dr. chilemski clev univ

[binder58]

has anyone here been to see him?  His wife is also a doc, and there is also an autonomic lab there....seems to be much more involved than cleve. clinic syncope lab, which we have been to.  ALot of tests, alot of money and no one talks to you about what the tests showed, revealed....without pulling teeth, so we are hoping for more info and even getting a life back!  We saw dr. Grubb,,,,maybe it is cause he wife is gravely ill....when we saw him, but no great shakes there!!  For all the hype....so we are just wondering if and what you thought!

[CHRISTYDRAKE]

You know how I feel about them through the PM's we've exchanged.  I do believe someone else on here also sees them.

Nothing but good things to say.  I emailed a question yesterday afternoon to their office and got a response first thing this morning.  So they are also very responsive after the visit.

We go back in January, so we are down to about a follow up every 6 months now.  At first, it was every 3 to 4 months, but they were also still running tests.  Cody had a lot of GI tests ran since nausea and abdominal pain were 2 of his main complaints.

[LA1989]

Just bumping you up because, yes, there are at least two people on here who see Dr. Chilemski and his wife. I've only heard good things--I'm sure they'll weigh in here!