Positivie ANA

[sickntired4years]

Please anyone someone help I am lsing my medical coverage soon and need some answers. I went from being 160 lbs to 115 and have had 5 oral surgeries, before I have another one I need answers please!

I lived in a rural community and four years ago, I had a dental filling done imroperly, yes a dental filling started a snowball thats a avalnche. Failed root canal, cyst improperly removed, with no antibiotics at the time. Then Avelox, shot of Rochephin, then 72 hrs later horrible fever and sickness, treated with collidial silver. I trusted the wrong Dr. now, 5 oral surgeries later, am in need of another one. Bone graft in the jawbone and being told I need a major jaw reconstruction. I will give the cliff notes version. Been through many specialties and have so many issues I'll tell you what I can remember.

Have had PICC lines and I.v meds. Envanz (emitriptin)? Vorcanazole, rocephin 14 days piggy back, EVERY class of oral antibiotics except Vincya. Also, I have a neighbor who is VERY ill worse than me cancer survivor. She rcv. Vincaymycin for supposed "endocardidtis" Both of us are being jerked around, pushed off, left for dead. WE HAVN'T DIED, THANK GOD I AM ON A Mission.

SO, currently I have diagnosed with and suffer from:

atypical Trigeminal nuralgia, Cronic EBV, Kidney Issues (recently) following a, VERY HIGH IGM level, amenima (that has come and gone,for myself and my friend) TMJ ( previous), damage to 5 cranial nerves, optic neuropathy, was told possible endocardidits, taccychardia, Celiac disease, had to have endometrial biopsy? a to why, shortness of breath, Unilateral edema, yes, been told its impossible foot and handswole up like a balloon, pain and swelling in lymphs, tingling and numbness in limbs, extreme fatigue, doccumented heptomegly of liver and spleen, um...sweilling of the face and neck, frequent puss like lesions in my throat( cultured not strep, bacterial and viral negative) dizzyness, falling out, damage to heart valves, many negative tests but no answers. I can NOT gain weight, night sweats, intermitten fevers, weight loss of over 30 lbs, with no sucess of weight gain regardless of nutition good and bad. Black eye ( on the side of my face that has issues) cronic sinuisitis, cysts on breast, ovaries( friend) kidney myself, abnormal high and low blood pressure., memory loss, loss peferal vision, demylenizaion of optic nerve, hemifascial spasms, memrory loss, loss of congative abaility, suspected stroke, small superficial blood clot, B-12 deficency, HPV ( stage 1 ) colpo, cleared ?, Bone biopsy of one extracted tooth site reflected empty osseous lucuane, surrounded by granulation tissue, Pereferal blood smear results: anemia orgion uncertain, favors decreased bone marrow production...dru/toxin exposure/infection/neoplasia, nutritional deficiecny( i have great nutrtiton and take suppliments) chronic disease...wbc unremarkable, rbc has minimal anisopokiliocytosis w/ occasional elliptocytes, teardrop and polychromatic cells. Positive Mirobiology in mouth!! Also, in other pts in area C. freundii clpx Gram Negativie Bacilli Strep Pneumo. Suggested by microbiologist
Pepto strep.....anerobic bacteria Actincomycosis Isrealei, Atypical T.B.
osteophytosis on nfectious disease dr report, COXSACKIE A7-IGG high A-9 high a 16 high A 24 high, M PNEUMONIAE IGG ABS HIGH
COXSACKIE A7 IGG HIGH
COX............. A9 IGG HIGH
COX..............A16 IGG HIGH
COX..............A 24 HIGH
IGM'S NORMAL

M Pneumoniae IGG ABS huge high
M Pneumoniae IgM ABs minimal high


Negatives:
HIV, Hep A B C, Major General Oncology, nothing on blood cultures, Nuclear medicine, Normal TSH, 1 positive homonogenous ANA, other negatives, Herpes STD neg. Some fungalcultures, Rheumatoid Negthen slight positive,Esr usually low/normal, CRP usuallly low one or two normal, RPR non reactive, COXSAKIE IGM Neg quite a few more.......NO DR CAN TELL ME WHATS UP?

I am young, sickly, and am desperate for help

May be more can not think well please anyone can you help?
.

[TheLightSeeker]

Well, well.
You must have a systemic infectious condition, possibly triggered by any one of  those invasive oral and dental procedures.
Mycobacterial infection is likely, as well as Pathogenic Mycoplasma,
Babesia, Bartonella, Ehrlichia, Borellia, HHV-6 infections.
I don't know where you live, but it might be a good idea to get in touch with an LLMD, who is the only type of doctor that can help you with these types of infections. LLMDs are difficult to find in some states and in Canada there are none left. The medical system is like the Inquisition in the Dark Ages regarding this field.
But this is another topic on its own.
The lab LLMDs prefer to use is IGeneX, as it is the Golden Standard, for investigating such conditions.
let me know what you think and please feel free to ask any questions.
And you can PM me any time, OK?
Best wishes.
Niko

[sickntired4years]

GAW I am amazed at the informed people on these forums. Thank YOU! I have done some of these things but not all of them am big into alternatives and they have kept me alive. I will re post a more through post asap. I have gotten a little insight. The dr's have thrown around MS alot, then today seeing my Neuro. she dropped NMO Devics on me and it seems to fit. There is also a theory that some people get cavitations in their jawbones when these root canals go bad. I think from seeing the opto, and neuro they are suspicious of mycobacterium, pathogen, something that enterd my jawbone through the first surgery that may still be there. To clarify my labs are not in cronoligical order and I am on it. Thank you so much, knowing that there are people and solutions and educated patients or professionals or whomever you are is very comforting. i often feel like I am alone in being informed about my situation, but I am learning people know more than some medical pros and even myself at times realise. Very greatful for your response. T/U will be back soon. Hopefully tom or by the end of the week. Best...

[TheLightSeeker]

Hey sickntired4years.
Welcome to the forum.
I don't like to meet people under such circumstances,
but we are are here to make the best of this online meeting.
Having just returned last night from a trip out of the country, I will
have to play catch-up for the next little while.
I will study your post as soon as I get some slack.
For now you can do a couple things that may help.
Avoid carbs and sugars as much as possible, take 2 tablespoons of extra virgin coconut oil daily and buy the best probiotics you can afford.
Cut out all junk foods, sodas etc. Consume only fresh unprocessed foods,
organic if possible. Fresh salads, pastured meet, mercury free fish, farm raised  free raised chicken, should be the foundation of your diet.
Drink spring or filtered water one hour away from meals.
Some  daily activity is vital and proper breathing is crucial. Go to the normal breathing website and check out deep conscious breathing.the above should be done multiple times daily, minimum 5 minutes each time.

Also do transdermal  daily magnesium oil treatments daily, followed by full body brushing. Multiple times each day massage well, all the lymph nodes where lymphatic drainage is required (swollen).

By doing the above you will experience much needed relief.
You are most likely suffering from an underlying difficult to detect pathogenic infectious systemic condition, activated by the original dental mishap. I'll have to study your post in detail to put all this together and connect the dots.
Best wishes and please message me if you need any details asap.
Niko