Hi all, I'm new here and desperately searching for answers. Any help would be hugely appreciated.
I had a really bad gastro virus 4 years ago, and I've been ill ever since. My main symptoms are chronic nausea (unrelated to stress or food), headaches, tiredness and more recently, dry retching (I retched in my sleep last night which made me wake up very shocked).
I have also had a lot of joint symptoms which was suspected Rheumatoid Arthritis but it was found not to be. I've had blood tests, stool tests, ultrasound, barium swallow and all sorts and nothing has helped. I have periods of depression and anxiety too (though was going through some tricky personal stuff at the time) but the main thing that I struggle with is the nausea. I have Bowen therapy which can alleviate the symptoms for a while but then they come back worse than ever. I have lost a stone and a half in the last few years and my appetite is terrible - sometimes I don't eat till 2pm.
I've looked all round for answers to my illness, as the doctors and specialists have just said it's maybe still the virus from 4 years ago or IBS (I don't have any real IBS symptoms!). Frankly, they are baffled and I am slowly going out of my mind, I'm crying typing this because it is having such a damaging affect on my life.
I also sometimes go a bit shaky (just a few times then nothing for months) and have tingling feelings in my hands on rare occasions. The symptoms for Dysautonomia seem to resonate with me. I just want an answer to this ongoing issue as it affects my ability to work and concentrate. I have also been getting pains in my hip this week and in my shoulder.
I'm only 35, but sometimes feel like I'm aging before my time!
Do these symptoms sound like they might be Dysautonomia? I have another appointment with my doctor next week and feel I nbeed ideas to take to him as he can't suggest anything else to me!
Please please help if you can.
Thank you in advance,
Louise