Aa
Undiagnosed symptoms
I posted on the MS forum a few weeks ago because alot of my symptoms pointed to MS. I have had a recent hospitalization because I lost conciousness one night and wouldn't fully wake up so my husband called emergency services to take me in by ambulance.
They released me with a pending appointment to a neurologist and rhumatologist. I had a clean MRI, a margenal neuro exam, though I'm not sure what that means exactly I guess that's something the neuro will go over at my appointment.
I'm just so afraid and getting more frustrated as the days go on without anything to make my symptoms go away.
Oh, they also ruled out RA, arthritis, restless leg syndrom and fibromyalgia.
My ANA was normal, liver test was high the first day but was normal before I left the hospital. I have protiens in my urine after a 24 hour tests they gave me in the hospital. My CPK is high. And negative lymes. I'm sure I had more tests done but I couldn't tell you the names!!
My MRI was clean but want me to do a repeat in three months. They want to do a muscle biopsy on me because of the high CPK and they have mentioned a nerve conduction test.
A few of my symptoms are muscle pain, tingling in my hands and feet, a cool/warm numbing sensation, headaches, eye pain, a splotchy rash on my upper arm for about a year that has never gone away, inability to deal with heat or even warm temps. sometimes, intestinal problems, incontinence..there are more but I exceeded the word limit with this post!
I'm so exhausted all the time and can't bring myself to get out of bed or even answer the phone. I'm so frustrated and getting to my last nerve that's keeping me sane I feel like I need a thousand doctors, like a neuro, rhumatologist, eye doctor, urologist..etc, etc. How are they going to put all my symptoms together if I'm seeing different doctors for every symptom? The pain can get so bad but they only sent me home from the hospital with celebrex but was treating it with pain killers while I was there.
Can someone help me before I go out of my mind???! I know no one can tell me what I have because autoimmune conditions are so hard to diagnose and are complex. But maybe someone else has had some of these and knows what I'm going through.
Amph
They released me with a pending appointment to a neurologist and rhumatologist. I had a clean MRI, a margenal neuro exam, though I'm not sure what that means exactly I guess that's something the neuro will go over at my appointment.
I'm just so afraid and getting more frustrated as the days go on without anything to make my symptoms go away.
Oh, they also ruled out RA, arthritis, restless leg syndrom and fibromyalgia.
My ANA was normal, liver test was high the first day but was normal before I left the hospital. I have protiens in my urine after a 24 hour tests they gave me in the hospital. My CPK is high. And negative lymes. I'm sure I had more tests done but I couldn't tell you the names!!
My MRI was clean but want me to do a repeat in three months. They want to do a muscle biopsy on me because of the high CPK and they have mentioned a nerve conduction test.
A few of my symptoms are muscle pain, tingling in my hands and feet, a cool/warm numbing sensation, headaches, eye pain, a splotchy rash on my upper arm for about a year that has never gone away, inability to deal with heat or even warm temps. sometimes, intestinal problems, incontinence..there are more but I exceeded the word limit with this post!
I'm so exhausted all the time and can't bring myself to get out of bed or even answer the phone. I'm so frustrated and getting to my last nerve that's keeping me sane I feel like I need a thousand doctors, like a neuro, rhumatologist, eye doctor, urologist..etc, etc. How are they going to put all my symptoms together if I'm seeing different doctors for every symptom? The pain can get so bad but they only sent me home from the hospital with celebrex but was treating it with pain killers while I was there.
Can someone help me before I go out of my mind???! I know no one can tell me what I have because autoimmune conditions are so hard to diagnose and are complex. But maybe someone else has had some of these and knows what I'm going through.
Amph
Thanks for the ideas but I have never had gonorrhoa or Clamydia and I've been tested over the years by my doctor as a yearly update especially when I started having intestianl pain.
I have had lymes in the past, both treated but my rhumatologist tested for it and it came up negative using one of the really sensative tests that can tell you if you have a new infection and they tested me at the hospital for it seperatly also.
They say they are thinking it's autoimmune not something stemming from a sexually transmitted disease or lymes. She told me today she is wondering if I don't have some muscle auto-immune condition, I forget the name of it.
I have had lymes in the past, both treated but my rhumatologist tested for it and it came up negative using one of the really sensative tests that can tell you if you have a new infection and they tested me at the hospital for it seperatly also.
They say they are thinking it's autoimmune not something stemming from a sexually transmitted disease or lymes. She told me today she is wondering if I don't have some muscle auto-immune condition, I forget the name of it.
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