I did read about Transverse Myelitis...my symptoms are very similar to it and GBS and CIDP...but all tests are normal thus far
Hey Nicola...
It's been really rough....2 hospital stays and no answers...I'm still burning in my arms legs and face...and very weak...especially in the legs...the only difference from a month ago...is that the burning and weakness is more in my upper limbs now...where a month ago my lower limbs were worse....It also burns and feels tight in my face and throat a lot more....
I've had 3 MRI's on my brain and spine...2 EMG and NVC's....a Spinal tap and tons of blood work with no answers...both hospitals told me to return to the ER if symptoms worsen....I'm hoping I show some improvement soon...these days every day is a struggle
Look up Transverse Myelitis.
How are you doing, any joy with a diagnosis, have you seen a neurologist yet?
Good luck
Nicola