Hi Cindee56,
I am sorry it took me so long to get back to you, I also have chronic lyme and severe chronic fatigue so it takes me a while to get back to messages and emails.
So sorry to hear of your suffering too! I know it can take such a huge toll on us and affects our life and isolates us from others, since so many people (including family) do not understand. I feel like everyone has given up on me. So it is so nice to have this forum and get support from others.
Please try to keep the hope. I am here for you to and I will keep you in my prayers.
How long have you had the pain? Were you in an accident or anything like that to cause that? I was in accident back in 1995, but i recovered at that time with PT and chiro. Then when i got extremely sick in 2006, undiagnosed lyme for years we finally found out. All my pain from accident came back along with severe constant fatigue and severe pain leaving me bedridden since 2007.
I finally got MRIs this year which showed all the neck and back problems, degeneration. Also Chiari malformation which prevents them from being able to do procedures on my back or neck due to the risk of worsening the chiari severely.
Can they do anything for your back? I have not found much info on surgery for the thoracic because that sounds major and high risk.
Thank you so much for your reply, and sorry it took me so long to reply back. I hope you can find some relief and some good doctors to help.
Take Care,
angelize (Julie)
I am exactly the same with my back. I also have extreme upper back, leg pain and and swelling. My shoulders, everything. My neck is 3 herniated discs, my back totally degenerated.
I am in horrible pain 24/7. I lay on my sides too and am basically bedridden.
No doctor helps and I can't take painkillers--allergy to them.
I am here for you, I know the suffering. I am trying to deal with it also--it ruined my life and all relationships.
I try to have hope, but I know how hard it is. Just know you are not alone....