POTS & V-tach

[Ida22]

Hi!
I'm wondering about the connections between POTS, palpilations and Arrhytmia.
I may have POTS, but it's not for sure.
I have a lot of Ventricular Tachycardia, not sustaine, but very frequently from my right ventricle. somedays I can have 15-20 VT's that last about 15 sec each.I Also have a lot of VES from the right ventricle, Bradycardia,palpilations(accelerated idioventricular rhythm). my HR when standing in a supine position was 120-170 BPM before I started the medication treatment(Tambocor 200mg). and of course a lot of syncopes.

My question: - Is it normal to have arrhytmia like VT's when you have POTS? Is it a possibility to have POTS and a heart disease?(of course it can be a possibility, but is it common to see a connection between heart disease and POTS?)

I hope for a answer, I'm so tired of not knowing.
by the way, I am living in Denmark/Norway, and hope you can understand my "Dan-Norwegian-English".

sincerely Ida

[bluewind95]

I believe that heart disease is not the standard finding in POTS and such. Neither is VT, but it's possible, apparently. Just not the most common manifestation, from what I've been able to research.

[Ida22]

Thank you very much for the reply!
Its hard to find info about this, and I think its too convinient to have arrhythmia and POTS(If I have it).

-ida

[Mom2four85]

I haven't been dx with it...but I often wonder if I do have it since my TTT showed a 32pt rise in my HR standing.  However, I was dx with NCS/OI since my bp/hr tanked and I had palpable pulse when they gave me 1 dose of nitro.   I feel like I ride this HR/BR rollercoaster and it never stays on the same level for very long, I'm either at one extreme of too high bp/hr or so low I'm fainting.

Not sure, can you have POTS, NCS & OI at the same time? with me who knows I'm wired weird :P

I've suffered pvc's for as long as I remember and fainted since age 9, but wasn't dx with pvc's, VT/Vtach, bradycardia, Concentric LVH, Cardiomyopathy, NCS/OI and valve issues until age 42.

Hope you find some answers =)

[Ida22]

That sounds just like me, only that my pvc's,bradycardia,VT and fainting started when I was 13-14 yrs old, and they're haven't found any cardiomyopathy. I have a EF on 50%, isn't it in the lower limits? I have some small abnormalities with the heart structure, but nothing serious.

I also got 1 dose nitro and my HR change very fast to 170BPM and max. up on 190BPM. The Medical Laboratory Technologist who took the TTT on me was kind of scared and called a doctor to see if I was ok. I was very "nitro-labile"...

Lisa, thank you so much for your reply!! :)

[Mom2four85]

A normal EF is 50-70% (my last EF was 40% on my cardiac cath 8/28/2009) even then, they weren't too concerned about it - but that seems typical for my dr's - which is why I'll be going to new dr's after my new insurance takes effect soon.

thank goodness they did call the dr; your HR going up like that should have told them something

I see alot of us patients with cross over conditions between heart/ans and auto immune, the ANS regulates the heart, so it's not a far jump to say yes ANS (pots) and heart related things can be common place (or at least I think so)

[Ida22]

Then I have a normal EF:)
( by the way; when I wrote lower limits, I meant my EF is within the normal limits but in the low end of it) :)

I hope you'll get a really good doctor that cares about you. Too many doctors don't have the time and empathy. I understand that it is a very hard job, many different people that wants anwers, not enough time, always a pressure, sick people all the time...
But I sometimes think that its very hard to thrust the doctors, especially when they don't seem to care about you. The people I thrust is the people I know cares about me, and I also cares for them(balanced relationship).

yes, I also thought that thought about ans/pots and heart.
my mother is dx with fibromyalgia, again ANS, my older brother with Morbus Crohn/Crohn's disease(again ANS and auto immune?), a cousin with celiac/Coeliac disease(ans & auto immune?) . I think we still got a genetic code to crack:)