AUTOIMMUNE DISORDERS COMMUNITY
Lupus-like Symptoms

Lupus-like Symptoms

To: Prof. Garth  Nicolson
I feel rather confused. Ever since giving birth to my daughter 7 years ago I´ve been feeling more and more ill and I´ve been told that it´s hard becoming a parent and so forth...I have a wellbalanced life, a wonderful family, good education and so forth and no mental problems.
My symptoms: If I´m exposed to the sun I get nauseaus, extremely tired and a headache the following days and usually also sore joints.
Two years ago I had a strange circular itchy rash in my face twice.
I get very red in the butterflyarea.
My shorttermmemory is not working well, I can´t concentrate well anymore.
I have chronic headaches.
I often get very dizzy
I get mouthsores
My esophagus is sore - I can feel food going down and sometimes it gets stuck and hurts
I often have a sore throath
My digestion doesn´t work well
I have for many years suffered from numerous urininfections
I have sore wrists that get warm and hard to use
Now my legs have started to swell and get very stiff without any cause
I often feel nauseaus
I easily lose weight
I lose a lot of hair
Pain behind my chest
Extreme fatigue
I freeze constantly even when it´s warm inside and I´m wearing several sweaters
My hands and feet get extremely cold most of the time and sometimes they turn white, hurt and I can hardly use them - they hurt when they get red.
Numbness in extremities from time to time
More and more symptoms are appearing. A professor in dermatology suspected me of having lupus - an unknown illness to me - but when I read about it it matches well only I show no positive ANA so far. Doctors in Denmark seem to go by the worst case scenario so I feel lost in the system with not much help to get.
I´ve read that malariamedication can help lupus from evolving and now I fear that if I have lupus that it may become severe over time because I have no doctors to assist me.
Is there any way you can help me ior guide me? Thank you.

Reply:

Although you have some of the symptoms of Lupus, you may actually have a problem with chronic infections that mimic Lupus and cause many other signs and symptoms as well.  For example, we found that a majority of Lupus diagnosed patients had Mycoplasma infections, and these infections have been known to cause essentially all of the signs and symptoms that you have listed.  When these atypical Lupus patients were treated with long-term antibiotics and various supplements to improve their immune system, mitochondrial function, etc. they slowly recovered from their atypical Lupus and also from other symptoms.  This is not the only type of infection found in Lupus patients, but infections may play an important role in this disease, espeically in atypical forms of the disease.

Prof. Garth Nicolson
IMM


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