sick 9 year old boy

[mystmomm]

my 9 year old has had these symptoms since he has been around 4.  Every few months he will get a fever or be very hot, very pale, sore joints, very weak, vomiting.  It's like he just gets run down.  About 24 hours or so later he is usually fine..  I have mentioned this to our dr.s over time and they all look at me like i'm a crazy mother.  I just feel like something isnt right.  I dont know if they should check his white blood cell's, his thyroid, or what.  Does anyone have any idea what this could be? Should I ask them to do a blood work up on him when he is fine and then when he is sick to compare? Any ideas or suggestions would be greatly appreciated.

[emsellars]

I am not a doctor, but I am a parent of three special needs children; all are Autistic and suffer from the associated conditions such as ADD/ADHD, sensory processing disorder and PICA.

I began to notice differences in my oldest daughter who is almost 4 now when she was about 9 months old. The doctors told me that I was a paranoid and that I needed to grow up. Those are verbatum comments and there were some even nastier things commented or insinuated. One doctor told me to lock my 9 month old child in her room and go out for an hour or two. My husband and I looked and looked for answers. I knew it was autism all along, she was pretty much textbook, aside from the eye contact issue...which was the only thing the doctors seemed to focus on. She couldn't be autistic they insisted because she made perfect eye contact. I didn't stop. I went to mental health, Birth to 3, Resource Exchange and finally after nearly 2 years of fighting to find out why she was completely blowing out diapers, vomitting and eating everything she was diagnosed as autistic. They merely ignored the hand flapping, the spinning and toe walking as a part of her age and that she was speech delayed because she was our only child and as a military family we had little to no contact with kids her age.

Anyhow, after fighting and having my own meltdowns, losing my mind and finding milliions of greys...I said to myself "This is your child no one will do as much, care as much or give as much as you to heal her." I have never backed down since and she now at 3 knows her ABC's, colors, shapes, sizes, her vocabulary is endless and she is too smart even with her Autism diagnosis to be accepted into preschool for special needs children.

To make a long story short, way too long. You have to be willing to fight and continue on and find that right doctor who is willing to show concern and take interest. Keep files of everything and of every test, answer, question and show your evidence that you have kept personally. You are your son's advocate and you will be the one who helps him, either by discovering yourself the issue or by being a monkey on the back of medicine until you get your answers and help. I truly applaud you.

[Dr. Kokil Mathur]

Hi!

Fever with joint pains is seen in viral fevers (especially Chickungunya), typhoid, SLE, rheumatoid arthritis, Polyarteritis nodosa (PAN) and other auto immune disorders. Localized infection of inflammation of joints can also cause fever and joint pains.

A cyclic pattern of fever is seen in EBV or infectious mononeucleosis, malaria, autoimmune disorders like rheumatoid arthritis, SLE, otitis media, endocarditis, IBS, STDs and cancers. You can go over all these possibilities with your son’s doctor to see what has not been tested for. Take care!