If you merely had ptosis with no other symptoms, then this would likely be due to aging or some connective tissue problem. There are some herbal remedies for simple ptosis (see ptosis.com), but if other symptoms are also present, then this may be more complex. I am unsure how the Von Willebrand's Syndrome fits with this diagnosis, and it may be something entirely different. If you have joint pain, loss of mobility and other symptoms, then it may be more complex, and you also need to examine the possibility that one or more chronic viral or bacterial infections could also play a role.
You are so young, I am sorry because it must be vey frustrating. I have had some of the same symptoms that you described, do you ever get any rashes, like flat non itchy red spots that kinda travel from your arm to your legs, etc.. mine did and they noted mine as systemic, meaning it travels throughout your body versus staying in just one, I would like to make a suggestion, get a blank journal book or legal stenopad and start writing down any and all weird symptoms you may have as well as the setting, like were you in the sun, was it summer or winter, did you eat anything weird, etc... This will really help you and your doctor if your symptoms continue. Have you seen a plastic surgeon neurologist? They might be able to shed some light on it
If you have not, you may want to speak to your physician about running some tests, you can note the results in your journal and if needed it will give the doctor a great baseline of stats for any future issues
Good luck and hang in there!
Carly
Whoops, almost forgot, Don't disregard the aspiration either and pay attention to other symptoms like dry mouth, Sjogrens sometimes presents and in my case, I have ulcers in my larynx instead of acid reflux. You may want to ask your doctor iwhat he thinks about using OTC prilosec. Sjogrens and MS are so hard to diagnos.