Aa
Undiagnosed inflammation issues
For the last 4 years i have had joint and muscle pain and inflammation in my hips, knees, wrist, chest wall and wrists sinus and ears. I been diagnosed with Asthma, high blood pressure and migraines and GERD within the last 4 years. I also get a sinus, ear infections or bronchitis every 6-8 weeks . Most recently i had pneumonia. So far all my blood work for RA,Lupus and SED rates have all been normal as well as my thyroid. Since the pneumonia I was still short of breath so they took me off propranolol and placed me on verpamill which caused my heart rate to stay in sinus tachycardia for almost two weeks as well as my blood pressure was out of control. I am now on a 100 mgs of propranolol again blood pressure and heart rate are better but now i have a cough and my asthma is acting up . In the last 4 years i had 3 cysts one was in my lunate bone removed from my wrist as well surgery for intersection syndrome due to inflammation. My gallbladder was removed because it stopped working with no warning. My ENT and my primary doctor are at a loss we agree that inflammation is what the main issue is but cannot figure out the cause of the inflammation We looked at my heart which has mild diastolic dysfunction and lungs which are clear now. When I am off the beta blocker my heart rate rises to 108-170 at rest. My Vit D level is 13 and B12 is 382 and I take supplements for that as well as a probiotic. I have get tired easily and don't rest well when I sleep. Any ideas on what could be the root of all this? Each year I get worse then the year before. I am allergic to birch trees, house dust and sesame seeds. I am only 36 years old
Good morning Lynbeloved.
Well, your ND-like MD (big bonus!) needs to explore the underlying causes of
you vit. D deficiency. With such a high intake your levels over some time should have risen.
Low fat could be an issue (among other suspicions), as D is a fat soluble vitamin and when stressed, cortisol production demands a lot of cholesterol.
You may want to incorporate small amounts of oils in addition to your existing diet like high quality coconut oil, fish oil supplements, but start
with the minimum quantity and gradually increase it over time, always
monitoring the results.
Your spouse could benefit tremendously consuming coconut oil, which has
no insulin load like carbs, yet it is used readily for energy (it is not treated/stored as fat in the body-it is converted by the liver into energy).
Go to the coconut research center website for more details.
I know how some Drs and dietitians can be, when it comes to their "dogma" of saturated fats.My wife was a dietitian with the same beliefs and now we consume a 5 liter pail of extra virgin coconut oil (3 of us) in 5 weeks!
Cortisol should be tested through a saliva test for 4 times per 24 hours,
otherwise you won't get accurate results. That is the best way to get
tested for bioavailable cortisol for cellular function and the levels should vary
throughout the 24-h period. If you need details let me know, I can send you
some lab details and references.
There's more, but I must run now! lol!
Take care.
NIko
Well, your ND-like MD (big bonus!) needs to explore the underlying causes of
you vit. D deficiency. With such a high intake your levels over some time should have risen.
Low fat could be an issue (among other suspicions), as D is a fat soluble vitamin and when stressed, cortisol production demands a lot of cholesterol.
You may want to incorporate small amounts of oils in addition to your existing diet like high quality coconut oil, fish oil supplements, but start
with the minimum quantity and gradually increase it over time, always
monitoring the results.
Your spouse could benefit tremendously consuming coconut oil, which has
no insulin load like carbs, yet it is used readily for energy (it is not treated/stored as fat in the body-it is converted by the liver into energy).
Go to the coconut research center website for more details.
I know how some Drs and dietitians can be, when it comes to their "dogma" of saturated fats.My wife was a dietitian with the same beliefs and now we consume a 5 liter pail of extra virgin coconut oil (3 of us) in 5 weeks!
Cortisol should be tested through a saliva test for 4 times per 24 hours,
otherwise you won't get accurate results. That is the best way to get
tested for bioavailable cortisol for cellular function and the levels should vary
throughout the 24-h period. If you need details let me know, I can send you
some lab details and references.
There's more, but I must run now! lol!
Take care.
NIko
Thank you Niko, currently my dr and I have made several diet changes. We did some gentic testing which should that I could not breakdown things like dopimine it also showed that I cannot regulate it as well. I do not absorb Vitimins well like Iron and B12 and Vitimin D currently for the Vit D I am taken 80,000 unit a week before my last test I was taken 30,000 units weekly. My docter is a MD that treats things like leaky gut she is somewhat of a NP . As for the adrenial gland we just ran an AM cortisal and I should get the results tomorrow. I have tested postive for CMV, EBV and the 5th and 6th diesese. All virus that i had as a kid they all show up as active viruses . I was on an antiviral medicine 12 months. My diet consists of protin , vegis low in sulfer, potatoes, oatmeal etc. only oil we use in the house is olive oil as my spose is diabetic. Its just been very frustrating and scary that inflammation can cause so many issues.
HI Lynbeloved and welcome to the forum.
Your gallbladder dysfunction (likely acute acalculous gallbladder disease) was probably from inflammation, stemming from another condition, if no gallstones where present, just the symptoms.
One HUGE RED FLAG is your very low Vitamin D level.
Ideally your level should be 50nmol/L or higher (20ng/ml or higher.)
Your vitamin D deficiency must be corrected as it affects greatly so many parts and systems of your body.
The deficiency could be due to inadequate intake, insufficient sun exposure,inability of the kidneys to convert vitamin D into its bioactive form,
impaired absorption or Vitamin D receptor polymorphisms.
Beware that obesity, high cortisol levels (from chronic stress), low fat diets,
low fat absorption, gallbladder or liver disease ( may pertain to you), many
common prescription drugs (may pertain to you as well), inflammation
of any kind (surely pertains to you) may reduce the amount of vitamin D,
either in the production, the absorption or the bioavailabilty of this vitamin.
Please, urge your doctors to help you correct this very vital deficit in your body, before attempting other explorations. You simply cannot have this ignored and expect significant health improvement.
Another suspicion to rule out is low adrenal function and low thyroid function -even if you were tested for thyroid, the standard serum tests
are often inadequate to indicate accurately cellular thyroid function where it counts. If you were not tested for free T3, free T4 and reverse T3, perhaps you should look into these tests (not conventional)
As for low adrenal, conventional endos will not test, nor treat what they determine as subclinical, until it becomes a crisis situation called adrenal failure! Too late to my opinion!
So, the best option is to go outside conventional doctors for testing and treatment. An ND or functional medicine doctor, knowledgeable in endocrine disorders should be able to help you with this.
As far as the source of your inflammation goes, hmm, where do I start?
Metabolic issues, cooking oils, inadequate anti-oxidant intake, too many carbs and sugars, low magnesium levels, stress, malabsorption, low immune function, underlying infectious conditions, low gastric acid, low vitamin D, leaky gut syndrome, fungal imbalances... and so on so forth.
Ideally, you need to get an integrated approach to all your health issues
which unfortunately is not offered by the medical system (in any effective manner as you have probably concluded from your experiences so far)
You are still quite young and it is very important to make the right choices
ASAP, while you have a greater chance to improve your health.
Please let me know what further information you need, either by posting again here or by sending me a message directly, if you prefer.
I hope this helps, however, my suggestions & comments, are not intended to replace medical advice.
Best wishes.
Niko
Your gallbladder dysfunction (likely acute acalculous gallbladder disease) was probably from inflammation, stemming from another condition, if no gallstones where present, just the symptoms.
One HUGE RED FLAG is your very low Vitamin D level.
Ideally your level should be 50nmol/L or higher (20ng/ml or higher.)
Your vitamin D deficiency must be corrected as it affects greatly so many parts and systems of your body.
The deficiency could be due to inadequate intake, insufficient sun exposure,inability of the kidneys to convert vitamin D into its bioactive form,
impaired absorption or Vitamin D receptor polymorphisms.
Beware that obesity, high cortisol levels (from chronic stress), low fat diets,
low fat absorption, gallbladder or liver disease ( may pertain to you), many
common prescription drugs (may pertain to you as well), inflammation
of any kind (surely pertains to you) may reduce the amount of vitamin D,
either in the production, the absorption or the bioavailabilty of this vitamin.
Please, urge your doctors to help you correct this very vital deficit in your body, before attempting other explorations. You simply cannot have this ignored and expect significant health improvement.
Another suspicion to rule out is low adrenal function and low thyroid function -even if you were tested for thyroid, the standard serum tests
are often inadequate to indicate accurately cellular thyroid function where it counts. If you were not tested for free T3, free T4 and reverse T3, perhaps you should look into these tests (not conventional)
As for low adrenal, conventional endos will not test, nor treat what they determine as subclinical, until it becomes a crisis situation called adrenal failure! Too late to my opinion!
So, the best option is to go outside conventional doctors for testing and treatment. An ND or functional medicine doctor, knowledgeable in endocrine disorders should be able to help you with this.
As far as the source of your inflammation goes, hmm, where do I start?
Metabolic issues, cooking oils, inadequate anti-oxidant intake, too many carbs and sugars, low magnesium levels, stress, malabsorption, low immune function, underlying infectious conditions, low gastric acid, low vitamin D, leaky gut syndrome, fungal imbalances... and so on so forth.
Ideally, you need to get an integrated approach to all your health issues
which unfortunately is not offered by the medical system (in any effective manner as you have probably concluded from your experiences so far)
You are still quite young and it is very important to make the right choices
ASAP, while you have a greater chance to improve your health.
Please let me know what further information you need, either by posting again here or by sending me a message directly, if you prefer.
I hope this helps, however, my suggestions & comments, are not intended to replace medical advice.
Best wishes.
Niko
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