POTS symptom???

[dmolina]

I was wondering if all over body pain and discomfort is a symptom of POTS or if it is something else. I've had this happen before but was never told what it is. Please, if anyone knows please message back.

[halbashes]

It seems that many of our members have already shared a lot of helpful information, but I just wanted to present a couple of additional possibilities.

Joint hypermobility is more common in Dysautonomia patients than in the general population.  Especially a condition called Ehlers-Danlos Syndrome, which can cause pain in the joints.

Patients with muscle pain are sometimes diagnosed with a condition called Fibromyalgia.  For more information on this condition, visit MedHelp's Fibromyalgia/CFS Community.

In general, patients with Dysautonomia tend to tire more easily.  This fatigue alone may be enough to cause some level of pain.  The typical Dysautonomia patient is likely to use their muscles somewhat differently than the average person.  Additionally, many Dysautonomia patients experience frequent fainting spells, falls, and other injuries.

Recently, inappropriate activation of Mast Cells has been researched in association with POTS specifically, which can cause bone pain.  Nerve pain is yet another possibility, and is especially common in patients experiencing Dysautonomia secondary to an Autoimmune Disorder.

[dmolina]

I am expecting our 3rd, and last, girl. If the first pregnancy was like this one, we would of stopped with her.

[acesew]

Sorry AireScottie.  I was trying to post that last comment for dmolina.  I am new to this and still have trouble figuring out what I am doing.

[acesew]

I also have all over pain.  I will hurt from the top of my head to the bottom of my feet (literally).  They first diagnosed me with Fibromyalgia, but I also faint, have dizziness, trouble with heartrate, and very severe headaches.  So now, I have a new neurologist who is thinking it is POTS.  I hope you can find a doctor to help you a lot quicker than I did.  It took me 7 or 8 years.

[evo123]

I truly feel for you.  Please try and stay strong and hopefully when your baby arrives treatments will be effective for you.  

My 2 youngest children attend a private nursery of a morning time.  As I am on sick leave from work at the moment my 2 year old has been offered a temporary funded place in the school kindergarten she attends 2 full days, this is a great help to me.  Also, as I am off work at the moment and have been unwell for a while my health visitor is trying to get my nursery fees part funded until I am able to go back to work but we are not sure if this will happen (but we are trying!!!!!)

I am not sure of how things work were you live (i'm in the UK) but it is worth asking your health visitor if there would be any help available for you - even just temporary until you are feeling stronger.

I am sorry I could not be of more help.

On a lighter note, are you expecting a girl or a boy?

[Heiferly]

In terms of getting your heart rate down without medication, either lying down or fluids are really the only things I can think of right now.  I'm guessing lying down doesn't help much in keeping up with your kids ...  getting as much fluids as humanly possible into yourself is the other thing.  IV fluids are awesome for temporary relief (usually the effects only last days, as eventually your system will eliminate the extra fluids through urine) but it's difficult to find doctors who are willing to use IV fluids to help POTS patients except on an emergency basis when symptoms are bad enough to possibly warrant hospitalization.  

I'm going to keep thinking about this and I'll let you know if I come up with more ideas for you.  

[dmolina]

That would work if I didn't live over 1000 miles away from my family. My husband works in the oilfield and has to be at work at 4am. He doesn't get home until he gets here. Sometimes it is at 4pm others 11pm. I wish there was a way we could go back to Houston but for now, we are stuck here.

[evo123]

I have great sympathy for you as I am in a similar position.  I have 3 children aged 1,2 and 7 and have parted ways from their father so am a single parent.  During my last pregnancy I had a continous high heart rate and episodes of symptoms that a cause could not be found.  I was quite unwell and put it down to pregnancy.  I delivered my daughter by C - section and was unwell in the hospital.  I did improve for several months after with only one bad episode, I just put all this down to being a mum to 3. In may this year I took bad and am still trying to get back on my feet (literally!!!) but am trying to stay positive.

Although it breaks my heart to not be able to give my girls 100% the one thing that gives me strength and keeps me pushing myself is them.  

Your family will help you through this and you will find ways to adapt and deal with your little ones.  At the moment I am relying on my family to take my girls to school/nursery and where ever they need to be outdoors and I am trying my best to care for them indoors.  On a 'good' day we make cakes, play games etc and on a 'bad' day we watch some tv and read books etc....

If you have the support, when you have the baby, ask for help with the older 2 and try to relax with your new addition xx

I am thinking of you

[dmolina]

The past few days have been pretty bad. My cardiologist doesn't want nto put me on meds until after the baby is born. I'm due November 13th so I still have awile. My heart rate has been up all day. It is currently at 122. Is there anything that helps it go down? I haven't been able to find anything. Luckly my husband is off today so he has been here with the kids. I don't know how I am going to deal with this and 3 little ones 5 and younger.

[Heiferly]

I get muscle/joint pain that's achy in nature--it's pretty akin to the all over soreness after slipping and falling on ice in the winter (though I guess that's a regional thing that doesn't translate well in every part of the country) or how sore your whole body is the day after a car accident where you got rear-ended.  This tends to occur primarily on days when I have failed to get enough sleep/rest in the preceding days or have over-exerted myself (not necessarily in terms of physical exercise, but by using more energy than was available in the first place just being awake or out and about, etc.).  

Basically, I have an account at the energy bank, and every time I accidentally overdraw my balance, I'm in trouble.  They send out the loan sharks to rough me up overnight so I *know* I better pay up that next day to get out of the red OR ELSE.  :-D

[supineallthetime]

I don't have same exact thing, but something remotely similar.  When I push exercise, I don't get very sore in specific muscles but tend to get sore/tired everywhere instead.  It tends to build up, then extended rest brings soreness everywhere... like a late, slow & deficient healing/exercise response.  Seems to fit the fatigue & exercise intolerance side of symptoms.

[dmolina]

thank you everyone for your input. Sometimes I feel like I am going crazy with all the pains and symptoms.

[Weney3777]

I have POTS. I too have all over body pain, especially my legs. It has been suggested to me to make sure to check my electrolyte levels, potassium, iron, and to take magnesium. Also, eat plenty of potassium. Hope I cpould help.

[CHRISTYDRAKE]

My son complains of all over body pain/ache.  He constantly wants his back rubbed and complains particularly of his left hip hurting.  

[AireScottie]

I too have all over body pain, but mine is probably from my autoimmune disease and dislocating joints.  I don't know if it could be just from the POTS.  I'm interested to see if anyone else has pain from POTS.