Karen, you might have a problem with the Occipital Nerve going up the back of the head, or for that matter, anywhere along its passage through the head or neck. Your symptoms sound like mine, but my problem is with both sides. Occipital Neuralgia is what you should look up. The fact that it goes up the head, to the top? involves the face in such a way you appear to be a stroke victim (when mine gets bad my face becomes somewhat rigid) and it leaves you with a sore neck points to the ON. Oh, and the stabbing shock of pain at the Occipital lobe, vise-like headache, pressure behind the eye, blurry vision, yeah, ON. It ***** big time.
I would recommend that you get seen by a neuro specialist for a complete assessment including an up to date MRI of the brain and the cervical spine.
There are a variety of possibilities for chronic pain attacks like what you have such as migraine, atypical facial pain, trigeminal neuralgia and cluster headaches to name a few.