POTS Dr.'s and use of Dramamine

[mkhueser]

Has anyone heard of Dramamine being used for POTS.  I gave one to my daughter (14 w/ POTS) for the car and her headache got better (a first!)

Also, I've heard both the chronic fatigue community and the cardiovascular community treats POTS.  Any preference on either of these?

[AireScottie]

Personally, I think my neurologist has been the most helpful/understanding, but I don't think that's the case with a lot of neurologists.  You'd have to find one familiar with the autonomic system.

[LivingInHope]

I used gravol and U.S. equivalent dramamine for awhile as one of my migraine treatments I believe prior to getting the diagnosis of POTS.  I think it made my tachy worse, but then, so does the phenergan I use now about five times a month, it seems like, but I still use it.  The itchy eyelids, etc. with the dramamine caused me to quit it.

  I haven't tried chronic fatigue community, but have gotten almost no help from the cardiovascular community beyond testing and failed medication attempts.  I've been told by doctors- eat a lot of salt, eat pizza, wear compression stocking if they help, try to build yourself up standing against a wall, sit on the edge of the bed before standing, pump your legs, pump your fists and don't go on any blood pressure medication, it will only make you feel worse.  These things doctors have told me.

  I've made a small number of adjustments in life with POTS thus far, like sitting on the edge of the bed, using a shower chair, etc. and now want to get my heart monitored with echos since I have both mild tricuspid and mitral valve regurgitation which I hope doesn't worsen.  Hopefully you can get to a knowledgeable, sympathetic doctor who will work with your daughter.