I have been dx with a rare congenital connective tissue disorder that generally causes sarcoidosis. What type of dr should I seek out for treatment. I have many symptoms similar to lupus. The brain lesions resemble MS but not exactly - dr's say - so, sarcoidosis? Is it healthier to be on meds (such as for Lupus control) or is it better on organs to not take these meds ( esp for kidneys)?