Hi,
I have had some of the same symptoms as you. But I just unofficially got diagnosed with an autoimmune disease caused by an infection in a biofilm. Let me first off tell you my story...see how they match up.
From the beginning... I was about 12, Had my tonsils and adnoids removed...I was in pretty bad shape, always getting sick, horribly bad breath, spoke through my nose...the usual.
Then as soon as I hit puberty a year or so after I had terrible episodes of what was later diagnosed as Baslar Migraines. They would start with a personality change, moodiness for a day or so prior, then it woud peak and I would black out or collaps, partial parralysis of my limps, severe pain, no vision, couldn't talk, respiratory distress and inconsistancy, shaking or almost seizing. This would last a few hours or so, then I would slowely come out of it, most times with out hearing, or vision. It would gradually diminish then I would have a complete memory loss of the whole day or two. They were brought on by stress. I had the last one when I was 19 or so.
I was then completely healthy and active, got married and in November of last year I had a miscarriage at around 6 weeks. No obvious reason to why I miscarried.
That month I also moved down from where I grew up in Oregon to live in Arizona.
Last April 09 I suddenly one night at 9pm I felt as tho I got hit by a train. Every muscle in my body ached and hurt, felt soooo sore. It went away the next morning and then once it hit about 9 that night it came back. This went on for about a week only during the night. On the 7th day it didn't go away in the morning. I went to my GP and he did a lupus ANA, RA factor, and SED rate. ANA and RA normal, SED rate high.
Since then I've been to close to 12 doctors, 3 rhuemys, 2 neurologists, 1 lyme disease specialist naturopath, 1 CDC lyme disease specialist, 1 GP lyme specialist, 1 oncologist and now a rhuemy/immunologist at OHSU.
It started out I only had SED rate CRP elevated, then my RA factor, IgM lyme WB positive, IgG lyme WB neg, clean MRI, and now I have elevated light chain protiens, possible early lymphoma markers, really high WBC, high ANC, high metabolic protien, and high IgG in the immunoglobulin profile. Normal ANA, thyroid tests, vitamin levels, and urine protien analysis.They supposively found a bio film community with an active infection, supposively responsible for my symptoms.
My symptoms are: muscle aches/pains/soreness, joint pain/swelling/arthrialgia, bone sharp/deep aching pain, memory loss both long term and short, confusion, extreme fatigue, mood swings, disterbancy in my menstral cycle (super heavy), difficulty focusing vision, chest spasms, sharp chest/back pain, unexplained high non-responsive fever lasted 9 days, mouth sores not from a virus, rashes, sensitivity to heat, but my main and most dibilitating symptom is the pain. I cant find a way to relieve it.
Currently taking: Flexeral, Diclofenac, Biaxin 500mg, Plaquinal, and Vitamin d and B12.
I was on tramadol and soma but GP was scared of dependency issues.
When I went to one neurologist he thought it might be some sort of stress induced Basil Migraine. Did a EMG and it had a slight distruptency but the thought it may be due to the meds.
Another Neurologist was convinced it was MS, MRI ruled it out.
#1 Rheumy thought it was fibromyalgia but no tender points. Tried Lyrica, did nothing.
#2 Rheumy thought it was late onset Juvinile RA (runs in my family), but only swelling and no redness. Plus it didn't explain all symptoms.
#3 Rheumy from OHSU doesn't think it is any of these, and not the infection disease. Some other autoimmune disease.
Oncologist suggested allergies. That was not it. He found more protiens pointing to Multiple Myeloma, but this cancer doesn't cause my symptoms.
I am only 22 years old. Can no longer work and some days I'm so stiff and in pain I feel like I'm 500lbs. I eat very healthy, avoid magnesium like the dr told me to. I take vitamins and stay as active as I can. Some days it's HORRIBLE and some days I can ignore the pain. They are not convinced that I have this biofilm infection autoimmune disease.
I dont have nearly as many physical outwardly appearent symptoms as you, but it caught my eye...the simalarities.
I have had many of the problems you talk about. My problem was caused by the many root canals and amalgam (mercury fillings) in my mouth. I had the work done on my mouth by a mercury free dentist who understands the problem. It has to be done the right way because releasing mercury in the body is very serious. I would suggest you read the book "Solving the MS Mystery" by Hal Huggins and he explains this problem to you. After reading the book you will have an idea on what you need to do.
There are things you can do to detoxify the body of this poison. I would suggest the book "Prescription for Nutritional Healing" which will tell you the supplements you need to detoxify the body. Also the Paleo diet has shown good results in treating autoimmune disease. If you start taking the recommended supplements and concentrate on a fruits and vegetable diet I think you will see results. You need to get your body healthy again so you can get off the drugs which are not good for the body. You might want to look up "Oil Pulling".