange. hey.. i know i am . doesnt matter.. the mind of a person with aspergers.. or autism.. is sheltered.. and very secretive. i feel kind oof ecky for telling anyone about my pen/magnet/chapstick thing. in a way.. i feel like its a gift. i dont know when it all started. i cant tell you why.. i just know.. that i think its cool. and without those things. i would go nuts.. i just would. besides.. chapstick is good for you .you write with pens.. ( no one touches my pens) and magnets are really fun.
anyway..lol. take care.
. and besides... you know more than any other doctor.. you are his mom.
this is going to sound INCREDIBLY strange...but.. im gonna say it anyway.
i have a collection of pens.. the my fetish is medical pens.. because they are all so different.. i have about 300. i take at least 20 to school with me everyday.. and its so hard to decide.. which pen to use..lol.. all my pens have a special case.. i love my pens.
I play with magnets everyday.. my bracelet .. is a magnet.. everything about magnets. i love. must have my magnets.
i have a collection of chap stick.. over 50. whenever i go anywhere.. ( like a store) i MUST see what they have . at the current time. my favorite is Apocathary from walgreens.
if i do not have these things.. i go NUTS. if i am in a rush.. and SOMEHOW.. i do not have in my possession, chapstick.. magnets..OR.. my pens.. i will drive back home to get them.. i cannot just stop and buy one.. that wouldnt be right.. so its back home i go. then back to school. its worth it.. because well.. it just is.
im really sensitive to color though.. ifs it is white.. its alright.. i cant stand black. and the other colors .. ew. i do however.. like bright flashing lights..i once sat at a yellow flashing light for some time. it was almsot like i could hear it working.. it was so cool.
see.. some people reading this might think me strange. hey.. i know i am . doesnt matter.. the mind of a person with aspergers.. or autism.. is sheltered.. and very secretive. i feel kind oof ecky for telling anyone about my pen/magnet/chapstick thing. in a way.. i feel like its a gift. i dont know when it all started. i cant tell you why.. i just know.. that i think its cool. and without those things. i would go nuts.. i just would. besides.. chapstick is good for you .you write with pens.. ( no one touches my pens) and magnets are really fun.
anyway..lol. take care.
My son and I do have a great bonds. He’s a real mommy’s boy. I have gotten past what the world thinks of my son. When I say that I mean I don’t care what people think of him if he wants to spin around or do jumping jacks in the middle of the store as long as everyone is safe I let him do that. I have came to understand that sometimes he just don't get what people are asking out of him, its not he doesn't want to please others he just doesn't understand what they are asking of him.
I’ll be the first to admit I didn’t plan to have to learn to handle a child with special needs. But I have came to except whatever I have to do to get him trough all of this. I love him so much.
I understand what you mean by the communication part and I can accept that. I have learned so much from him just by sitting back and watching him. I’m very thankful for your time that you have gave me.. Also the whole school thing i felt that way as well, I want to see what you would say about it though..
About the lining up thing he use to do that a lot, when he was about 2 years old he had to have everything yellow. And he would line up everything, but I would fuss about it and I would put things up when he did line them up. But now it’s more he needs ten of the same pens hanging from his pants, or he need three chap sticks in his pocket. I also want to say he does this thing when he is really excited (it almost seems fake) but he is really happy. He almost acts like a two year old and pats his legs. Does that sound weird? Also when i read to him its like he doesn't get what we just read about he gets stuck on certain parts of the story but as far as listing to the story we haven't really gotten that far. but its a work in progress...
He loves playing with magnets it really surprised me when you said that because he loves anything that is magnetic. He also loves smelly stickers. He seems to like to have a lot of one certain item. Pens, paper, stickers, and anything that glows or changes colors. We go tomorrow to get his test results from his EEG test. Also I’m going to talk to the neurologist to see what she thinks. This will be the first time I have met her because I had just realized the old neurologist wasn’t a child neurologist so he had no clue about what I was talking about. So why would a doctor diagnoses my son with PDD but not explain what it means to me?
I’ll be the first to admit I didn’t plan to have to learn to handle a child with special needs. But I have came to except whatever I have to do to get him trough all of this. I love him so much.
I understand what you mean by the communication part and I can accept that. I have learned so much from him just by sitting back and watching him. I’m very thankful for your time that you have gave me.. Also the whole school thing i felt that way as well, I want to see what you would say about it though..
About the lining up thing he use to do that a lot, when he was about 2 years old he had to have everything yellow. And he would line up everything, but I would fuss about it and I would put things up when he did line them up. But now it’s more he needs ten of the same pens hanging from his pants, or he need three chap sticks in his pocket. I also want to say he does this thing when he is really excited (it almost seems fake) but he is really happy. He almost acts like a two year old and pats his legs. Does that sound weird? Also when i read to him its like he doesn't get what we just read about he gets stuck on certain parts of the story but as far as listing to the story we haven't really gotten that far. but its a work in progress...
He loves playing with magnets it really surprised me when you said that because he loves anything that is magnetic. He also loves smelly stickers. He seems to like to have a lot of one certain item. Pens, paper, stickers, and anything that glows or changes colors. We go tomorrow to get his test results from his EEG test. Also I’m going to talk to the neurologist to see what she thinks. This will be the first time I have met her because I had just realized the old neurologist wasn’t a child neurologist so he had no clue about what I was talking about. So why would a doctor diagnoses my son with PDD but not explain what it means to me?
OMG thank you so much this will help me greatly!
I hope you know how much this means to me again thanks, and
I hope to hear from you later..
Rozanna
I hope you know how much this means to me again thanks, and
I hope to hear from you later..
Rozanna
My out look on what I want for my son hasn’t changed no matter what disorders we are faced with I will always do what I know to do for him and if I have no idea I will search until I find the answers. In my heart I don’t think he is Bipolar I think he does have Asperser syndrome I know he has a lot of the signs at the least. No matter what he has I never want to use that as an excuse I want him to learn to deal with people I don’t want to shut him off from the world because I know that one day he will be faced to deal with others and I know it will be much easier on him to learn how to deal with kids and other adult now than ten years from now. Another big thing is I don’t want to shelter him to the point where he feels like he is dependent on me the rest of his life.
Yes I have committed to saving my son I fear that if I don’t get him help now and
Figure out what is really going on with him that his future won’t be what it could be.
I left my career a little over three years to be available to my son 24 hours a day.
Yes please give me any info on the whole food subject you have…. Rozanna @ Comcast . net is my email address.
I have a few questions I want your opinion on this. I know you’re not a doctor but you have lived with these problems and have learned to like yourself and that is what I want to help my son do.
1st question is my son seems to be able to handle the behavior classroom much better than he handled a regular classroom. Should I keep him in this room? There are only 4 other students in this classroom, but he seems to be happy and OMG his grades are all A’s which is a big change. His behavior is managed much better than when he wasn’t in this classroom, the staff at the school hasn’t had to restrain him at all since being in this class. Should I only allow him to do his 6 months that the school has made him do? I have kind of brought this up in front of him to get his view on this and he doesn’t seem to understand what I’m saying. It almost seems to me that he has finally fount a place where he feels comfortable and safe. His teacher told me by the end of this year he would know his multiplications because he is way ahead of what he should be doing in math. His handwriting is much better as well. So my question is should I let him stay in this classroom or should I make him go to regular Ed since he can do the work? Or does it even matter, as long as he is doing well?
2nd question is how do I get him to understand the danger of running you know I have done roll play with him I have talked to him, doctors, and therapist have talked to him but he doesn’t yet get the concept of running in front of cars could seriously hurt him even kill him. How do I get him to understand this??
3rd question is how do I get him to talk in a conversation. That is one thing I truly want to do is sit and talk with him about something without him losing interest or not staying on the subject that we had started to talk about.
These are some of the major things that I want to find out how to fix I think these are the most important. If you can help me out I would greatly appreciate it .
Thanks,
Rozanna
Yes I have committed to saving my son I fear that if I don’t get him help now and
Figure out what is really going on with him that his future won’t be what it could be.
I left my career a little over three years to be available to my son 24 hours a day.
Yes please give me any info on the whole food subject you have…. Rozanna @ Comcast . net is my email address.
I have a few questions I want your opinion on this. I know you’re not a doctor but you have lived with these problems and have learned to like yourself and that is what I want to help my son do.
1st question is my son seems to be able to handle the behavior classroom much better than he handled a regular classroom. Should I keep him in this room? There are only 4 other students in this classroom, but he seems to be happy and OMG his grades are all A’s which is a big change. His behavior is managed much better than when he wasn’t in this classroom, the staff at the school hasn’t had to restrain him at all since being in this class. Should I only allow him to do his 6 months that the school has made him do? I have kind of brought this up in front of him to get his view on this and he doesn’t seem to understand what I’m saying. It almost seems to me that he has finally fount a place where he feels comfortable and safe. His teacher told me by the end of this year he would know his multiplications because he is way ahead of what he should be doing in math. His handwriting is much better as well. So my question is should I let him stay in this classroom or should I make him go to regular Ed since he can do the work? Or does it even matter, as long as he is doing well?
2nd question is how do I get him to understand the danger of running you know I have done roll play with him I have talked to him, doctors, and therapist have talked to him but he doesn’t yet get the concept of running in front of cars could seriously hurt him even kill him. How do I get him to understand this??
3rd question is how do I get him to talk in a conversation. That is one thing I truly want to do is sit and talk with him about something without him losing interest or not staying on the subject that we had started to talk about.
These are some of the major things that I want to find out how to fix I think these are the most important. If you can help me out I would greatly appreciate it .
Thanks,
Rozanna
well. i woudnt start changing his diet until things are a bit more calm.. when all is not so busy.. start little by little.. he isnt going to starve to death. he will get hungry.. and he will eventually eat.... i had a friend who had the same problem...
do you have time to do this? are you fully committed to doing this!! thats a hard question for many people.. and we all slip .. alot. i cant tell you how many times in the past that i have cheated and ate something i should not have.. then regretted it later.. when i was a child.. my mother fed me only heathy food.. there were special occasions where i got maybe some carob.. even chocolate... soemtimes. i got to drink cows milk.. instead of goat milk....but not very often.. i was very healthy.. and then when i left home.. i was eating ****.. just ****.. man.. i should have NEVER of done that..lol.. i really hurt my body.
if you would like.. i can give you my cell. i can talk to you about it.. give you some really awesome starter recipes... or.. i can email them to you .. i have this really great recipe for chicken nuggets.. and they are awesome.. no **** in them.. dont worry. its not all twigs and berries..lol..
he will eat it.. mine do .. my friends severely autistic son does.. . i do .. my dh even eats it.. and h e has lost 15 pounds.. and sleeps better.. and he tells me all the time how good he feels.. so.. it cannot be all that bad..lol.
take care.. hope to hear from you soon.
sandra
do you have time to do this? are you fully committed to doing this!! thats a hard question for many people.. and we all slip .. alot. i cant tell you how many times in the past that i have cheated and ate something i should not have.. then regretted it later.. when i was a child.. my mother fed me only heathy food.. there were special occasions where i got maybe some carob.. even chocolate... soemtimes. i got to drink cows milk.. instead of goat milk....but not very often.. i was very healthy.. and then when i left home.. i was eating ****.. just ****.. man.. i should have NEVER of done that..lol.. i really hurt my body.
if you would like.. i can give you my cell. i can talk to you about it.. give you some really awesome starter recipes... or.. i can email them to you .. i have this really great recipe for chicken nuggets.. and they are awesome.. no **** in them.. dont worry. its not all twigs and berries..lol..
he will eat it.. mine do .. my friends severely autistic son does.. . i do .. my dh even eats it.. and h e has lost 15 pounds.. and sleeps better.. and he tells me all the time how good he feels.. so.. it cannot be all that bad..lol.
take care.. hope to hear from you soon.
sandra
So this probably sounds really stupid but how do I get him to eat different things.
He will kill a person over food. He will scream and hit and really hurt us over his food. So how do I get him to try new foods? I know his diet ***** really bad. But he will not eat anything else I have tried getting him to eat new things its almost like he can’t help his food problems in his mind these are like his safe foods, that give him energy I know it sounds weird but it’s the truth he will say things like if I don’t eat this I won’t have any energy. Also he will repeat what he wants over and over until he gets it, or he will try and fix it himself. So what should I do about getting him to try new foods? Also he goes for an EEG test tomorrow…
He will kill a person over food. He will scream and hit and really hurt us over his food. So how do I get him to try new foods? I know his diet ***** really bad. But he will not eat anything else I have tried getting him to eat new things its almost like he can’t help his food problems in his mind these are like his safe foods, that give him energy I know it sounds weird but it’s the truth he will say things like if I don’t eat this I won’t have any energy. Also he will repeat what he wants over and over until he gets it, or he will try and fix it himself. So what should I do about getting him to try new foods? Also he goes for an EEG test tomorrow…
sound likehe does have autistic tendancies.. to me.. however.. i have to say.. and please do not take this wrong.. but.. his diet really sucks. diet and aspergers. and autism for that matter.. can be improved.. i have crohns disease.. . and well.. its linked to autism. so are alot of allergies.. might as well start early with proper diet... my mother did. i am so grateful to her for that.. Please do not think i am coming down on you.. but.. you have got to change his diet.. start a little at a time.. so he doesnt go into shock if change freaks him out.. it does me.... i think the word thing.. mastermind.. thats awesome. i can totally relate to that... one of my favorite words is infundibulum..LOL
My friends son has ADD and is autistic and it is all about nutrition. I started up with a health and wellness company selling all natural supplements. They have whats called future star and tranquility. These were made specifically for these reasons. Future star helps them learn more and concentrate more and Tranquility helps them calm down and be able to think. Just take a look at the sight and try these products out. There is a 4 month 100% money back gurantee. Even if he takes it and by some chance he doesn't respond it you will get your money back. No one has EVER returned any of our products. Just check out the sight and see if it helps.
www.symmetrydirect.com/amandjohnson
www.symmetrydirect.com/amandjohnson
yes he goes to O.T twice a week and once a week at school. yes I have that book also I have got The everything parents book on Sensory intergration disorder, the sensory sensitive child, and raising a sensory smart child........ I have read alot on SID/SPD
Have you asked the doctor's about Asperger's Disorder? I would say he definitley has autistic tendencies. How about Sensory Processing Disorder (SPD)? For a diagnosis of SPD, you have to take him to an OT who specializes in SPD. A great book to read is "The Out of Sync Child." I have a nephew who has SPD. If you want me to e-mail you more info., just reply, and I'll get you my e-mail address somehow. Best wishes!
The question are being answered!!
Micah will not eat anything else I mean nothing unless it’s his regular foods.
(Pizza, corn dogs, hot dogs if cut to make an octopus, cheese potatoes, buttered toast, chicken nuggets, chesses fries, cheese hash browns, cheese tots, and eats popcorn at least once a day and that is it)!!! Has been since he has been about 15 months.
Who has seen him, a lot of doctors! He has a behavior specialist (he gets revaluated the 23rd of this month), a therapist, and psy. Doctor, and has been placed in a mental hospital where he was diagnosed with the BP, OCD, and PDD. Neurologist (He goes for more test on the 13th of this month) and of course his regular ped.
Does he rock?
Not a lot I have noticed when he is really scared, or has came out of a meltdown that he does rock. His school has mentioned this to me. Also he will sit and rock (not all the time) when he is watching a TV show that he really enjoys.
How is his sleep?
He would never sleep if he didn’t take medication. (Since the age of 18 months he has been on and off of sleep medication we would try and get him to go to sleep without it but he would never sleep and if he did he would be up in a few hours). He also has to have his body sock to sleep.
His speech is quite delayed although he will through out some big words at time. A while back he was coloring a picture and he stated that the details he made to his picture, helped the picture look real. He also likes the word mastermind, not sure how he came up with the word.
He normally has good manners when he knows what to say a lot of times I have to remind him to say his please and thank you. But as far as someone giving him something he usually will say thank you, or your welcome.
He will not eat at the table (with the family) he complains of the other foods making him sick, or noises hurting his head, someone sitting to close to him. His reasons can go on forever. He won’t eat if I don’t let him take it to his own eating room.
Micah will not eat anything else I mean nothing unless it’s his regular foods.
(Pizza, corn dogs, hot dogs if cut to make an octopus, cheese potatoes, buttered toast, chicken nuggets, chesses fries, cheese hash browns, cheese tots, and eats popcorn at least once a day and that is it)!!! Has been since he has been about 15 months.
Who has seen him, a lot of doctors! He has a behavior specialist (he gets revaluated the 23rd of this month), a therapist, and psy. Doctor, and has been placed in a mental hospital where he was diagnosed with the BP, OCD, and PDD. Neurologist (He goes for more test on the 13th of this month) and of course his regular ped.
Does he rock?
Not a lot I have noticed when he is really scared, or has came out of a meltdown that he does rock. His school has mentioned this to me. Also he will sit and rock (not all the time) when he is watching a TV show that he really enjoys.
How is his sleep?
He would never sleep if he didn’t take medication. (Since the age of 18 months he has been on and off of sleep medication we would try and get him to go to sleep without it but he would never sleep and if he did he would be up in a few hours). He also has to have his body sock to sleep.
His speech is quite delayed although he will through out some big words at time. A while back he was coloring a picture and he stated that the details he made to his picture, helped the picture look real. He also likes the word mastermind, not sure how he came up with the word.
He normally has good manners when he knows what to say a lot of times I have to remind him to say his please and thank you. But as far as someone giving him something he usually will say thank you, or your welcome.
He will not eat at the table (with the family) he complains of the other foods making him sick, or noises hurting his head, someone sitting to close to him. His reasons can go on forever. He won’t eat if I don’t let him take it to his own eating room.
Thanks so much for your information it breaks my heart to hear that another child and there family are going through the same things that My son and I are going through but it also feels good to know that My son and I are not alone.. my email add is ***@****
Also to everyone i will answer all the questions tomorrow!
Also to everyone i will answer all the questions tomorrow!
You know it was amazing reading your forum because it is like living in my shoes to the T. I myself have a 7 year old that does all the same things but he has been diagnosed with autism and ADHD since the age of 2. He is not verbal but has stuck to the word BYE when he gets angry or wants something he repeats himself over and over non stop louder and louder he will fight anyone who tries to touch him even his teachers. He is also taking .1mg clonidine and 300mg seroquel am 300mg seroquel noon and .2mg clonidine 250mg depakote 300mg seroquel bedtime and he has been taking this for years and i hardly see any change with him either. When it comes to sleep I myself have never had him sleep all night long . He is also a runner I have had him run away more than once and I thought I was going to die when I couldnt find him so now I actually have to lock him in his room at night so I know he will not get away while I sleep. They have now put a monitor around his ankle to make sure if he ever did get away again we could locate him .But my son is facinated with cars on the highway and he is not scareed but it sares me to death. I truely understand everything you feel about your son,because I live it everyday.I would really like to keep in contact with you if you need any support because I know I have been needing it for years.
he sounds pretty normal to me.. im not a doctor.. and i dont know you at all. but to me... the things you told me seems pretty normal. my daughter lived on chicken for a year when she was 5...one of my sons lived on salad for 3 months..when my son gage was a little under a year...he freaked out when his food touched other food on the plate... and if he got any kind of food stuck to himself... he freaked... the things your son plays with seem really normal.... the box thing .. well.. he seems a bit compulsive about that.... do you cater to him? i mean.. do you let him eat whatever he wants? what is your discipline style? i ask this becuase to him.. this might be normal.. and if you allow this type of behavior.. then maybe he just gets things his way.. and this is what he wants... from what you have typed.. his diet doesnt seem all that great..
does he eat anything else? of course.. i would have to think that all 7 year old boys diet isnt going to be stellar..lol........
i have to say.. he does have some autistic tendancies.. the counting .... the color thing.. and the things you mentioned before...but some of what you are saying. seems normal to me...
being autistic myself.. i stare at lights alot..lol.. i enjoy it... i like strobes.....i could sit all day and juststare at them.. i like the quiet pop pop pop pop pop it makes as it does the whole strobe thing.. i know.. strange things comfort me.
who have you taken him too? what have they told you ?( anything besides the ADD.. etc etc... have you had him tested for allergies? besides hotdogs.. chicken nuggets and the cherry soda.. what else does he eat? does he have a talent that you can see yet?? i am sure he is very bright... does he rock? how is his sleep? have you and your husband been checked for metabolic /genetic hereditary possibilities? there is so much to check out first...
i know its frustrating... i know that you probably feel like you are at the end of your rope.. i am sure that you arent going to giveup.. and thats awesome.. there are so many questions i want to ask you .. because there are so ooo many other things that could be going on .. how is his speech ? his mannerisms.. does he sit at the table and eat with you as a family unit? sooo many questions.... lol..
does he eat anything else? of course.. i would have to think that all 7 year old boys diet isnt going to be stellar..lol........
i have to say.. he does have some autistic tendancies.. the counting .... the color thing.. and the things you mentioned before...but some of what you are saying. seems normal to me...
being autistic myself.. i stare at lights alot..lol.. i enjoy it... i like strobes.....i could sit all day and juststare at them.. i like the quiet pop pop pop pop pop it makes as it does the whole strobe thing.. i know.. strange things comfort me.
who have you taken him too? what have they told you ?( anything besides the ADD.. etc etc... have you had him tested for allergies? besides hotdogs.. chicken nuggets and the cherry soda.. what else does he eat? does he have a talent that you can see yet?? i am sure he is very bright... does he rock? how is his sleep? have you and your husband been checked for metabolic /genetic hereditary possibilities? there is so much to check out first...
i know its frustrating... i know that you probably feel like you are at the end of your rope.. i am sure that you arent going to giveup.. and thats awesome.. there are so many questions i want to ask you .. because there are so ooo many other things that could be going on .. how is his speech ? his mannerisms.. does he sit at the table and eat with you as a family unit? sooo many questions.... lol..
He loves his body sock (he sleeps in it) also he like Thomas the train although he doesn’t really play with them that much it’s almost like he likes having them. Anything that lights up, especially with a lot of different colors. He like handy dandy notebooks from blues clues; he likes ink pens, and any kind of small notebook that has blank paper in it. Smelly stickers are a big hit with him but there isn’t really anything that he really everyday plays with. Also there is a new toy out its some kind of stuffed cat that smells like oranges he just got it last week fur real something, he likes it and caries it around a lot but not always. Also he likes this toy it’s a baby toy that you put small balls in and the balls pop out. He really like to play with that, I just don’t see him play Like my girls which are 6 and 4 years old they love playing dolls, teacher, and beauty school. He doesn’t do any of that.
As far as food he has always been very picky: example the last month he won’t eat anything other than chicken nuggets has to be the same kind in the same kind of box. ( if the box comes out different he won't touch it) Butter toast is a big hit right now. Seems to switch month to month, it’s gotten to the point where he won’t eat any fast food other than pal’s hot dog with out a bun. If it has a bun he won’t eat it even if I take the bun off. Corndogs are another one of his foods that he gets stuck on. And the only drink he will drink is cherry 7 up. Water sometimes but cherry 7 up he will count to make sure we aren’t out of them before bed. The whole food temp. Thing drives me crazy. All I get done is warming his food every few minutes at meals.
Thanks Rozanna
As far as food he has always been very picky: example the last month he won’t eat anything other than chicken nuggets has to be the same kind in the same kind of box. ( if the box comes out different he won't touch it) Butter toast is a big hit right now. Seems to switch month to month, it’s gotten to the point where he won’t eat any fast food other than pal’s hot dog with out a bun. If it has a bun he won’t eat it even if I take the bun off. Corndogs are another one of his foods that he gets stuck on. And the only drink he will drink is cherry 7 up. Water sometimes but cherry 7 up he will count to make sure we aren’t out of them before bed. The whole food temp. Thing drives me crazy. All I get done is warming his food every few minutes at meals.
Thanks Rozanna
sounds like he does have autistic tendancies....the whole sleep thing.. i have never been able to sleep.. just cant shut down.. and ... while i was ok when iwas younger ... now i have to take medication to knock my butt out. so i can sleep. its like i have all these ponderings that i cannot get out fast enough.. and i get into this mode.. aspergers is different for most when you start getting into particular things. like temperature of food... i dont have that..but.. i bet allot of apsergers peeps do...
i was never put on those medications.. my mother used diet to help me.. what kind of foods does he eat? have you had him tested for food allergies? .
what does he enjoy doing?? is there something he loves to do ??
i was never put on those medications.. my mother used diet to help me.. what kind of foods does he eat? have you had him tested for food allergies? .
what does he enjoy doing?? is there something he loves to do ??
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